If I exercise in the AM, I turn down my basals (as others do) but I also leave some uncovered carbs from breakfast for the exercise - maybe like 10 gms or so. This prevents me from eating more calories that I am buring to treat a low.
Kaiser is an HMO - and they do everyhting to protect their bottom line! It’s unfortunate that the patients have to suffer in the long run. I think there was a post awhile back about Kaiser limiting test strips for insulin users to an unrealistic number of tests per day.
Can you get a second opinion/new endo?
My feelings exactly Jennifer. If it were me I would definitely get another opinion.
Yes Ladies I have! I called an independent endo not at the kaiser facility but an actual endo office. They are of course on my approved doctor’s list, but not at a kaiser facility. The earliest appointment that he had was May 4th, but I went ahead and scheduled. The receptionist said that I would need all of info from my other endo chart wise, so on kaiser’s website I can actually print all of that off and did all labs all comments and so on. So my appt. is may 4th at 8:50am. I hope this goes better. In the mean time I sent e-mail to both my current endo and current PCP and asked again if I could please have the ICA and IA-2 test. We will see if my endo will come back with it is still not necessary like she said on the phone. Don’t know if my PCP will say anything. sigh what a pain.
Good luck with that. I have fired a few doctors - you need someone that works with you. A couple months ago, I was complaining about doctos to one of my doctors and he even said he thought the quality of care/doctors has really gone downhill in the last 10 years. It is really sad when even a doctor thinks that.
Sarah wrote:
> A change of 12.6 to 9.0 is significant,
> however it doesn’t change the fact that
> both are medically considered uncontrolled.
Uncontrolled? I’m not sure exactly what that means today but I would class 9.0 as “less than optimal control”. 12.6 to 9.0 is a very real improvement and telling someone who has made that improvement that they are still “uncontrolled” probably is not the best comment on the hard work that they’ve already accomplished (at the same time realizing that there still is a lot of room for improvement.)
I always though “uncontrolled” was a term broader than the old “brittle”, meaning multiple ER trips/hospital stays every year for DKA or extreme hypos. And also including “just diagnosed with multiple symptoms and starting medication”.
I do realize that they have raised the bar a lot in the past 30 or 40 years and some of my old-timey definitions probably need to be updated. It’s very likely that a T2 with a 9.0 A1C today, might not be diagnosed at all 30 or 40 years ago. And 9.0 was entirely typical of the conventional therapy group in the DCCT study and just a little on the high end of the intensive therapy group.
The other lab tests will probably not add any other value to your + GAD and lower c-pep (you already have all the info they will need to make the diagnosis)- see what the new endo has to say - you are getting the right treatment now, and hopefully your new endo will update your diagnosis so you will have accdess to the technology you are looking for.
Thanks Jennifer! I will I’m
just going to wait it out. Hopefully all goes well, but I am happy that I have the right treatment.
Hi Stardust. I was originally misdiagnosed with T2 as well! Only since I was not very overweight, I’d often have physicians do that thing where they tilt their head to the side and say “Well you don’t look like a Type 2.” The stereotype of Type 2s “giving” themselves diabetes by being overweight is so terrible! Don’t stand for it! Take literature in to her. Get a new endo!
When I had antibody testing done (which I requested that my GP do by the way), the results were sent to my first endo. When I asked him whether they revealed that I was really a Type 1, he said “does it really matter?” DOES IT REALLY MATTER. Like there’s no difference between low insulin production and insulin resistance. BULLS*!T
Doctors complain that their patients don’t understand the science behind their diagnoses - but they perpetuate the problem by treating us as if we can’t understand. It may take several years to understand the ins an outs of enough pathologies to earn a medical degree, but it doesn’t take a genius to understand the difference between the types of diabetes. Advocate for yourself. You’re not a Type 2. And your treatment needs will NOT be the same.
Hi Stardust! I have been battling the correct DX too My endo verbally calls me a LADA or 1.5 but on paper has me labeled T 2… I am GADA+ and normal besides blood sugars. Body weight normal to thin all along with three Gestational babies later… I followed up myself too to get on insulin with great info. and support here on TuD. My C.peptide when I ate before I went came up in normal/low range in 2009 then fasting in 2009 was 1.0. Last week my Cpeptide was .8 fasting. I have increased insulin I use basal bolous routine too. I 1.5’s have a quick onset but mine has been slow and sure!!! The ICD=9 for diagnosis needs to get 1.5 or Endos need to DX us as T 1 to get the benefits we need. I get the care I need and hope you do, however it burns me too that it is not correctly labeled! I obviously have a slow deterioration of Cpeptide. Hope you are well!