My son Caleb is 6 and has been living with diabetes for two and a half years.
Over this time, he slowly takes on more responsibility, although I am still doing most of it. Because he goes to school, I like him to be educated on certain things. He can check his own sugar and does so at school, but at home either he or I do it - I don’t want this to be a huge burden on his - we are a team. He administers lots of his insulin with his pump (at school he does his own bolus’ with supervision), but again not exclusively at home - don’t want to burn him out.
I’m trying to gradually get him more aware about how to treat lows and when to correct. He does not have full responsibility for this, but I just want him to get used to the theory behind it. We also talk about carb counts, but again, just to orient him and not give him full responsibility. I like to let him lead. If I give him the foundation, he will show me when he is ready to take on more and I will let him, but I don’t want to force it on him or leave him completely in the dark.
As far as the hardest thing - it’s hands down leaving him in the care of other people. Sending him to school every day is completely nerve-wracking and I often feel like he makes it home ok out of luck and luck alone. We had a rough year with him in half day K this past year - lots of bumps, but I have met with the principal and district nurse to review the year’s events and make it clear that we need a better plan for next year. They have both been receptive and plans are in the works for change.
Thanks for the inquiry. I always like to hear from adults with D who have gone through what Caleb has gone through. It helps me be sensitive to his feelings as I can only really guess what he is feeling and going through on a day to day basis.