I am Melinda. I am new to the forum, but long-time T1D’r (30+ years). I am also working on a project to increase access to clinically accurate diabetes education including tech info, but I can’t do it alone. If you have 15-20 minutes, please complete the survey found at the link below. By participating, you’ll be helping me gather data that is essential to complete my project. If all goes well, this will lead to free access to clinically relevant education on a variety of T1D and LADA topics. I also hope to create a product that can support any provider working with people with diabetes.
Thank you for considering this opportunity to contribute to meaningful research completed by a fellow T1D!
Hi @mel13 Melinda. Welcome to the forum. I hope you stick around, it’d be great to hear from an actual CDCES when people ask about how to choose a CDCES.
Your google form is missing your IRB info which is required since you are doing research on human subjects.
Melinda, I noticed on your quiz you have a question regarding how often to change the infusion set for an insulin pump. I’m thinking the answer your looking for is every 2-3 days, however, Medtronic offers an extended wear infusion set can be left in place for up to 7 days. So this may throw people off a bit.
That’s a great point, Ljaz. I made a note of this in my research notes, and will suggest this be taken into consideration for future iterations of these questions.
Every school has their own IRB boilerplate requirements. I only know about it because my wife got her PhD a few years ago from an R1 school so IRB comes up in conversation a few times a year. She had the feeling successfully figuring out the complex IRB process was part of proving she deserved the PhD. That and the graduation paperwork. =) Good luck and I hope your MSHI degree makes HI a fun part of your future work.
I think some of the choices are off as well. I haven’t used infusion sets for awhile but I do know you canextend wear. And I don’t do anything for a 240 blood sugar except dose. It doesn’t take anything special to drop it down. I’m not sure, so I stopped the quiz.
Thank you for sharing your feedback, Laura_S! Having context around your thinking while completing the survey is really helpful. I aim to pass along feedback so it can be taken into consideration for updates to the questionnaire. Side note: These questions were developed by a multidisciplinary team, then borrowed by me, with permission, for this project.
If you’re open to returning to the survey (zero pressure to do so!), I encourage you to make use of the “I’m not sure” answer option, as applicable. The questionnaire is anonymous and answers aren’t “graded,” so I hope that alleviates any pressure to answer perfectly. Regardless, know you’ve helped by sharing this feedback!
Some of the answers you shouldn’t think about too hard. I think everyone’s supposed to check our ketones above 240 but it was easy to get distracted with the other answers, especially I was looking for “check/replace infusion site” or “bolus insulin” and not seeing those.
I’m super insulin sensitive. Though it doesn’t stay there long, that number is not a number where I would take any action. I guess some of us who have had diabetes 50 plus years may not be aiming for a near normal A1C. I don’t know but I don’t look for ketones at that number.
I haven’t owned a bottle of Ketone strips in decades :-). But keep in mind all the official advice is to test for Ketones whenever we’re over 240 and I think that was the “right” answer.
If I think there’s something really horribly wrong with infusion site and my bg’s sky-high I would massively rage-bolus with a syringe or pen but that wasn’t an option they gave us
I don’t own any either. I never feel really sick unless a 300 wont go down. Drink water and hope it does with treatment. 240 is not high to me as far as urgency goes. Everyone is different of course.
