I have coronary artery disease


#122

You are correct, Rhabdomyolysis is all about breakdown of muscles. It’s what people who miraculously lived through being crushed in an earthquake die of a few days later.

When statins go bad, they break down your muscles and fill your bloodstream with toxic chemicals. Which caused me to nearly lose my kidneys. Fortunately I survived that, but another off-shoot of these problems is a massive amount of blockage of your arteries and capillaries.

The AMA is pushing below 50 LDLs like crazy to endocrinologists, PCPs, and virtually every physician. What they have failed to do is warn of the dangers of statins.

I’m religious about logging every single thing that goes into my mouth via a program called Lose It. I have used several apps over the years, and this one just seems to work for me right now. I also like that it integrates with my Fitbit. It’s less about the program, and all about being absolutely religious about logging.

I’m with you, it really makes sense to go low carb if you are a type 1 diabetic.


#123

I got an instant pot for Christmas last year. I was kinda skeptical at first but have grown to love it. In fact I might throw an acorn squash into mine for a side dish tonight. I make all sorts of stuff in it all the time now… there are all sorts of feeds for LC recipes that use the instant pot all over the internet if that’s what you’re into


#124

I’ve never taken any sustaining interest in kitchen creativity. Even though I’m fully aware of all the nutritional opportunities that arise when learning how to cook, it just has never been my thing.

Over the years I can easily slip into simple meals that I can quickly make in 5-10 minutes. I eat repetitive meals and don’t get bored easily.

I’m seeing now that this is an area I can kick it up a gear and help contribute to better health.


#125

So sorry to hear this Terry, wishing you the best. I hope you can figure out what is the best course for you and get some more testing to learn more about the situation. I think the surgical treatments are much better now. I have been through a lot with my father who has sic sinus rhythm, afib and a pace maker. Going through all of this and more we had a lot of crazy things said by doctors so I would get a second opinion on everything too. Norm is looking gorgeous as always​:paw_prints::paw_prints::paw_prints::two_hearts:


#126

You can inform yourself on the peer-reviewed literature by looking it up if you have access. I’m not doing it for you and don’t have time. On the other hand since that could be a full-time job to do so, why not go to nutritionfacts.org where Dr. Michael Greger doesn’t give a single personal opinion but reviews the entire body of English language journals in nutrition and biochem and medicine related to lifestyle and diet and various diseases to show you useful results in little 4 or 5 min videos you can watch that are chock full of evidence of varying levels of significance that a vegan diet is superior in many ways. Just take a look. Pick any topic like atheroschlerosis or heart disease or whatever you fancy. But do not expect that since you don’t know about it that it doesn’t exist, or that people have to cite it here. Given the 1000’s of items in the literature about it, it’s not hard to find. But let Greger, for instance, get you started if you fail to know where and how to look. First of all, unless you’re a professional I doubt you have access to the databases or know what to do with raw data if you had it anyway. Do you know how to determine which variables are significant? I mean would you know how to use R to do structural equation modeling or calculate eigenvectors or even what it is? Doubtful. So let’s not talk about data, because I doubt most folks know anything about it. The lay public presuming ability and skill to understand statistical data without professionals explaining it to them is spurious. Most docs and nurses have no data-analysis training either. Why would they? It’s not what they do. The analysis of data is a specialized and advanced topic. This forum is not a uni. So just try nutritionfacts.org for summaries for everybody to use. If you wish to learn R, the gold standard, I recommend datacamp online and it’s really good. I’ve encouraged several graduate students to go there who were really happy with high-value, low-$-outlay results. Good luck.


#127

I’m trying to follow your argument and I’m losing you. What is R? Is it defined upthread and I missed it? It’s hard following your thought process when you make esoteric references to undefined terms.

I will take a look at the nutrition facts web site you linked to. Sounds interesting.

This is not a high-level site for highly specialized people to exchange about a highly-specialized topic. We are people from all walks of life and educational backgrounds who join together to figure out how to live with a common foe, diabetes.

By the way, I think the academic credentials of @Jen may surprise you if she chooses to share. She’s achieved much all the while learning how to adapt and flourish faced with several health concerns, any one of which defeats many.


#128

#129

R is a programming language that is popular for doing statistics. I know a bit of R, but wouldn’t say I’m proficient in it. It’s definitely not something an average person would be expected to know.


