Diabetes Turns 11 OR Why Won't it Leave me Alone?

Eleven years ago today, Diabetes announced that it had permanently moved into our lives. Its silent presence before that was masked and hidden. It appeared as the flu. The ER doctor called it an ear infection. I wondered if it was two year molars giving him a hard time. We were all wrong…dead wrong.

I have relived that day a million times over. I can see every second as if it was yesterday. I can still feel that lifeless little form that was my son laboring to breathe while resting in my arms and me praying that he would continue. Everything is vivid and detailed and yet so many years have passed.

We have moved from a meter that took a lifetime to tell us what was wrong and required a gallon of his precious blood to glucometers that give us a reading in five seconds and use only a pinhead amount of blood. We have gone from structured meals to a teen who permanently has his head in the refrigerator and “meal time” is every hour. We have gone from five injections per day to an infusion set change every couple of days. We have gone from a vial of insulin having to be thrown out after one month because we have not used it all and it has expired to using a vial of insulin easily in a week and looking for more to get him through.

Times have changed and we have moved forward. My son no longer has to be forced to eat but rather forced to slow down. I am no longer the only person in charge of his care–he now carries some of that responsibility. I am still the one up at all hours to test. Lows still keep me up for hours on end, forcing carbohydrates into his sleeping mouth. Highs are more common now as his body grows and hormones rage. Our fight to keep him healthy has never waned.

To continue reading my thoughts about our di-anniversary please go to Diabetes Advocacy Blog