Oh I did suffer for it, I have a secrete though…I steam or nuke the veggies…so they are soft and wilted…it helps…doesn’t SOLVE the issue but it helps…
Lucky your sugars are good that is awesome and it will give you the ability to have a bit more carb which is usually easily digested by the GP folks.Keep and eye on nutrition and the nausea…
debbie, the nausea is horrid and it will last all day, but also, i get this terribly uncomfortable bloated feeling and complete lack of appitite. i am so thin that this inability to eat like i used to is not good or healthy for me. you’re right about the simple carbs being easiest to digest and maintain comfort at the same time. i have been living on simple foods; last night i had a sweet potato for dinner and it sat comfortably. it was only medium sized and i was so full afterwards, but not in pain. as i have been stating on this thread, i have basically been living on cream of wheat and other carbs. oh how i long for a slice of pizza or a grilled cheese sandwich and a burger with all the fixings
thx, daisy mae
Hi Daisy Mae
Are you eating several small meals per day…like six of them you should be and you need to get a nutritionist on board as soon as possible to help you, one who is familiar with both GP and diabetes would be great. They are are hard to find, so us the GP side first and you know how to treat the diabetes
you could also probably do some shakes to supplement your nutrition and get protein…you need to maintain yourself…
For the nausea, there are many medications out there…zofran under the tongue is wonderful for me…it gives me an hour or so without the nausea. I would say, DON’T be AFRAID of the nausea…it sounds funny to say, but earlier was very afraid and I now understand that it is just part of me…IF YOU want the burger, consider having a bite or two…what is the worst that happens…you get nausea…you know what is like, you loose it…at least you enjoyed it …
I get full and I have what I would consider a lot of pain (real pain, not burning like from indigestion) that they tell me is part of the disease. But, keeping small meals helps.
Are there any nutritional supplements or things that can be taken with a meal to help break down fat, protein, and more complex carbs in the stomach to aid “moving things along”? I know so little about this condition…
Also, does GP affect digestion after the stomach in the intestines, or is it only a stomach-emptying problem?
debby, i am only capable of eating 2-3 small meals per day. i am just feeling the worst of it. i have not had it for very long now, just about 4 months, so it is still very new to me. my diabetes nutritionist is well aware of my problem and although we are trying to make diet changes, i havent been able to tolerate them (yet). i do drink the BOOST shakes (which are very yummy) and they stay down and taste delicious. they are high calorie high protein and low carbs, and relatively easy to digest. i do (sometimes) spike from them, but i have basically given up on my usual tight BG control for the sake of getting some nutrition into my body. still, i must say, that even having the occasional spikes, my BGs remain under excellent control (70s - 120s w/ the occasional 180s). however, i feel that my controlled BGs are mainly due to the fact that i can barely eat. i am not certain about this b/c i have worked for so long and so hard to keep my control tight.
Hi Daisy_Mae,
Ahhh, so it is still very new to you. Have you thought about doing the shakes only for a bit then working foods back in gradually? For some folks, they have flairs that come and go and a liquid diet helps get them past the flair. The other thing is maybe do both shakes and 2-3 small meals if you can…
It takes time for your system to right itself, it really does. Hopefully you can find a routine soon that works for you.
Your sugars are great and you keep a good eye on them, don’t loose your watchfulness as it is still important. My endo and GI have a higher ‘spike’ for me but we keep it under as much control as possible, testing a lot until a CGM can get approved…
As an FYI and I hope you don’t have to go here, but you eventually loose your fear of the nausea. I still pull faces when it hits me hard but I don’t freak out about it anymore. I find that ranking it on a scale from 1-10 and then telling myself to ‘move on’ helps me get through the really bad waves…
i was on the dexcom cgm for over a year before i realized that it was not for me. i am too skinny to wear one and it would only last a few days in a row if i were lucky. so now i do as you’re doing; i test frequently throughout the day. since i have had the GP, i have been testing about 14 times a day and then i wake myself up during the night to test about once or even twice to see how long my food is taking to digest. i found that i needed to increase my basal rate (i am on the pump for many years) for bedtime, which has been working well for me. i am fortunate that i do not have the dawn phenominon. that is a saving grace. i just want to also say that since this GP has entered my life, i have become extremely depressed. ( i live with sever psychiatric diseases, one of them being depression.) my psychopharmacolagist has increased my dosage of medication; perhaps this will help alieviate my frustrations and help my mood. i am praying.
I suggest you find a ‘treat’ for yourself that takes you away from diabetes and GP for a little…perhaps a spa day or if you can a walk around a mall window shopping…or time spent petting animals, whatever …it’s important to learn to live with our diseases not live FOR the diseases…
DO NOT let GP get you down, I can tell you that I’ve lived with it for quite a while now and even though I’m severe I’m still an active person. I just let most folks know if I visit or even my folks at work so they understand that I don’t eat a lot and I have a limited diet. Everyone understands for the most part and there are groups out there for GP like there is here.
thank you for your kind and sensitive suggestions. we just adopted a new cat in august. he is, besides my husband, the light of my life. he is always besides me, and he even sleeps under the covers with me. he has been bringing me great joy. still though, i am bummed out. i am usually a pretty upbeat type of person relatively free of any self-pity; but since the GP, i feel so overwhelmed and down. i was thinking this afternoon that i should buy myself a treat. something out of the ordinary and perhaps a little extravagant. i have no idea what i would like to buy, but just anything fun and generous. i have made a commitment to myself to join the local YMCA so that i can use the swimming pool and take yoga classes. i was told by my GI doctor that the exercise might help the GP. usually, my only exercise is brisk walking for about 1/2 hour each day (sometimes more).