#130

R is the way professionals work with experiments to figure out what the data shows. R is an intro point to use numbers in science. It’s used by research scientists and sometimes clinicians on large databases of patients. It is free too. It is by far the favored and most popular way to evaluate lots of data in nutrition. This is the state of the art way data is managed and computed. There exist other packages too. https://www.r-project.org/


#131

I don’t wish to learn anybody’s credentials. Not necessary. And it was others who asked for citations and mentioned peer-reviewed proof first, surely not me. I am trying to say alive and have a lot of medical issues. I couldn’t possibly work any more. It’s sad that healthcare and science has so many big words, and a ton of abbreviations requiring familiarity with the alphabet. Believe me, i know there are a lot of experts and experience here. I have some direct experience and some off-topic experience both at work and at home. Oddly, I am a bad T1, very lazy after about a decade of insulin pumping. The whole thing is tiring to me. I was really good but then things changed. For instance, if i had a cookie I would eat it unless it had dead animals in it. That i wouldn’t want to eat it.


#132

That’s the gap that the instant pot can help to bridge… or really any other pressure cooker could too, but the instant pot has become a phenomenon and made pressure cooking interesting and cool and worthy of blogging about online, etc…

Where i live with the long nasty winters cullinary creativity is about one of the only year-round hobbies…


#133

when I wrote R, of course I meant the program not a correlation coefficient. But that’s why the program is called by it’s letter name.


#134

I don’t even have a kitchen. I allowed it to be gutted and never got around to getting a new one. The plumber capped off everything almost 2 yr ago. So now the stone floor is down and the electrician is coming next week. It’s really been hard living without a fridge for over a year. I got to shopping and have a fridge now. It is like living in a hotel room. This has been a nightmare for the DMT1 control. I want a kitchen sink back by Xmas.


#135

I must admit, I’m a little confused by your responses to this thread. Maybe some miscommunicationg is happening, since the internet is an easy medium through which intentions may be misunderstood.

My original request for citations was not directed at you. You replied to my post (directed at another member) and engaged me in that topic. I responded to your post. You mentioned that I “already knew” the scientific answer, to which I replied that I didn’t. I mentioned that I would be interested in reading some peer-reviewed research about the science behind this topic, not opinion or anecdote, as I’ve found such information in support of a plant-based diet difficult to come by (as someone who is not a professional in the field). You then started telling me that I needed to know R to understand this topic and probably didn’t have access to the journals anyway. Many members on this site have advanced university degrees in various fields and do have access to academic journals through university database subscriptions. I am one of them, though my background is not in the sciences nor mathematics, so I do lack a deep understanding of R and statistics. But that is not what I was asking about when I asked for citations, and it was not what I was referring to when I compared peer-reviewed research to opinions and anecdotes.

Science, research, and related topics such as physiological and biological processes are often discussed by members of this forum, even though most of us are not professionals in health or science fields. Requests for citations so that someone can deepen their own knowledge or understanding of a topic or have a starting point for further research on a subject are not rare, and they are not often turned down with a response that amounts to, “Do your own research, if you even have access to it, and good luck understanding it.”

Links to academic journals are quite often shared and discussed here, even though most of us are not specialists in these fields. Often these discussions start out with lots of questions being asked by members who have little to no knowledge about these topics, in hopes of learning more. Members who know more about particular subjects are, in general, comfortable sharing their knowledge and often put a great deal of effort into writing posts that break a complicated topic or discussion of a number of studies down into understandable language and concepts. It is not unusual for members to tag one another when a topic comes up where a particular member is known to have an in-depth understanding, and that tagged member often doesn’t mind clarifying concepts or topics of discussion. Most of us may not be in the sciences professionally, but most of us are interested in and willing to learn as much as possible about diabetes and related subjects, and those often do involve a certain amount of science and research. In my opinion, this diversity of knowledge and willingness to share is one of the great strengths of this forum, and is one reason I have continued to visit and engage for more than a decade. And this is the spirit with which my request was made.

Thank you for providing the nutritionfacts.org link. I will visit and read and watch, and hope that it will lead me to more resources where I can learn as I continually evaluate what course of action is best for my health.


#136

Please don’t change the meaning of my quote. I said exactly and meant it that you need to understand R (or it’s equivalent) to understand manipulation of raw data in databases like those concerning nutrition and biomarkers and other disease metrics like end points related to DM. For example, R is how we evaluated vast data including years of labs, imaging, and other metrics in a piece going into JAMA right now, on which I am an author and consulting partner. It would be inappropriate to say more.

So, I feel marginally qualified to say the figures and data, in the absence of R, would not make sense to anybody but trained professionals. The data is from a huge database where hundreds of factoids about people with DM reach various endpoints. BTW, I am not the lab chief.

