AACE: 80% of misdiagnosed LADAs already had complications in recent study

These would be anti OCD pills no?

LOL definately anti, for me at least ;0

Same here.. I have optimum cholesterol levels, and just because I am black, middle aged and diabetic, the doctor insists on a full lipid panel. Never had and never will have high cholesterol in my life.
I think I wil ask him to run a b12 test and vitamin D every three months as I do tend to get low in those areas sometimes. Have suffered from pernicious anemia and used to take the B12 shots every month, but I do not seem to have the critcally low levels anymore.

God Bless,
Brunetta

I am one who was 31 years old when dx'd, and was treated with sulfonlyureas for the first year or two. That was 27 years ago, but I had no complications. I do wish I had gone on insulin sooner.... maybe my pancreas would have lasted a little longer. It's completely shot, now.

Thanks for posting Melitta The article from the new Yorkr is well worth the read as well .Thanks BadmoonT2.

God bless,
Brunetta

I hope my comment is appropiate ...cleaning up some diabetes related stuff and found a book " Growing and Living with diabetes " , published by Lilly and the CDA in 1994 .Page 5 : Most people who develop type 1 diabetes are less than 30 years of age , but it can also occur in older adults .
Another point about chol. testing in Canada :from the CDA Clinical Practice Guidelines : Adults with diabetes should have their cholesterol tested every 1 to 3 years. More frequent testing may be necessary for people taking cholesterol medications.My GP follows this protocol ; I would question her , if she wants me to do more often than required ...fasting not one of my fav's :)

Honestly, Brunetta, with PA you have to have an injection at least every month. Mine is so bad that I have to have the injection every week, so I have a prescription for it. I give myself a shot every week; without it my BG goes high and I feel awful. Be careful! It wasn't called "pernicious" for nothing.

That info regarding age of diagnosis is outdated, Nel. I don't have specific stats (I'm sure someone like Melitta does), but more type 1's are diagnosed as adults than as children. It is like pulling teeth though to get even medical professionals to stop seeing type 1 as "juvenile diabetes".

Zoe, I realize this is outdated ...the publication is from 1994 ...almost 20 years ago to date ...even then it was published , that type 1 can be diagnosed in older adults is my point !!!..and I think a person of 30 years or even younger by 10 years is not a juvenile

Oh, sorry Nel, I wasn't getting the point! When I was trying to figure out why my "type 2" treatment was no longer working, the only D book I had was one published by Johns Hopkins, around the same time I think. It listed the differences between Type 1 and 2 and it also said something like "usually in children, but sometimes in adults" that gave me the very first clue that I could possibly be type 1.It's kind of incredible to think they had a clue that long ago and yet people are still thinking "type 1 = children, type 2 = (older) adults"

"Olympic Option"... that's perfect AR. While I have never been pregnant, I would imagine that caring for small children while holding down a full-time job and fighting the doctors would be a task of Olympic proportions. When the meds don't work the numbers remain high and it is almost impossible to function. The fact that young Canadian moms are reduced to begging for insulin is criminal. It is dangerous for both Mom and the kids. This is Canada for God's sake...birthplace of insulin...and yet no tests...just endless meds and maybe, if you keep pushing, an improper insulin dose added to the mix. Thanks for your comment AR.

Melitta: Thanks for continuing to fight for the misdiagnosed.

BSC: Thanks for continuing to inform for T2s.

not to fret Zoe ...we are here to learn . I was talking to a buddie I know from the early seventies tonight ; he is a slim type 2 and folks comments to him are : I thought PWD are all overweight ...so life goes on , so does the teaching , so does the sharing ..it's never ending !

Can't Canadians and non Canadians as well obtain insulin without a prescription ???
The fact is , that some Pharmacare programs as in BC will pay a certain percentage, hence the Pharmacy may request a script . I had no problem changing from NovoRapid to Apidra and back to NovoRapid without a written order from my GP .
I recall years ago ( mid nineties ) visiting Nova Scotia , Canada and having concerns about the insulin I brought from home ...it was hot ; we went to a Pharmacy and purchased a " fresh " bottle and paid the bill.

