Is it just me?

When I am struggling with my bloodsugars, I don’t call the endo. I just work on making my own adjustment and changes, am I wrong for not calling?

What do you do?

Unless something is really amiss, I don’t call my doc either. He was very helpful in adjusting timing of shots because of bad lows after meals & then changing my brand of insulin, but I tweak & adjust on my own. We’re our own science experiments, is the way I view it. The CDE I saw was worthless & I never contact her. Still don’t understand how someone with that much training could be that useless.

I’ve never called in for help making adjustments… not even when pregnant… I just did what I needed to do, and wrote down any changes so I could remember that I’d made them. I honestly think that anyone who relies on calling in all the time (past the couple of months just after being diagnosed) is really NOT taking care of themselves adequately… and is quite possibly wasting their doctor’s time.

If I make a change, I let my doc know at my next appointment… it’s no big deal.

I have never called the doco either. When I was younger we (meaning… mom) called once in a while.

I just started pumping 2 months ago so I’m a little afraid of making my own adjustments. My CDE is actually awesome, so I don’t mind emailing her with questions. As I get more comfortable with my pump and my body, I’m sure I will start making my own adjustments, however.

I never called in with questions - we just made adjustments. But…recently we switched over to the pump and have been taking pump classes with others and they make comments like, “well, we talked to our doctor and she said this” and my first thought was, “what? my doctor didn’t discuss that with us” but then I didn’t ASK. A lot of the people in the class seemed better informed and it was because they did call and ask questions. So to answer your question yes and no - yes, ask more questions and no, I understand where you are coming from but I think it hurt us in the long run.

My dr checks my logbook and pump dowload everytime I go (every 3 months) we talk about waht I have done–he has"guidelines" of when he wants you to call in, and i can fax log readings to them at anytime I want help… A few times when ill I have called in for help–but not too many–minor tweeks I amke on my own.

I am clear, that I like the help of my Team when appropiate , however I feel strongly , that they also trained me to do my own adjusting . I look at them as another pair of eyes, brains etc. …just as I receive " hints /thoughts/ experiments /trails " from TU members

Hi Karen… I am like you I don’t call my Endo… I change and adjust my pump as needed… same with my diet…Only time i really worry is when something else is going on or another dr. gives me new meds…I am lucky in that my clinic has pump specialist so if i ever get stuck i just call them. I don’t think you are wrong in not calling…

I personally hate my endo and his CDE… So the least I contact him the better. I’m currently trying to get into a diabetes clinic but because of no insurance they haven’t taken me. I’ve learned alot from here and different websites and just make my own “adjustments” and so far so good!

Elizabeth

Since the late 1970’s, I have been mainly looking after my own Insulin adjustments since I know my body best and what affects it. When I changed to a different Insulin, or was put on different drugs by my other Drs. or was pregnant or was going in for treatments/surgeries, then I would ask my Endo and or Health Team for needed guidance.

If you are struggling(haven’t found your own solution) then certainly you should get your Endo’s advice whether by phone, visit or e-mail.

Karen,
I prefer to work with the endo for diabetes related things but do keep ALL of my doctors in the lopp. The general practictioner is great for the simple things but I go to my endo for specific guidance on my diabetes. If I keep the endo out of the loop and getting expert help will just be difficult when I start having challenges. When I get sick I make sure to commicate my situation to my family physician and endo.

My endo doesn’t understand how pumps work, why they are of any benefits or what the appeal of them is…my last hospital visit pretty much consisted of him staring at the screen, saying everything was fine and telling me I could leave. I was in there for just over 1 minute. So if I’m struggling with my blood sugars, I don’t think I could call him (I didn’t even catch his name since I’m referred to a different doctor everytime I go to the diabetic clinic - makes forming any kind of relationship impossible!!). He wouldn’t understand how my pump works or anything about carb counting or basal rates, so there would be no point. I must admit I find it a little bit scary that if something was to go seriously wrong, I would have very little help but if I was very stuck, I’d call my diabetes specialist nurse who showed me how to use the pump when I got it. But that would only be if it really was a life or death situation lol…

I did once get told off for changing my insulin dosage years ago though…I was about 13 and increased one dose while reducing another. This consequently lowered my next A1c reading, but that went unnoticed…as far as my diabetic team was concerned, I had no right to do that…whatever they think themselves!

