I was just diagnosed on June 4, 2019. Typical diagnosis story: I had been feeling very bad, losing weight, couldn’t see, couldn’t stay awake, etc. Took myself to the stand alone ER where they promptly sent me straight to the ICU via ambulance where I stayed for 3 days. My blood sugar was 718, a1C was 13.8.
So here I am almost 5 months later and I’ve managed to keep myself alive. I’ve got a Dexcom and do MDI (Tresiba and Humalog). I have been eating low carb (under 40g carbs per day) since I got home from the hospital because I find it easier to manage my blood sugar that way. My best friend is ironically type 1 as well but she was diagnosed at 7.
I’m naturally a pretty OCD person. I feel like I spend hours upon hours reading message boards and blogs about type 1. Literally, hours a day. I keep my blood sugar between 80-110 all day (according to Dexcom but I’ll get to that later). So now for my list of frustrations…
Some days I feel like Humalog is water. I read all of these forums where people have correction factors of 1:60 and I’m more like 1:10. I have found that my sensitivity is greatly affected by my period and ovulation which takes up more than half the month. So I feel like I have more days where my sensitivity is absolute garbage. The weird thing is I don’t have much of a rise after eating (but again, low carb), but I guess I’ve just read so much that I assume injecting 4 units for a 20g carb meal will send me plummeting down and that’s literally never the case.
I’ve tried drinking more water, walking more (I try to walk 2-4 miles a few times a week but maybe i need to up the intensity). It just feels like my sensitivity is so drastically different than everyone else.
I guess because I’ve read so much about honeymooning that I would assume I would be more sensitive/require less insulin these first few months but it seems to be increasing. The first two months I was averaging (18u Tresiba and 4-6u Humalog a day), now I’m around 19-24u Tresiba (again, period and ovulation days are higher) and 6-12u humalog a day (I start out with 2-4 units every morning to stop dawn phen and coffee increase). I do bolus for protein and maybe I’ve kept a tighter control these past two months which would account for the increased Humalog.
My last worry is that I’m literally never low. I read post after post about lows and I’m like “???”. The only time in 5 months that I’ve ever been low is when I was at a party and ate crackers and cheese without bolusing (someone was in the bathroom and I’m just not there yet to do it in public). The next thing I knew I was at 165 and I PANICKED. I gave myself 5 units (lol), and drank a liter of water. Three hours later I was at 53. But other than that…nada. Even if I’m at 85 before bed, I will slowly creep up to 100 and stay right around there until the next morning. It’s like my body won’t let me stay low.
I know it’s not uncommon for people to be misdiagnosed type 2 and really be type 1 but some days I wonder if it’s the reverse for me because of these sensitivity issues. I haven’t had the antibody test…only c-peptide which was 0.17.
I know we’re all different and require different amounts of insulin and I should stop comparing myself to others. I need to be more active to hopefully increase my sensitivity. I have an endo appointment in a few weeks which I plan to discuss everything with him. I know I talked around in a circle, I just needed to lay my thoughts out.
Thanks for coming to my TED talk.