I had it done today and it is at a teaching hospital. My GI doc did it, she did my colonoscopy 2 years ago and all went well with that except for the terrible prep.
The problem is you never really see your doctors there so I need to get new doctors. My gp is there and she is terrible- rude and nasty to me a lot of the time. I NEVER see this woman unless I schedule a physical and the last two x she told me that it wasn’t a long enough time for a physical and kept asking me who scheduled it as a physical. She walked in asked why I was there and acted as if it was my fault someone made the wrong appointment. The endo office there is hopeless, the np I saw was rude and gave me pretty much 0 help as I stated above. My own team is useless too, my doc as I said keeps telling me they can’t help me and the cde although I think she wants to help says she doesn’t know what is going on. The gp says she won’t treat anything like thyroid etc even if my tests are abnormal and endo tells me it’s all in my head when I have symptoms and then I test positive for something like hashimotos after arguing to get a test done.
I saw the gastro np first, she scheduled the tests and I saw my doctor today only at the test. She did seem to have some idea of what was going on with me so maybe she talked with the np. They found some irritation and did biopsies in the duoedenum and an upper area near a small hiatal hernia, which is what I had last time. I don’t think they biopsied the small intestine though because that looked ok. I think that is usually what is biopsied for celiac.
The test was good, although I felt horrible due to bg spike from 100 when I woke up to 220 before the test. The anesthesiologist said to do only half my correction before but it did start dropping me. I had reduced basal when I woke up for 2 hours because the day before I went hypo when I got up to eat and hadn’t eaten for a while due to a high.
I was totally out with propofol and thought I was dreaming- it took ten minutes but my stomach and throat are killing me now, I hope I feel better tomorrow. I don’t remember feeling this bad the last time even with being wide awake and vomiting pulling the tube out etc and having vocal cord damage after but I guess that was a long time ago and I do remember feeling so bad I refused to do another one right away with a better gi doctor. I may go to him and see if he can figure this out because he is an internist and a gi doc and he treats lots of people with diabetes. Unfortunately he doesn’t take my ins and does the concierge thing so I doubt I can afford him for too long.
I will wait and see what the biopsies say and if this doc has any good input. I told her I wonder if they will show if I do have celiac because I have been gluten lite for a long time. I asked her about the vagus nerve test you mentioned and she said she can’t see that on the endoscopy. Did you have another test for that?
My bg is going up after my last meal about 3-4 hours after, is that typical for you? I’m so sorry you have this all the time, that is awful, I’m glad the apidra helps you. 24 hour flu is awful. I’m used to having attacks of IBS at unknown times.
I tried apidra but it seemed to drop me low. Did you have bad lows too when you were eating when this started? I’m so scared of the lows now I’m not bolusing enough for food and I’m scared to correct highs because I never know what will happen.
During my last upper endoscopy they biopsied one area and the pathologist thought it was pre barrett’s but the doc disagreed. This time the esophagus looked ok. I think that was true last time too and the inflamed area was in between the two where the hernia is now maybe.
After that I refused to do any of those tests again and I ate chicken, rice, lettuce, granola bars and water only for nearly a year, maybe some yogurt too along with prilosec. The reflux was really bad then and I had had one ulcer and I remember my stomach just not digesting anything. I had a piece of pizza totally undigested come out of my nose and stomach or something, lol.
How did you find your GI, at NORD? I will look for that, maybe there is someone else in my area who can help me hopefully. I can’t envision living this way for too long.