How much to tell?

I am a big tattle-tail. When I go to a medical provider, I have a list of medications from different types of providers, a psychiatrist, a therapist, my Primary and a diabetic coach. Up until yesterday, I thought they shared info, at least I signed a permission ship to have that happen. And yet, as I found out, they don't talk much to each other. My health coach thought that my disability was strictly because of knee pain and arthritis???? HUH????? Where has he been? I got to thinking, if I didn't tell the other people, would they know about the other maladies in my life? Would the therp know about the arthritis and the pain I am in? Would the shrink know about my high blood pressure? Would my primary know about my mental and emotional issues. Right now, I am upset, angry, and frustrated that information that should have been shared, I didn't do, and they didn't ask. "Don't ask/don't tell?" So, what to do now? I have a diabetic check tomorrow, and I'm going to ask my primary if she knows what my disability is about? If she doesn't, I will tell her. AND I will make sure that anyone who is working with me, knows that the arthritis isn't the only thing I am dealing with,

What do you think? Do all your docs/medical providers have to know/should know about your history. HIPPA is supposed to keep that information sacred, but they may better be able to help you if they do know, and you sign the permission to share. I'm so upset that I may go balistic (out of the office of course) if she doesn't have a clue. Share your thoughts with me, please

I always laugh when I read JDRF or ADA material about working with "your diabetes care team". Team implies collaboration, This never happens.

Actually, with the exception of this disability issue, my team does very good keeping things together, and my Primary care does seek in put from each of them when necessary.....it's the "when necessary" and their not asking questions from me about this disability that has been one of the ONLY problems we've had

I always try to tell everyone *everything* and the providers I go to are somewhat networked together. The main deal is diabetes but I've had a few other odd injuries, a cyst last year, this thing on my finger where I got drilled by a paintball that everyone always gawks at, etc. They always review the meds and I always sign the permission to share which, I think, also gives them the ok to request records. Part of what they measure is if you report the same thing to everyone or are "doctor shopping" to get things from doctors for one reason or another. I investigate claims for an insurance company and, in some of them, we look at these things closely. If someone has screws and rods in their ankle, there's may not be a whole lot to debate but some of the other items are interesting to discuss.

I don't really expect them to communicate so I take the lead. I always give updated meds list to my PCP (including meds from gastroenterologist and cardiologist) and I make sure they have received results from labs and visits to those specialists (which to be fair, they usually have). Unfortunately the info only goes in one direction so I try and keep my cardiologist in particular appraised of anything relevant. Speaking as someone retired from mental health, I as a MH practitioner always thought it important to have on my intake assessments major health issues and to be sure my clients followed me up on any new developments as I believe mental/emotional and physical health are intricately connected.

I'm not sure if my docs share info, but I think some of them can look up what meds I'm on because someone did that once- I can't remember who now though. I usually discuss all relevant info about current, new meds at each visit and any health issues that are relevant like diabetes etc. with each provider. I went to my gp last month and they asked me to update meds etc. I think you have to be proactive about this and tell your providers about what you want them to know and what they need to know etc. I don't have a diabetes team, I see my endo every 3-4 months but I have paperwork from other docs sent to him and to my gp so they know what is going on.

You can't depend on them to know so tell them. This reminds me of when I had surgery a few years ago, I went to a presurgery interview a month or so before, I had 3 interviews on the morning of the surgery, and I told them ALL that I had asthma, but the anesthesiologist still didn't know this until I told him again, right before the surgery- he said: I'm glad you told me this because I'm going to change your meds!

Interestingly enough, they all do know, they haven't paid attention except to what pertains to them. I believe you are RIGHT! We have to be the ones who are the leaders of our own health care, after all we have more at stake than anyone else. I think what is really bothering me, is that this person didn't know about the disability,....,he just assumed....and that's never going to be good for anyone,

I try to keep all of my doctors within the same facility because I'm terrible at keeping up with all of my specific info (especially things I'm used to) and it's so much nicer when they share a database. That doesn't always work, though, as when I was trained on the pump this time around the nurse doing the training (who worked WITH my Endo, it's not like she was sent from somewhere else) looked at me halfway through the training and went "wait...you're not Type 1, are you?" My boyfriend was more alarmed by this than I was as I just got used to the idea that once I hit 18 everyone would assume I was Type 2, but in hindsight it is rather alarming that she didn't read the chart in front of her.

Ultimately, I do what I can to make it easy for them to find out the info and I do try to keep a list of all the things I need to tell them, just in case.