have you (or anyone else reading this) had any experience with exercise helping with the GP?
thank you. i actually feel so confused and incompetent. i feel like i dont know up from down, right from left. this is all so new and confusing. i am literally hating my body right now. i feel like one enormous disease, instead of a healthy human being living with a disease. i dont feel comfortable in my own skin. but its been a hard day. not every day is this difficult.
thank you for your kind and sensitive suggestions. we just adopted a new cat in august. he is, besides my husband, the light of my life. he is always besides me, and he even sleeps under the covers with me. he has been bringing me great joy. [/quote]This is so nice to hear, Daisy. Petting cats is very calming – I saw something on NOVA I think about this, and the release of oxytocin in the brain or something like that – anyway, animals are some of our best friends when we’re feeling down or ill.
I hope he’s got a good motor… we had a cat when I was a kid that purred so loud it could wake me up from a different room
our cat, Oscar Wilde, has a motor that never stops; and he’s loud; also, he is a Burmese and he talks a lot while he walks around the house. (also when he wants attention) i love that he sleeps under the covers with me. he purrs all night long (only problem is in these hot months, he is like a heater and it can get a little too hot)
i am having funky BGs that are completely abnormal for me; i’ve been reading on this thread about some of us Ds w/ GP take their insulin AFTER their meals. is this because of delayed stomach emptying? i can go high 2 1/2 hours after my meal, but then dip down to 45 BG 4 hours post. i am on a roller coaster. and its hell. does a gastric emptying test help guide you through when to bolus your meal time insulin?
Can you give us a range of ‘funky’ so we can help out more…
General things:
GP means that you empty slowly now so your sugars can be more erratic as a result. I had to change the way I bolus, using a fast acting AFTER I eat when my numbers start to climb - indicating that my body is starting to digest my meal(s) for me I drop the hour before and after eating then climb up in hour two or three. I also spike around 3:30-4:00 so I have learned to time my insulin accordingly.
FOR me, I use Tresiba nightly and Apeidra as my fast acting both have given me personally great control. I did do Levimere before morning and night to get better coverage. This is personal to me, you will have to work with your Dr. for the best method. DO NOT be afraid of re-learning, you have the basics you just need to know how to adjust to the GP fluctuations.
THE EMPTY TEST - it should be FOUR hours and it tells you how fast food processes through your stomach at that point in time…it is not something you can use to determine how to dose your insulin it is point in time. there are many many factors that influence it (sugar levels, where you are in your cycle etc). You can have a normal test and still have GP and severe nausea your can have a slow test and have no nausea at all…TO ME in MY HUMBLE Opinion the test is costly and changes nothing about the treatments. It is just a box that the Dr can check Y or N. I have seen the specialists at a major clinic and was to spend many thousands of dollars. I asked, what do you do with the results of this, what changes. They couldn’t answer and I didn’t take the tests. I was Dx on endoscopy,… the nerve didn’t move very well and I had undigested food after 12 hour fast.
I would ask the Dr. what he will do with the results, what he will do if you are ‘normal’ vs ‘slow’…
i had an endoscope as well. but i did have it AFTER a round of anti-biotics and beginning for 2 weeks on Donperidone, so many of the symptoms had lessened. i dont know how accurate the test was for dx of the problem; my GI doc did find terrible swelling and rawness in my tummy and esophoges. he also had to remove 6 pollops for biopsies; he did find something else wrong, but i cannot pronounce it; it was all very confusing .he thought that the stomach emptying test might prove helpful if i had not started the medication treatment, but also recommended an abdominal sonagram and a CAT scan.and, as you stated, it is all very $$$$. the endoscope alone was $8,000 taking any more of these tests was simply putting money in his pocket (i think) (although i am covered by Medicare)
Hi Daisy Mae,
Based on his finding, sounds like he is not clear for what is going on and want’s more tests (unlike my situation which was clear). Think of it this way, if a car won’t start and it’s tires are flat, fixing the flat is needed but it won’t work to start the car. Based upon your symptoms (Nausea, erratic glucose) he may be thinking GP (the flat tire in my example) but he has other things to figure out (why the car won’t start). The CAT Scan and Abdominal Sonagram may help him make sure there is nothing else going on that is causing more issues (for example, Ovarian Cysts which are usually benign can increase nausea) as can polyps in the gallbladder (if you had them in the tummy, it is not far off to think they may be there as well).
So, I suggest in your case that you follow up with the tests, but get from your Dr. a CLEAR understanding of what he is testing you for and what he expects to find that would change his diagnosis…
thank you for clarifying my confusions. i just made an appt for a gastric emptying test; the earliest i could get is for late november (ugh) my endo wants me to deff have the emptying test so he can adjust when i bolus for my meals; and, i am going in to see my D nutritionist/educator nxt week. i am hoping some of this will be further clarified for me. she is a wonderful help w/ my food/ insulin needs and making the best use of my pump. today i did exactly what i did yesterday using the exact same food combo with the exact same bolus combo and got completely opposite responses. i am baffled. i kept everything the same; same exercise, same food, same bolus, same carbs…etc. this D sucks. and i am nauseated to boot.