I agree with you 110% and have read articles on all that myself. Sometimes i get so mad at the type 2s i know that are over 300lbs and try to tell me they think they are (type 1) losing insulin instead of making to much, I think some True type 2s just like to make up that its because of a decline of insulin just so that they dont feel so bad about themselves failing to lose weight. I really hate it when one of them tells me they think they have type 1 even tho they’re only on pills and they get 103-140 in mornings and in the 80s in afternoon even after a reg coke at lunch. Its like hello! i cant drink no regular coke and be there few hours later.
Hi Zoe: Notice how hard it was for you to get correct information for the disease that you have, late onset Type 1 (LADA). LADA is way more common than childhood onset Type 1 diabetes, yet most doctors are clueless about it. I don’t put much stake in “common knowledge” about diabetes, especially when it somes to adult-onset Type 1 diabetes.
I really don’t know much about Type 2 diabetes, that is why I qualify what I say about Type 2, and I am not being “authoritative” about Type 2. Type 2 diabetes is really complex, and I am not going to tackle that one! I have studied adult-onset Type 1 quite a bit (I read the medical journals on it), including the areas in which adult-onset Type 1s are incorrectly included in the statistics for Type 2s, due to misdiagnosis. As an example, it wasn’t until the findings of the United Kingdom Prospective Diabetes Study (UKPDS, a huge study of Type 2) were published in 1998 that some diabetes researchers realized that Type 1s were incorrectly included in Type 2 studies. In the UKPDS, 10% of the “Type 2s” selected for the study were antibody positive and had been misdiagnosed (and weren’t appropriate for a Type 2 study). It’s that 10% of people with immune-mediated beta cell destruction that skew the results of earlier studies in supposed Type 2s indicating the decline in beta cell destruction, including the study published in 1999 that John Walsh cites. So my point is “basic science” and “well known facts” about Type 2 diabetes should exclude people with Type 1 who skew results about losing insulin production over time.
Ever since I was misdiagnosed as having Type 2 strictly due to age (I actually had rapid onset Type 1 at age 35, and was hospitalized in DKA), I have worked to shine light on the prevalence of adult-onset Type 1 diabetes. I am just trying, in my little way, to eradicate some of the myths about Type 1 so that others receive better care than I did. I think we all want that on this forum.
Melitta
Thanks, Yvonne, I am glad that I am “darn handy”!!!
Tiffany,
Hello! Time to get yourself educated. Insulin resistance is thought to cause weight gain long before it causes diabetes. T2s can’t drink regular coke and have good blood sugar control. We know that. Many of us can’t eat more than 30-40 grams of carbohydrate per day.
Don’t lump all T2s together just because you don’t know much about our version of this disease. Comments like these are driving T2s away from this forum.
Good suggestions Yvonne!
Yes, educate yourself Tiffany. Not all diabetics are the same…no matter the type.
i was diagnosed as a type 2 at beginning, so i was a TYPE 2 for a year before they figured ALL the type 2 drugs werent working for me
and yes i know some type 2s after years and years cant drink a regular coke but all of the 5 i work with alone are always drinking regular coke and eating donuts and burritos and hamburgers all day and still pull good numbers and they are only on a couple pills at the low doses. And all of them have had it for more then 5 years some 20 years
what i hate is TYPE 2s telling Me, just dont test for awhile and dont take insulin and dont worry about it so much and give it a week of that and when you test again youll be fine.
Well, I sure can understand your frustration. But it’s a pay now or pay later kind of deal.
You can bet the people you work with don’t have good numbers despite what they’re telling you. Or maybe they don’t know what good looks like. Blood glucose over 140 is a lot like smoking one cigarette. One won’t kill you, and neither will two, but they add up to a whole lot of misery later.
actually 2 of them show me theyre numbers and test right along with me right before we leave work
and they are constantly under 100 mostly 80s for one guy and the other is like 90s one time that i know one of them had ate a fully loaded carb lunch with a reg coke at 12p, ended up testing at 72 at 5p and he had forgotten to take his pill that morning and yea it stays in your system but he’s forgetting alot, enough where it should mess with his numbers.
