DR without DKD is common. DKD without DR is rare. Accurate?

Not my problem - I have a frozen shoulder :slight_smile:

Honestly, if you can’t replicate a lab result, it’s hard for me to understand making any treatment decisions based on it. I had one random high urine protein (like… indicative of moderate CKD) result once out of the blue, was urged not to panic by my endo and retested next time I did lab-work within a couple months, once again totally fine. Same thing has happened to me with cholesterol, a random blip reading that is well off from my normal, fairly stable levels, never to be repeated (and that was many years before, in a different lab system). Labs can be wrong, and urine samples in particular can get contaminated. Always a good idea to repeat if possible and especially for informing longterm care, before assuming something is meaningful…

3 Likes

Thank you so much for your response, this makes me feel so much better. I think many endos will put tons of their patients on either ACE or ARBs because the side effects are minimal and the (just in case) benefits would be substantial. I guess there is little hurt in keeping blood pressure low.

I feel that he isn’t adamant about keeping me on losartan, and even asked a couple times and confirmed my kidneys are fine, but I think he figures it is a potentially helpful thing since I have had minimal to no side effects. I am sure he would have let me get off if I really didn’t want to take them, seeing as he asked me several times.

What was so weird is that he saw protein ONCE and then immediately put me on losartan.

It went:

“Oh, little bit of protein, I’m going to put you on losartan.”

and then next appointment, 3 months later

“Protein is gone”

It’s like…yeah…well…you didn’t even confirm it bro…

Maybe the Losartan worked? :grinning:

I know I’m coming in late on this but I feel that doctors in general are all too quick to prescribe medications. I am totally against preventive chemicals just because I am a T1. I take insulin, levothyroxine and an occasional Tums. I eat a lot of veggies often laced with a bit of meat. I refuse to ever have any cholesterol tests. My endo even wrote it into my medical record that I am NOT to have tests for cholesterol. And I don’t. No point to it because I would refuse to take a statin. I consider myself to be a very healthy individual in spite of T1 and several auto-immune conditions. None of it interferes with my life. My dentist even commented once that, unlike almost all of his other senior patients, I produce copious amounts of saliva. And that’s because I take NO medications. Other seniors my age take a bucketful and all suffer from dry mouth and whatever else. I also stay away from doctors as much as is possible and refuse ALL so-called “preventive” testing. I feel that is the reason I got to be 81 years old and am aiming for another ten at least.

3 Likes

Yeah but we don’t know if I needed it, aka I probably would have been negative without the losartan. He never conducted a follow-up test before putting me on the drug

:hugs:
Individuals who have all sorts of personal and family medical issues besides diabetes!

My personal pet peeve is the conversations with my doctor about my feet. I have very high arches, wide toe spread, and one leg is 5/8" longer than the other. I have had ligament problems in my feet since I was in my late 20s. I have nerves in my feet that get pinched easily, so I have to make sure that shoes don’t put pressure on certain areas. However, as one of 7 siblings, but the only T1D, I see variations on all of my foot issues in 4 of my siblings (that’s 5 out of 7, including me). But all my doctor will do is to go on and on about neuropathy!

That’s frustrating! I have a podiatrist whom I really like who listened to my symptoms (I was concerned about numb areas on one of my big toes) and took one look at my hypermobile feet and said it didn’t sound like diabetic neuropathy at all (apparently highly localized diabetic neuropathy is not a thing), but rather joint inflammation from hypermobility impinging a nerve, resulting in numbness. Physical exam confirmed all numbness was very specific to that one nerve. Nothing really to do about it (besides do things to prevent worsening joint problems, which I am), and I still have to be careful with that foot, but it was a huge relief to know it wasn’t part of progressive diabetes complications.

If you aren’t seeing a good podiatrist about your feet, definitely go that route, and then if your other doctors ask, you can say it’s being addressed. And if you already are and that’s who you are talking about and they aren’t recognizing and addressing what sounds like structural problems (including from your description likely hypermobility), they are not a good podiatrist, and I would find a new one! It was seeing a smart podiatrist a long time ago that was one of the initial reasons I eventually got evaluated for and diagnosed with a genetic connective tissue disorder that explained my feet and so much more.

3 Likes