So I’m 55. Aging faster than my husband – he’s running marathons.
At this time, I’m not able to see well enough to read a newspaper through a magnifying glass. Don’t have the stamina to ride the bike 5 miles, and only have about four hours of work per week, but can’t go looking for more work if I can’t see!
In the greater scheme of things, I have a lot of blessings – husband that cares for me and carries the load I can’t, kids that are great to me (son rescued me on a kayaking trip from icy water and was a total gentlrman about it), and some work and club activities that I totally enjoy.
Doc says that he thinks I’m doing as well as any of his 400 diabetic patients with following a good diet, keeping track of blood glucose and dosing the insulin. If I were abe to be more active, it might help some, but it’s not a guarantee that I would have any better control – and even if we got better control, there’s no guarantee that my eyesight would be any less at risk. He says he has patients with far less control that don’t develop any complications… and that I’m getting the best treatment available.
Some of the audiobooks I have been “reading” lately include historical novels. World Without End" by Ken Follett and “Last Days of Dog Town” by Anita Daimont both come to mind. While these stories are set about 400 years apart and more, the women doing the nursing care have the same reflection on the physicians whose “remedies” included bleeding and poisons, well the women wondered if the physicians didn’t do more harm than good. AND the biggest block to finding good solutions was the arogance of the physicians – they just didn’t want to hear the complaints or challenges from the nurses or the patients.
Anyway, I’ve been thinking that we may have moved away from bleeding and poulices made of manure… but we are bankrupting ourselves on remedies that are not well understood. How many of the pills and techniques have I been given on the basis of “let’s try this and see if it works”. One such prescription was $2,000 per month! luckily, the doc had some samples and it didn’t do me any good. (in fact, it had the opposite of the desired effect). Pasteur was a quack – how many other quacks are laboring on the fringes with approaches that could revolutionize the lives of thousands of people like me, but are on the fringes because their ideas are not in keeping with today’s orthodoxy?
So what am I to do? I guess my strategy of doing the best I can with the information I have is part of it – challenging the status quo in the medical profession whenever it seems appropriate (I’m thinking of starting a movement to end the medical mindset that diabetes is a lifestyle disease – and to stop calling people “non-compliant patients” – and start calling them “disatisfied clients”. AND I will advocate for better remedies – better tools (can anyboty with retinopathy read those meters with the grey numbers on the grey background!!!)
Ah well, just a rant after visiting the doc – good numbers – keep doing what you’re doing – may not do anything to get your eyesight back on track.