Can we talk about work?

I suspect that because of disability, I’m really wary of working with people I don’t trust. This is a natural extension of how I prioritize people I trust. When I am doing something challenging or “playing hard,” I want to do that with friends that I trust, incase something goes wrong.

Just to give a brief example, when I was younger, I worked at a cheap hotel. One morning, I had a seizure there. The owner of the hotel was there and did everything he could to prevent my neighbor (and friend who got me the job) from calling 911. He was afraid of a workman’s comp claim. But she was a hard nut and told him he was being absurd and called anyway. Its been my experience that under pressure like that, a lot of people do not do the right thing. That’s why its good to work with people you trust.

I have personally had the police called on me to be escorted off the property after calling 911 for a teenager who got hit in the head with a chairlift. It knocked him out briefly and he was vomiting from it, so ambulance response was required and his friend called. But, the ski hill kept calling 911 back and cancelling the call. I had to ski pretty far and pretty fast to get ambulance response for him. There were people in my face, screaming at me that there was not going to be any call to 911. There were people in his face (while he was lying at the bottom of the hill with a head injury), yelling at him about how things were going to work. I just had to ski like hell to get away from there and make that call. I have never done business with them since. He was just a kid and what they did to him was wrong. It was ugly how all of that went down. After that, I would only ski where I trusted the owner and knew them personally.

I find that in ‘blue collar’ work, there is a lot of comradery and I can really trust people’s judgment. In white collar work, maybe I just have less experience & comfort there, but perhaps the jobs are sooo valuable to people, or the environment is so competitive, that I feel a lot less safe, in general.

On top of that, I get a lot of calls for the medical field and that is a can of worms for me. Its possible that I have already accomplished everything there that I ever wanted to without anybody actually letting me into the professional club. It’s very possible that I don’t even want into that club because I have so many trust issues with that field. They drop out of deals, I drop out of deals - We cannot make a deal. Fundamentally, I don’t want to work for people who do harm to people like me. I don’t trust them. Its different than thinking that they won’t call an ambulance - but I know all the things that they have done to you all and to myself over the years. I can’t simply ‘move past’ it.

You all know about what it was like for people to work for employers you didn’t trust during covid. Things got pretty ugly for some of us. For some members of Tu, we saw people with disabilities were the first on the chopping block. It was for totally invalid reasons - they had to get rid of people fast and they targeted those they perceived as most vulnerable.

I think that I don’t want anything to do with medicine. I don’t want to be put in a position where advocacy done by our community with UHG or MT puts my job at risk. I don’t want all the work I do in my free time to make things better for myself and people like me to have direct conflict of interest with my employer.

I’m in a terrible catch-22. The only hope I have left is that in the past couple of weeks, I have gotten a few calls from companies outside of the medical domain. If I can get an offer from one of them, I will take it and disappear into a cloud of smoke from medical. I will be happy to do it. Recruiters have been asking me some challenging questions and I think being forced to address it is helping clarify my thoughts on this.

My rant concludes here. Thank you for tolerating this. I am teetering on the verge of accepting a job as a janitor where I never have to think about patient advocacy, but I know that I will not be able to pay my medical expenses if I do. I will forever be sinking into a deep pit of medical debt and I will regret it.


Wow! You have been hurt and you are very sensitive to anything you perceive can hurt you again.

Some people can work for others; and some people can only work for themselves. I am one of the latter. Can YOU work for yourself? Think of doing something that you can do without working for someone else?

@mohe0001 possibly employment with a city\state\county entity might be a better fit for you. Better benefits, always by the rules, and most are lifers, so they go with the flow…


I know that you have an advanced degree, what is it a Masters. You have prepared yourself well and are most likely educated for the business world, a prize for any business to land. You are also a very compassionate people orientated person, I have seen that in you many times. The problem is that compassionate people orientated persons don’t always fit well into the cut throat world of business.

My advice would be to find work where your heart resides, some place where you can use your education to serve your community. It doesn’t necessarily mean working for a non profit or a government agency although both are a good idea. There are businesses whose model for success is based upon providing a high level of service to their community.


