Hi all this might be long but wanted some insight,
I spent Saturday in the ER. My first time since diagnosis 6 years ago. I would only go if I knew something might be wrong and I couldn’t gain control of my numbers, etc. so here’s what happened
This past week I was feeling pretty crummy, mainly just really worn down and my blood sugars started getting more resistant. I thought it was normal at first, as it’s the week before my menstrual cycle so that’s not out of the usual. Until Thursday when I developed a low grade fever, and slight achy-ness. Thought I could bare through it, that it would pass, so I just took tylenol & advil back and forth because my husband and I had a pre-planned trip out of town this weekend, tickets already purchased.
Friday is when my blood sugar really started to be resistant. I was in the 200’s all day, but was able to get down to 150. I check an hour later or so, and it would be right back up to 200 something. I corrected, drank a ton of water and went to bed. Woke up Saturday morning 2:30 am really nauseous. I checked; 350. I stayed up all night long. I couldn’t lay back down because I was so nauseous. I took anti-nausea meds but it didn’t help. I drank and drank water, corrected, and tested my ketones since I felt so bad. They came back moderate amounts, tested later, trace amounts, tested again, negative. I thought I was in the clear and had hydrated enough.
I was still in the 200’s all through the night, didn’t sleep, just kept drinking water. I tested my ketones again, trace amounts came back. I drank more and more, tested, still high blood sugar and large amount of ketones this time. I also had a bout of diarrhea which definitely caused alarm; I know how quickly that can dehydrate. So we decided to pack up and travel back home (2 hours) and I went to the ER.
They ran blood work, did a bunch of heart tests, and I got 2 bags of straight saline. My ketones came back negative, my fever was gone when I was at the hospital (it’s back now at 100) and they said it looks like a viral infection and to just drink plenty and rest until it runs its course. If I can’t keep anything down, to get back in there.
So I’m home but still with a fever, feeling so sore and achy all over, but I’ve been able to keep my blood sugar at around 180 which seems so low compared to everything I’ve seen the past couple of days. I wonder how often I should check for ketones? The doc told me there’s not much I can do about high 200-ish blood sugars as it’s common with viral infections. She said as long as I keep fluids down I shouldn’t worry too much about ketones. Should I test for them? To be honest it was driving me mad doing it. I feel like unless I can hydrate myself 24/7 they might show up until I can flush them again. Are ketones something to worry about if you aren’t vomiting? How often should I test and when? The ketostix paper says to test when your blood sugar is above 300 but I know they can happen before that, and when I asked the nurse she had no idea at all.
I definitely don’t want to end up back there and have them do my blood sugar management. Luckily since everything came back fine other than a virus, they didn’t give me insulin, but prior to results they were planning to monitor me with fluids and give me insulin “as needed” even though they only tested my blood sugar once. I tested every hour I was in there. lol The doc was okay with my last result 209, which went to 199 later, so she didn’t seem concerned. I have no clue.
Is there anything in particular I should do or lookout for, or ask, if I end up needing care again in terms of blood sugar management? I didn’t want to chance DKA so I went, but as for ketones and all of this, I’m really lost. As for now I’m okay. I haven’t tested them again since I’ve been home because I’ve been under 200, and they came back negative when I was in there.
Sorry this is all over the place, just trying to get a feel for better preparation in case this virus gives me any issues such as stomach problems. Crossing my fingers no vomiting or other comes out of it because I don’t want to go back there. Thanks for the listening ear!