This is long but I’m trying to give background so that this all makes sense.
So, my little man is 2 and a type one. He’s on .5u Novalog for every 20 carbs. 3 units of Lantus in the mornings at our house and 4u of morning Lantus at her house. Compensation is .5 for every 75 starting at 275 at our house and starting at 200 at her house. His target range is 100-200. At diagnosis (9 months old) his HBA1C was 9.7. Since then he has been at 8.5, 9.4 and 8.9 in December which is the last one we have for him.
We’re going through a custody battle for him (his father and I vs. his mother). His BG is ALLLL over the place. Here’s an example of the difference between the houses…
The other week:
Had the night with her he’s at…
(3 units Nov during this time)
We get him…
11 am 79
11:30 272 (had given him a large snack because we went to the park)
( 2.5 units Nov during this time)
He goes back to her at 5pm.
Her weekend…(starting at midnight to show her full days)
(14.5 units Nov during this time)
Between April 1-28th:
BG #of times
No keytone tests done; she doesnt even have valid strips for her meter. (our endo said unless he’s sick dont worry about keytones :-/ But even when he has been over 500 numerous times in a day while sick she hasnt tested for them )
And this isnt just picking out a bad day; this is the norm. Low numbers with us, high numbers with her. The endo just says well he must be more active at your house.
He is suppose to have a max of 30 carbs per meal. She feeds him upwards of 80 per meal and then still feeds him more milk 30 min or an hour or so after the meal twice a day.
He is only suppose to have 16oz of milk a day; she usually gives him around 32.
She will test him. He will be in the 400’s. She will still give him a snack or some milk. Or will just feed him snacks without testing. Feed him lunch without testing.
The endo has to tell her to cut out the Burger King, McDonalds, Dairy Queen, cheezits etc. Over and over.
Examples of dinner with her: Green bean casserole, fruit cocktail, and a brownie.
Another day- checks BG for dinner- Pork chop, mandarin oranges, 8 oz milk; an hour later 20 grapes, an hour after that 20 more grapes and 3 cheese sticks an hour after that 8 more ounces of milk two and a half hours after that checks his BG again for the first time since dinner.
I don’t know maybe I’m just over analyzing and thinking we’d be better because we’re in a custody battle but my husband and I have major concerns and worries about how he’s being taken care of with her. We try to express our worries to our endo. She just says a carb is a carb just compensate for the BG, and no one can have target range numbers all the time. I understand that fact, but theres a difference between a few highs and being high constantly.
Our doctors will not get involved in the court case. They wont tell us if him running high is dangerous for him. They wont talk to our lawyer. They wont talk to the guardian ad litem. Our lawyer has said our only choice is to find and hire a specialist to come in and analyze his food records (at roughly 300/hr) and say that these highs are endangering his health. There are no doctors in our area that will do this.
Does anyone have a doctor that will stand up for him? Know someone willing to do a telephone court appearance? Does anyone know any support groups, people to contact anything that we could give to the lawyers to help them understand. We’ve tried to show them websites and books etc. but they basically keep saying until a doctor says that 300+ 400+ etc isnt healthy they have to assume she’s taking care of him properly.
We dont want to take him away from his mother completely but we are worried about his future if she continues to have him consistantly.
He’s two. Is this normal for a growing child so young? Am I upset and worried for nothing? Would we be wasting our time to hire someone to look at his records?
Anything you all could tell me would help. I just needed to get these thoughts out of my head.