Thank you all. This is good brainstorming. I hadn’t considered these ideas. I’ll need to keep them in the back of my mind while I’m considering possibilities. I think I’m getting a little burned out by interviewing…its been over a year of interviews.

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I just have to find one kink in the system - just 1 person in town has to let me into the club. I’ve submitted 3,000 applications. I didn’t think it would take this much, so I’m getting a little disheartened. But, I only need 1. I’ll find it.


I found myself unemployed 7years ago for the first time ever.
I didn’t know how to look for work, my previous job I took a printed resume into the places I wanted to work.
Now if you tried that you would probably be arrested.

It took me a good 2 months to figure out the new ways of doing things. I let them come to me instead of me going to them

I posted my resume on a few sites, monster and linked in and one super specific scientific site I can’t remember now, but it was pretty much useless.

Then I would look at postings here and there, I would make adjustments to my resume and include the language in the posting. Like saying GLP instead of Good Laboratory Practice
Because they scan your resume for specific words instead of over all content.

I ended up getting a job through linked in, and after I got my system running I continued to get job leads and head hunters contacting me.
I have been in the same company for 7 years and I still get job leads every week, because I left my resume online.

If you alter your resume online, it gets refreshed and the recruiters see it moved to the top of their lists.

Really, right now is the best time to be looking for a job.
If you can get in the door, you will be able to wow em.


Say What?!?!!?!?!

I didn’t realize!!! Thanks so much, Timothy.

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Yes I know this is true because when I was adding work experience to my resume and deleting some old stuff, I immediately got a rush on job leads after I submitted it to Monster. I didn’t change anything that important just dates of employment.

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Sooo helpful, Timothy.

I think I’ve entered a hyper competitive labor market in this industry.
Its a bummer. There’s a lot of professional boundaries getting pushed because jobs are so tough to get. I spoke with a childhood friend in HR and she said her company would fire people for saying what guys are saying to me. I get the sense that I am walking a really fine line between not getting bullied into really bad situations and still being able to work collaboratively with people. The best course might be to say as little as possible and not talk to people. Maybe that’s why we see that norm in my industry. IDK.

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I retired in 2017 with 40 years in IT including 14 years as a Cybersecurity Engineer. Given recent events, my email has been flooded with sight-unseen “we want to hire you” messages. Where was this attention 10 years ago when I wanted a new job? Back then, it was “information security isn’t a priority with us right now”.

I feel like everything comes down to the market. The market has been real ■■■■ since I graduated high school. It started with 9/11. I don’t think Gen X and older really noticed because they were already in the workforce, but professors used to assure us after 9/11 that we needed to invent our own jobs. Those guys were telling us the hard truth.

I think its a good time to retire for you. Who knows how these chips are gonna fall.

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I’m gen x. And maybe you are correct, but there are plenty of traditional jobs avail in losangeles where I live.
In my laboratory there are 4 open spots for scientists. Not seasoned either. Recent grads are hired all the time.

I know labs have closer quarters and you can’t work from home, but also we have the strictest protocols already in place before covid hit. We had a few people get it, but I don’t know of anyone who go got it at work.

Still people are going back to work and we have a lot of openings, and scientific positions all over southern Cali are open.
I know of a few at Eli Lilly where many of us get our insulin.
Those positions are for new grads at a lower level, but still they exist.
Maybe I live in a bubble, I don’t know other industries but if you are getting a science degree right now,mi think the prospects are good.

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That’s good to know. People say its really competitive in this particular geographic location. I’m getting lots of calls from TX, Chicago, and NC. Maybe I just have to consider a national search.

A friend of mine with major medical issues just moved across the country for a great job. I’m watching to see how he fares. He’s only been out there a few weeks and I’m getting some worrying phone calls. I advised him not go because he will be separated from all resources and support structure. One of us may need to just fly out there.

I know we’ve previously discussed resumes, LinkedIn, and web presence, but for you it seems little has changed. That said, the market has changed, so maybe you need to reconsider.

