Kliff is doing something exploitative with patients. People are walking right into it. That happens a lot on LI.
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Just signed up same user nameā¦
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I had to go back to 2012 to find a reference to my linkedin account. It seems to be one of those I deleted with extreme prejudice. I just tried to recover my password (since I know I would have used my jbowler account from the ACM in 2012) but no 6 digit code.
Good: I donāt believe in the past.
At the time LinkedIn was a way to swap our CV around to other guys in the TechBro industry, so, yeah; marketing. It was not a place to get useful advice on anything other than than our next job.
Why would I discuss diabetes with my next boss? Why would I mention it; it might be toxic. In fact it would be toxic; why raise oneās own diabetes in a job interview?
However there is an inherent toxicity to LinkedIn itself; everyone is out to get a job. Cool, sure, it was very nice, a bunch of the top dudes in the field. Dudes out to get a job. They donāt want any challenging questions to be asked; someone might ask them at the interview.
āI notice you gave a very erudite response to a question about autoimmune diabetes on LinkedIn, perhaps you could explain your reasoning? Diabetes is a very serious hit on our bottom line at present.ā
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LI is where the healthcare disruptors do their work. You donāt get a job doing healthcare disruption. Thatās not what its about.
No one pays you to do healthcare disruption. They pay you not to. 
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@Luis3, Iāve been having great luck with the lobby lately. 1,500 views in less than 24 hours. Thatās good. When I do really good, this song plays in my head with the lyrics, āLobby, lobby, lobbyā¦ā https://www.youtube.com/watch?v=ETxmCCsMoD0 Itās in a practical place where healthcare policy nuts from both parties congregate. The doctors are making comments like, āmic drop!ā Itās fun.
But the pharmacists have delayed the release of their next propaganda video. They are fantastic at what they do. Iām disappointed. The docs will release their propaganda video in March. https://suckitupbuttercupfilm.com/
Weāve been having discussions about the difference between lobbying with money vs lobbying with truth as a currency. Optum has been out launching some outrageous attacks. I try to have fun with it. Yesterday I told them to stop shoving ā ā ā ā up my butt and posted this: https://www.youtube.com/watch?v=-peWHO6pRnQ You gotta enjoy yourself out there. Iāve got the Doctors fully in open rebellion. Thatās Optumās worst fear. I taunt them. Usually, if I write one negative comment on their ads, all hell breaks loose and people join in from everywhere. Itās easy to light their posts on fire.
Check out whatās moving around todayā¦
https://thehill.com/opinion/healthcare/5669986-america-sick-health-care/
Matthew Zachary (author) is cancer advocacy.
I tried very hard to advocate for two diabetes, but kept being told it was futile
Whoād you talk to? I havenāt been able to contact anyone at BeyondType1 but others have been super supportive. Iām hoping if we work together we can find a way.
I talked to anyone that I could, Marie, Terry, john Bowler, spdif , moh101, anyone who had been on the forum for a while. People stirred me toward fudiabetes.org. I couldnāt find out who made the decision and why the members consulted.
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I donāt think its futile. Definitely hard but not Sisyphus pushing a rock up a mountain hard. Not even ordering from Edgepark hard and lots of us have survived that trial.
I know youāve been asking who to contact. Part of the problem is we the TuDiabetes community donāt know who. The last we heard from Beyond Type 1 was Community Manager @Milaās last post in 2023. We just need to find a connection with someone at Beyond Type 1.
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Someone on this forum including Jon Bowler has said beyond type one itās not a good source. I did write Marie thinking she was the boss of tufiabetes and she said she had no control it.
There seems to be no solution or option for us that we want to keep tudiabetes. I was referred to fu Diabetes.
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Most of the people here (on TuD) do not know the original administrators. Mila was apparently the last but that is based on other information posted here and, maybe, FUD; i.e. itās hearsay.
I think I can reasonably say that there was no meaningful communication between those in charge and anyone who, after the first announcement has commented on TuD.
So who knows what will happen on 2/1/26? Most likely nothing because itās a Sunday. Who knows; I suspect it will be like looking for the aurora from the equator.
Thereās no way to protest on the Internet.
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