Here We Go - The test of the epi pen!

Today I am going to the doctors to get my prescription for Xolair. It’s an injection for allergic asthma. The side affects are pretty scary, 5% higher risk for cancer, 20% higher risk of bronchial infections and on and on. Not to mention a significant amount of people go into anaphylaxis when they are injected. They said to be sure to bring my epi pen and have it ready. It will take two weeks to get it in. It has to be special ordered. When they get it I will go in for my first injection. It has to be mixed together 1/2 hour before the injection and I will have to stay at least two hours at the doctors office after the injection.

Today I am getting a flu shot. Again, I have to have my epi pen handy since I’m allergic to flu shots (eggs). After talking to the doctor though, we think it’s worth the risk. I get that at 1 pm today and again, they said to be sure to bring my epi pen and have it handy… Woo Hoo! :wink:

Life used to be so simple and easy before the D. Never had these problems before. Or maybe I should say I’ve never had these worries before. I’ve had pneumonia and few times but got through it without hospitalization. Had double pneumonia once, and got through it without hospitalization. But never have I had to take all these meds for my asthma or allergies. I never had an emergency inhaler till I go the D. Now I use a nebulizer, steroid inhaler (advair 500/50) in the morning and night, theophyllin 300 twice a day, singulair, prednisone, clariton, emergency inhalers and on and on.

Then there’s the cholesterol meds, the insulin injections, actos, metformin for the D and cozaar for blood pressure. Then of course the supplements; fish oil three times a day, a diabetes health pack (package of 6 pills for diabetics) and of course the anti-depressant (which from the sound of this blog post is not working well ).

Sorry for the rainting, just worried about the flu shot today and beginning the Xolair. Then I have to worry about getting the H1N1 vaccine. First let’s see how the regular flu shot goes. :wink: I have refills on my epi pen, but I’m really hoping I never need to use them.

I think this would be much easier if I had someone to go through it with me. Someone to help me through the anxiety of it all. Someone to hold my hand and say it’s going to be ok. But who in their right mind would want to go through this? Having someone at your side when you have the D with this many problems is not something you find midstream. I think it would have to be someone that was with you before the D, already established enough to want to go through it with you. Not a good way to start a relationship. :wink:

Enough ranting for now. Have a great and safe Halloween. Oh, and hide the chocolate. I love candy. :wink:

I agree with you about all the meds. I’ve never been on so many pills in my life. I think I’m taking 11 pills a day now, plus 3 shots. I get cranky sometimes and really don’t want to take the shots but I make myself do it anyway. I am guilty of not taking the pills once in awhile. Usually on a weekend or a day off when my routine is changed. All I can do is tell you to hang in there. Believe it or not, eventually this will all be second nature. Good Luck.

Thanks for the words of encouragement Kathy. It’s starting to be routine but still really hard to follow through sometimes.

My regimen - what I can rememver right now anyway.

Before Breakfast
14 pills
Puff on Advair
Steroid Nasal Spray
Insulin injection if bg level over 150

Before Lunch
Insulin injection if bg level over 150

Before Dinner
Puff on Advair
Insulin injection if bg level over 150

3 pills
50 units injection of Lantus Insulin

Twice Monthly
Xolair Injections

As Needed
Nebulizer with Xopenex

My friend…I am so sorry that you have to go through all of this and so many meds. I know how scary it can be. Just know that you have friends that care. I wish you only the best. As having someone to hold your hand and go through this with, there is somebody that wouldn’t think twice about sharing a life with somebody that has health problems, it is called love. And it can be unconditional with the right person, they don’t see all the obstacles to deal with…just you. Take care and know that you have people that do care!

Hope you have a good weekend, I am not buying candy this year…I will be a good girl : well, maybe.