** Workers Are Gaining Leverage Over Employers Right Before Our Eyes - The New York Times (

Also, you might need to review what you term advocacy. Criticism is typically a useless endeavor, unless one is ensconced in the field one is criticizing. The way to make a difference is to get in there, either working with a diabetes advocacy group, or to get involved in the community you want to change. In truth, any kind of advocacy can work against you, and I doubt it is the topic, but the tone and the platform that make a difference.

When I look for work, I scrub my online presence, and i tend keep my presence relatively clean, and my LinkedIn posts are usually around productivity, technology, career insights, and diversity/equality, and any critical post needs to be directed in a positive way.

As mentioned by others, and by myself, you have some great experience, a Masters with a sub in security - obviously hot - plus you’ve presented research. You’re in a hot field, software development. There really isn’t anything in your way, except the obstacles you create for yourself. My suggestion is to target your online presence and posting, news, and criticism in the most professional way possible. Clean up anything you think is getting in your way. and as always, get them to come to you. but that is all about presence, making your persona attractive to recruiters, and making sure your LinkedIn and resume profiles are searchable and appropriately worded. Also, your online presence does not need to be true, just representative of your professional aspects. There needs to be a separation of your public and private self.

When I used resume sites, that was always obvious, but - I’m not sure the same schedule still applies - I’d optimize by updating on Tuesday, as it was the peak day for recruiter searches, assuming that it would still be closer to the top of the pile on Wednesday. Both Monday and the end of the week were quiet for searches, as they were either getting new req’s on Monday, or already found candidates from their searches on Tuesday and Wednesday.

With automation and AI, the landscape might have changed drastically, but still, there are humans behind this, and they have an ebb and flow that you might tap into.

Its true. But on the upside, people say things are shifting and everybody is in the same boat. Its very competitive here and everyone goes through it. I do have doubts about passing over some positions, or giving job offers away to other students, but some people just can’t deal with this process…its horrible. One of them was really good about taking the entry level jobs I wouldn’t and he still ended up moving out of state for work. He has a fantastic job in a wonderful place, but he’s not doing that well without his support structure and I believe he’s in the hospital.

However, I am starting to entertain the idea of a national search. Now that society is stabilizing a bit, that might be OK. IDK.

Recruiters do tell me to trust me gut. My gut doesn’t work with out of towners. I’m at high risk of getting lured into some scam when I look out of state. That happened to me once in ND and I don’t even put that software job on my resume…that was during a previous recession when there was lots of oil money out there. Things were very dangerous in ND for a while. There were no police or medics out there and lots of dangerous people. I’m really scared to move out of town, but maybe that’s just how it is. My blind friend told me I could maintain State residency here and that would help. (that company started a lot of trouble with neighboring states and got sued in federal court, so I don’t even mention it existed. :grimacing: I left a year before that happened. Something didn’t feel right there.)

I’m not as skittish about the jobs - its the people. I get a lot of bad gut feelings about a lot of people in software. In town here, I can always ask around. It becomes much higher risk out of State. I talk to some people from Chicago today. That’s not sooo far from home, but people are also reaching out from TX. TX sounds fun, but high risk.

I have a T1 recruiter BTW. He’s great, but mostly insurance roles and all senior. He’s not gonna get me in. I have a few T1 recruiters. They are my favs.

My diabetes hardly figures into my work. I need to make some personal adjustments for taking breaks and checking my sugars. I got an Apple Watch so I don’t have to touch anything to see my numbers.
But jobs themselves really don’t factor in to it much for me.
Most people I work with know because they have seen my pump or asked about it.
Because I have a pump, I can push off my lunchtime, I could even skip it if I had to, which is rare.
I keep carb gels around.
I’m a little surprised a type1 recruiter exists. Maybe I don’t understand how it’s different than an average recruiter.

LOL. If they exist, Timothy, I’ll find them. They certainly find me, They are just normal recruiters with T1. I get lots of interest from people in the patient community - people who have donated kidneys, ADHD, T1s, etc. Sometimes volunteer EMS and fire - they reach out. Its a secret underground club, lol. I’m certain that they have jobs for me…eventually and I know who they are. They just want me to get a couple years experience first.