Yes, I tend to role my eyes when people outside of work ask for data proof unless it’s at a lab meeting or conference, or rounds or grand rounds or whatever, where I have some hint, just maybe, that somebody asking has the faintest idea what to do with it. Prove the earth is flat. Oh yep, I need to see it in a journal, and not just any journal but a peer-reviewed one. . . Oh yes, got me there (insert ching sound of bell ringing.)

I defer to read your whole response to me now but thank you for it. It’s 5 in the morning and I am listening to Mahlers lovely Das Lied von der Erde to put something nice into my head insofar as my complaints department is closed.

The vegan topic often gets me going. I am not going to talk more about it here. I stipulate that most vegans (like me) annoy everyone and never shut up about it either. The typical routine for me has been the most ill-informed people on it f2f challenging the existance of the science because she doesn’t know it’s there, as if I should prove any aspect to said individual or make a list of citations. If one wishes to get familiar, help yourself so to do.

Oh, and I love when they mention “peer-reviewed material” without knowing that this is exactly what I do. Here’s a depressing news flash: In some fields a big part of what’s in print in peer-rev j’s is useless junk that cannot be replicated, is artifactual, has methodological problems, isn’t correct results, and so on. . . You want a citation for that too, because it exists may be even worse than I stated in certain fields.

Question everything.

Sure, I might be confused. That’s good to point out. I’ll admit it. Thank you. Much appreciated.


#137

Terry, thank you so much for your courage in posting your experience. I’m so sorry you’re going through this. Please know that there are many people out here keeping you in our thoughts and rooting for you. I’ve been struggling over the past several years to completely give up wheat (any flour, really), after realizing that good control just isn’t possible anymore without that (to me) drastic step. Your post has given me another reason to stick to my plan. And I understand your hesitancy in jumping into the medical maelstrom. I was diagnosed with T1DM in 1973 and went through years of following medical instructions (one to two shots of NPH per day, following food exchange diet) and then being berated for “cheating” when my BGs were high. It left me with a healthy suspicion of the medical establishment’s edicts. Good luck and please keep us posted.


#138

I never understand this response, and I find it surprising in a physician. He saw one case, not an obvious trend. How many of his patients on statins were doing just fine, I wonder. In the US, about 100 people a day die in motor vehicle accidents, but I don’t hear anyone saying, “Hoo boy, I’m not getting in a car again.” NSAIDS such as Advil kill about 44 people a day, and cause side effects such as stroke and digestive ulcers in many others, but I don’t hear anyone saying, “I’ll just suffer through my splitting headache, thanks.” A bit of perspective never hurts.

I could have saved you some money. :wink: I have been making yogurt for 40 years in 2-cup mason jars, in a soup pot, with an aquarium thermometer. But you’ll find tons of other uses for your instapot. For starters, go to https://www.epicurious.com/search and type in “instant pot.” Almost makes me wish I had one!


#139

I am so sorry if I upset you with my fish taco story. It was in my post to let everyone know how much I enjoyed my afternoon with Terry, over fish tacos and a wonderful walk around the bay.
It was also to try an explain that while Terry and I agree on many things,we don’t on everything but can still have a wonderful, upbeat, pleasant conversation for hours.
I have never said someone’s choice of diet is wrong. If it works for you great. But that does mean it will work for me. So while I read the posts on different diet choices, I never downplay a choice. If it works for you great but you really don’t need to make me feel less for the diet choices I have made.
We are all fighting battles here. We really don’t need to be fighting each other. If we work together, we are a much louder voice.
I think a big deep breath from everyone would be a good place to start and maybe a nice quiet walk somewhere.


#140

That does boost my spirit, Jenny.

My challenge is to not let my reasonable distrust of the medical profession, based on my long years of diabetes, undermine what may be the best path for me to choose, even one using traditional medical procedures and therapy.

By the way, prior to this heart scare and my elimination of all grains in my diet, I was eating limited breads and grains. I would often allow myself one small dinner roll at a restaurant, slathered with butter, of course.

Now that I have eliminated all grains, my blood sugar CGM line has improved, by a lot. My overnight CGM line last night held between 76-95 mg/dL (4.2-5.3 mmol/L). Now I do use an automated insulin dosing system and it did play a role, but my overall results have improved a ton, due in large part to eliminating grains.

Thank-you so much for your kind note and support.


#141

You’re right, @beacher. We need to keep the risks in our lives calibrated to some reasonable scale. My basic objection to statins is that I don’t think they increase longevity, do have some risk of side effects, but most importantly, statins can pre-empt any interest in utilizing any further and possible dietary or microbiome changes.

I just got the text that my instant pot is downstairs. Yeah, I remember the yogurt-making enthusiasm that swept through the US in the 1970’s. Perhaps this appliance will help me take a greater interest in making myself healthier meals. We’ll see!