7 year old diagnosed with Juvenile Diabetes. Still in Honeymoon stage

Well…my worst fear has come true. My 7 year old daughter has been diagnosed with diabetes. A 4 oercent chance that she would get this because I have Juvenile Diabetes. Are there any others out there that may have this same situation?

I am very puzzled by this Honeymoon stage. I caught her in the early stages and the cells have not completely died off yet. But, I have decreased her long acting Novolin insulin down to 3 units per day, when it initially was about 10 units total of both short acting and long acting. She does well for a while and then they start running extremely low. Does anyone know about the honeymoon phase? I am being told that it could be anywhere from a couple of months to a couple of years. She has pretty good control now. I control her’s better than I do my own. But, I am awaiting the killing off of the cells and I do not know what to expect.
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Mignonne, I am so sorry to hear about your daughter’s diagnosis.

Everyone’s experience with the honeymoon phase is different, but since you caught it early, she could have a long honeymoon phase. You are doing the right thing reducing the insulin and checking. I think you need to check as often as possible to catch lows.

Do you know if there is a JDRF support group in your area? Might help both of you to meet other parents and kids nearby. They can make suggests for dealing with diabetes during school.

I do not know if there is one in my area. But, I can call and find out. It is very difficult for me because I work two jobs and I am a single mom. I have so much stuff that was sent to me to read. But, I have not had time.

Last Feb my daughter was 6 at the time of her diagnosis and she stayed in honeymoon for just a little over 1 year. We just started having issues with highs last month and have had to keep making adjustments and her Lantus (long acting) is at 9 right now and still doing some adjusting. The honeymoon stage was good and low on insulin most of the time you just have to be careful with the lows. Good luck and God bless!

Another good reason to go would to get to know other families and teens with diabetes. I used to babysit for diabetic kids. You definitely need a support network.

I can imagine how difficult this is for you, with so much to balance at once, but perhaps they will have the meetings at a time that can work. It doesn’t seem like the New Orleans branch updates there website, but the contact info is available here.

Hi again Mignonne,

When Caleb came home from the hospital, his dosing was something like over 12 units. Within weeks that dropped significantly such that he only needed one shot of Novolog and NPH in the morning and he was down to less than 2 units per day shortly after that. Caleb started pumping within just a few months and we were able to maintain tight control. However, every few months things would change and I would say, “he’s coming out of the honeymoon” but then it would happen again a few months later and again a few months later. Then finally, almost 2 years after diagnosis, we had an even bigger whamo where foods that had never been an issue became an issue and within a couple of months his basal rate just about doubled from 4 units per day to 8 units per day. His total basal had always fluctuated up and down up and down, but finally it seemed to stay in that 8 unit area.
Our doctors say the only way to know about the honeymoon is through blood tests and Caleb’s has not been monitored in that way, but I feel strongly that it ended just before two years, although he was gradually coming out of it over that period.
In retrospect, I found the honeymoon to be helpful to a point, but also it seemed like we were working against it so much because his body’s insulin production was so unpredictable.
I’m sorry about your daughter’s diagnosis. You obviously have a lot of knowledge to deal with this, but please feel free to contact me with any questions you have that you think I can answer as a mom of a PWD.

Here is Caleb and part of his story - I’m still trying to catch up on more than two years.

Thank you for your response. Did it just happen all of a sudden? Did the glucose levels start getting extremely high? I am just not sure what to expect.