Was on vacation with my sister who is an RN and kept company with two of her friends who are also RN’s. God help me. I had a low one night which prompted one to state “obviously you are overdoing it”, then asked me “are you a brittle diabetic?”. We were not friends after my response: “I am familiar with that term, but it is no longer used”. None of the three RN’s asked about my insulin to carb ratio or correction factor. Pretty sure they knew nothing about those terms or that concept. My sister shouted at me “don’t take insulin” whenever she saw me inject. I had to explain things like "this is my long-acting insulin and I “need to take it”. I took to hiding whenever I needed to take insulin. She did not believe me about the onset time of Novolog. Afrezza was not comprehensible and she was aghast at the units I inhaled. A few days in I told my sister that I would not talk to her about diabetes and that she should not comment further.
I was diagnosed with T1D/LADA two years ago at the age of 56. My last A1c was 5.4 using a mixed bag of unconventional therapy that includes Afrezza, Novolog, Tresiba and sometimes Levemir and sometimes a pump with Novolog. Always with a CGM. My career has been in diabetes and heart disease research. I know my endo through my work, and she has complete confidence in what I am doing. In fact, I am the only patient in the entire endo practice at that facility who has been prescribed Afrezza. Instead of celebrating my success with treating T1D, my RN sister and her RN friends tried to usurp my endo and use my A1c as ammunition/evidence that I was “overtreating”.
This forum is invaluable for me. There is no one I know who has T1D. There is no one I can talk with about these things. It is such an isolating disease.