I diagnosed myself with diabetes in 2007 and had the blood test to confirm (yep, my blood sugar is 325 so that must mean I’m diabetic, thought so). I figured out in 2009 that I was not Type 2 as my original PCP had said but LADA. So I started early with doing my own care. When I finally saw an endo after all this she sent me off for tests and said she’d e-mail me the results and my instructions for insulin use. When she did so it was a very general set dose and I had a dozen questions. I e-mailed her back and it turns out she had just left on two weeks vacation. I was living in Guatemala and her secretary who didn’t speak English was using translation software to relay my questions to the Dr. I think the phrase “I:C ratio” was more than the poor girl and her software could handle! That seemed fraught with peril of mistranslation so I gave up and figured it out myself with a lot of help from these boards.

My recent visit to my new PCP just involved my telling him my regime, showing him my log and getting all the scripts. I will call him soon to let him know he can write for more test strips as others with my insurance get more. Other than that…a flu shot in October? I guess the answer is no, I don’t contact my doctor. If my diabetes care changes and becomes unmanageable I would probably get an endo consult and go from there.

I do what you do. I am the one that knows my body and the way certain things work for me or won’t work for me. Who is the one responisible for your care? You are! It is up to us as the patient to go to our regular appointments and use the meds that are prescribed for whatever reason. The only time I speak to someone about my diabetes is at the doctor’s office or the ER.

For decades I only saw my internist, she is the most intelligent MD I have ever met and I have seen quite a few.

When I changed from two shots a day to MDI, I did see an endo, he was a freaking nightmare, and he was a Type 1 diabetic. I had been on two shots for 35 years and all of sudden he switched me to ultralente and humalog and said look at carb counts on labels and shoot up 1 unit for 15 carbs, I was clueless and scared and when I called him all upset and crying he said you are just not use to being in normal range and in other words suck it up and quit crying. Another diabetic I know went to him as well and she went into DKA, etc.

I still go to my internist and she knows all, but she says she is not comfortable with the pump and I must see an endo, which I have found finally a good one after going to one endo that said, why do you test your bloodsugar so much, omg. Well anyway I like this endo, but I really don’t have any issues so every three months for me just seems like a pricey A1C, so I skipped my last visit and my internist ordered my A1C, which was 6.7. The endo keeps calling me to make a visit, but I will wait until I need RX’s again. Endo must be hurting as it use to be a year wait to see him, but well the economy…and some of the changes that the physician assistant at the endo’s office suggested did me no good.

Right now I am suffering from bigtime lows and doing my own adjustments and today was a better day, a bit high but I will tweak again all by my lonesome. :slight_smile:

Thanks for the input.

Glad you had fewer lows today!

Thanks Kelly!! :slight_smile:

Unless someone is new to diabetes, starting some kind of new regimen, be it a pump or Symlin or something like that, or they’ve had some kind of pattern they’ve tried to correct unsuccessfully by themselves, I think they ought to be able to make adjustments on their own. If they aren’t comfortable doing that, it would likely be in their best interest to take a class or something so they can get comfortable with it. There might be times when they have to make adjustments and they can’t talk to their regular doctor, and if they rely on the advice of someone who isn’t really familiar with them that could end poorly. Each of us knows our diabetes better than ANY doctor.

Can you change Endos??
I definitely wouldn’t stick with them if I was so uncomfortable…

But about making changes, I try to do so myself, at first.
I start basal testing and then hubby and I sit down and look over the numbers and try to makes some educated guesses.
I do like my Endo and his CDE BUT I know my body much better than they do - sometimes my Endo will suggest changes that I KNOW are too drastic so I’ll start with half of what he’s suggested and move on from there.

With that said, I like and trust his CDE very much so when I can’t quite figure it out I’ll contact her for some help…truth be told, lol, even when I see him and he says “do ___ and then fax me the numbers” I just do what he asked and email them to the CDE. :slight_smile: They don’t mind and I’m much more comfortable with her and working via email instead of over the phone. I like to keep a folder and go back and look at past advice so I’m not bothering them with something we’ve already talked about or I can fix myself.