Nel: I honestly have no idea what you are trying to say. Are you advocating that young people diagnose themselves, purchase their own insulin and treat themselves? Insulin and everything that goes along with it is expensive and certainly beyond the budget of many young families. A young mom who decides to go off the radar to treat herself would not just need to pay to replace one tainted vial of insulin for heaven's sake... it would mean a lifetime of ridiculous costs.
You repeatedly say that you have not had the tests and yet you are a T1? Are you opposing the tests for young Canadians?
From what I understand, pregnant women are given insulin for the duration of their pregnancy and then it is taken away. It is the same for those on chemotherapy. For some it's fine and for others it is not.
Sixteen years ago I actually watched a young mom who had been switched from insulin to sulfs go into DKA. It was horrible. I spoke to her this evening to confirm what had happened that night and she said that she was classed as a T1 because of that experience...no tests!
You say the statistics are skewed because T2s are diagnosed late. How do you know that they are T2s if there are no tests?

I cannot speak for Nel, but I would say that in a desperate situation, if a doctor refuses to provide you with insulin and your life depends on it, you do what you need to do (including purchasing insulin without a prescription). Several TuD members have done exactly that. The autoantibody tests were not available when Nel was diagnosed. In a perfect world, we would all wish that c-peptide, autoantibody, and monogenic diabetes testing were performed on all newly diagnosed PWDs, and that insulin were immediately provided to those who need it. Sadly, it is not a perfect world, as we see by the steady stream of misdiagnosed Type 1s here on TuD.

Peetie, have you connected with those who can make changes , such as the Canadian Medical Association, Federal(your MP) and Provincial(your MPP )Governments and advocate for those you feel need different treatments ?

Nel: The answer to your questiion is YES!!!! I stated on another post that I was going to do that and I have done it. After 18 years on sulfs, my brother was sent home from the hospital to choke on his own vomit so you can bet your life I will never let this go. The fact that his daughter was told by his doctor that HE had caused his own death because in those 18 years HE had never brought his numbers under control just tears my heart out. I am certainly not going to stand around and watch as his two daughters travel down that same path.

I always answer your questions Nel and you never directly answer mine. You sent me a friend request when I first joined this forum last year and you introduced yourself as "The Official Representative of the CDA on TuDiabetes." Is this the case or not? You led me to believe that by communicating with you, I was advocating for myself and my brother with the representative of the CDA. You have never answered this question in the open forum so am I to assume you are not? Melitta, while she is clearly a strong advocate and very helpful to members, has made no such claims.
Nel: you have repeatedly told me that the tests are not necessary. As "The Official Representative of the CDA" I am asking you why you oppose these tests?

I'm sorry Melitta and all the other members on here. I am so bitter and angry and I know that. This has been my first time speaking on the internet with strangers and so many of you have provided me with support and information.I really appreciate your efforts to support me. I will try not to post again once I get an answer to my questions.

I have never claimed to you or anyone else to be the The Official Representative of the CDA on TuDiabetes ...as there is no such position ; neither have I told you nor anyone else ,verbally or in print that " the tests are not necessary " ..I have nothing else to add .

Hi Peetie, I know you are bitter and angry about your brother.I would be, too. It must be so very hard to have seen him suffer, and then have had his daughter told that he brought it on himself. It is so very frustrating to realize that medical personnel have such dangerous assumptions about Type 2 diabetes. Dangerous enough to kill people.. And Nel, I know you always try to help people as well.Now I do not know about Canada, but whether you can get insulin without a prescription varies from state to state in the USA. I can get it without a "script" here in Ohio,but not in Georgia,my home state. Maybe its availability changes from province to province in Canada ss well.
I know that the both of you are, like Melitta, strong advocates for the case of proper diagnoses and treatment of all diabetics everywhere, regardless of type. Please stay with us, Peetie, and Talk to us, Nel. All of us,at least the "regulars" on Tudiabetes, will greatly miss the two of you if you discontinue your stellar support.
Both of you may have had some personal misunderstandings with each other's meanings, but it can be worked out.

Take care and God Bless.
Brunetta<

Excellent point.