Hi Tiffany: I certainly empathize with what you are saying, and there is nothing “fair” about this disease. Plus there is so much ignorance of Type 1 diabetes, especially if you get it as an adult. But you really can’t compare yourself to people with Type 2 diabetes. It is a different disease with different genetics, cause, treatment, and cure. As for those who “encourage” you to do less maintenance (less testing, no insulin) you may want to have some stock answers to help you deal with such a situation.
Finally, recently on tudiabetes, there have been a few discussions that amounted to war between Type 1s and Type 2s, so I think we are all trying to be more careful now to listen to and understand others.
Melitta
So just take a moment and educate them about T1 diabetes. And maybe they’ll share a little about what it’s like to be a T2. I get the sense you think T2s have it easy, but that’s not reality. I used to think I’d rather be a T1, use insulin and get to eat real food. I’ve learned a lot at tudiabetes and know how crazy that idea was.
my C-Peptide was 0.96 (lab range 0.8-4.0) and my GAD65 was 2.2. I’m only being called type 1 and these numbers are from 3 weeks post diagnosis
Yes, not all docs are willing to use the LADA designation because it is not yet officially recognized.
The numbers five hours after eating are not meaningful. He could have spiked at 300 at two hours and returned to normal. You would know this if you tested your own blood sugar on a regular basis. I agree with others, you are spending a lot of time focused on and jealous of your friends who basically are screwing up bigtime on their health! Why not just educate yourself about your own diabetes and focus on that. You will then be a role model if they care to pay attention, and more importantly you will be taking care of you. It seems to me also that you have been theorizing about being Type 1.5 rather than two since I got here. Did you ever get that confirmed with the tests that will clearly show which you are?
Wow … my numbers 2 weeks ago, on the head! I was wondering if I would be considered borderline or whatever by the Endo
This is the first time I actually see c-peptide levels. Mine were 0.74. Did not wether this was good or bad. What I think I can conclude it is on the low side? Am I correct? GAD antibodies positive. Diagnosis still type unknown... (which in a strange way still annoys me big time.)
Yes, that is on the low side and you sure sound like a Type 1 to me. The c-peptide is an indication and the GAD is a confirmation. I don't understand the numbers you are using as your A1C, but if you are having trouble managing your blood sugar with oral meds, it could be because you need to be on insulin. I would push for your doctor to confirm your type 1 diagnosis.
Hi Smile: If your c-peptide is low (and yours appears to be although you don't provide the reference range) and you are GAD positive, you have Type 1 diabetes (according to the Expert Committee on the Diagnosis and Classification of Diabetes Mellitus). Welcome to the club! I always feel weird saying that :)
Hi Melitta,
I don't have the / a preference range of the c-peptide. I just asked the GP's assistent to read me the numbers because the endo sent me back to the GP for treatment. I still have mixed feelings: should I ask to go back to the endo for a proper diagnosis (instead of the diagnosis 'type unknown' which he gave me) or should I just keep doing what I am doing; trying to fix and handle it with a diet, sports and metformin.
It feels a bit childish and silly to ask to go back to an endo but I feel the lack of a proper diagnosis bothers me. As if you are not taken seriously, as if you don't matter. Not being taken seriously really bothers me, consider me too sensitive in this case. And I don't know why this diagnosis means so much to me. Most people don't even know the difference between type 1 and type 2 anyway.
Maybe I should consult a psychologist instead of an endo, haha.
I know you asked Melitta, but I'll stick my two cents in here. Type does matter imho, for many reasons. When I figured out (on my own) that I was Type 1 after being treated as a Type 2 for 15 months and then had that confirmed by an endo, it was very validating to me and involved a real switch in how I looked at my D.
I would not be content with "diagnosis type unknown". As Melitta says, with GAD positive and low c-peptide you are Type 1. Also, studies show that treating LADA (slow onset Type 1) early with insulin helps save beta cells. You need to get correctly diagnosed, evaluated and then make conscious decisions with your health care providers about treatment. And I don't think you are being either childish or silly. Type 1 and Type 2 are two very different conditions.