Chasing Bubbles

Chasing Bubbles

Have you ever felt like you are chasing diabetic bubbles? Good grief I feel like I am chasing bubbles all the time. This morning at 2:30 AM my pump alarmed and let me know that my blood sugar has broken the bank. In other words, I was over 250 and rising.


Yet last night I was low after riding the stationary bike, and slipping to 48. Ugh. So today was a rebound high, but it was a high none the less. Folks sometimes advise that we not treat rebound highs. For me a high is a high and I hate highs. They make me feel yucky and besides my new found friend (the Dexcom CGM) would not shut up about it. The darn thing went off every 15 minutes until I got it down. If I had followed the general advice to not treat rebound highs I would be sitting here at 500 instead of 172. Did I mention I hate highs?

So how many times does diabetic care become the issue of chasing bubbles? I know this past week, I have been high and low and everything in between. I mean it is no wonder, I feel like I am chasing the preverbal bubble. How about you?

Diabetic technology is also like chasing bubbles. My brand new dexcom has a charging issue right out of the box, (replacement expected soon). My pump only seems to last 1 day. I know it is 3 days but before I am ready I have to change the set, and all of that just when things are working well. The darn tube hangs all around my body and do not get me started on the famous doorknob grab UGH.


Then let’s take medications. So I have been taking 80 MG of simvastatin (I know many disagree with taking this but I want to take it so please let’s not talk about why I should not). I have been taking the 80 MG of simvastatin for about 6 years now. This month for some reason, the mail order company refused to allow it to be filled. The problem was two parts. First, 80 mg is more than usual and they wanted a doctor explanation. They asked me about it and I said look, I think we should remember you have been approving this drug in this format for about 6 years now. Second, they refused to fill it in two 40 MG tablet form. Now I need to explain, I take the simvastatin per prescribed twice per day, one pill in the morning and one pill in the evening.


After two weeks of back and forth the prescription company approved the 80MG but I now have to split the pill. Here is the kicker. The 80MG pill is only slightly less expensive than the two 40 MG system. I have to now split the pill. Good grief. Let’s remember this is a very inexpensive generic medication. The pharmacist tells me that the total savings for the prescription company is $0.86 per month. Difference in total cost to the prescription company is $20.43 for two 40 MG pills versus $19.57 per month for one 80 MG pill. I pay $10.00 either way, so $0.86 are they kidding me? I have been taking the two 40 MG pills for at least six years and just now a junior pharmacist somewhere decided to save $0.86 per month. Give me a break; I can do without chasing these medicine bubbles.

Finally don’t get me started on missing supply orders. Oh my goodness, two months ago I received 180U reservoirs instead of the 300U unit items that fit my pump. In the same order I got 19 inch tubing instead of the typical 42 inch that I normally get. Sure it is easy to send it back however if you are almost out it is not easy to wait until the new stuff shows up. Did I mention that any opened box cannot be returned? More bubbles.

So is there a way to stop chasing bubbles? No of course not. But when people say diabetes is easy I sometimes want to reach out and flip them on the forehead. Folks always say diabetes is all about what I eat. Sure what I eat is about 5% of the junk I put up with because I have diabetes. Easy they say? Chasing bubbles is always easy. I think next time someone tells me how easy it is to manage diabetes I need to blow some bubbles.



-30-



rick

On Tuesday I woke up at 12:30 am at 250. I corrected and woke up at 46. I treated with Orange juice and then woke up at 4:00 at 250. I should of just let it ride, but hate to let it ride when I’m 250. I woke up at 6:00 to a 60 with double arrows down. It ruined my day. Not my normal trends, but still made me physically and emotionally feel like a failure.

Rick, I am sooo there with you ion the same boat. 1st I am what used to be called a "brittle" diabetic. I bounce all over the place as far as blood sugar goes. Thanks to Obamacare I also had 2 drugs (levothyroxin which is the generic version of simvastatin) and paxel (for anxiety) coverage run out last year for the 1st time ever! I got the levothyroxin covered because my pharmacy said I could get it on their "Walgreens" coverage plan which was only $40/year! But the paxel I could not, so I stopped it. Now I have highs/lows and panic attacks. Chasing bubbles sound too nice, unless they are acid bubbles that burn when you pop them :) Anyway, good luck you are not alone!

Chasing bubbles!!! It's a great image :)

Omnipod would be so much simpler. Think about it?

I relate totally to these descriptions and dilemmas. Add the newer problem I seem to be having that the pump sites seem to absorb quite differently, so after every site change, I can be trending low all the time (more insulin absorbed) or high (if not bubbles, then how tissue there absorbs). Also, has anyone else noted the rather thoughtless engineering of the imprints on the cartridges going into the pump? The name is imprinted right at the top where all the bubbles would also collect, making it hard to distinguish if the bubbles are there or if it's the imprint. Why didn't they think to put the imprint on the bottom or somewhere where you don't need to be seeing clearly for detection of bubbles? All these instruments do help the A1C and control ultimately, but it's not simply buying the instruments (pump, CGM, etc). It's also the constant monitoring and maintaining them that can be exhausting and discouraging. :( Thanks for listening, of course. I know you feel it as do I, even though we also know it could be worse.