Moms and Their T1D Kids

For diabetes awareness month. The following account echoes my mom’s feelings when she was my caretaker in my early years with T1D, starting in 1945.

Written by Rosalin Midgeley
"I remember when diabetes was just a word, when I could give you whatever you wanted to eat without thinking about carb counting and sugar content.
I remember that carefree smile you used to have, the spontaneous play you used to enjoy without having to test your blood to check if your levels are high enough to enjoy it or so low you have to sit and watch while you have something to eat.
I remember days out and holidays when we could just pile into the car and go, not have to make sure you have your insulin, testing kit and enough snacks and hypo food.
I remember reading you a bedtime story and the scariest part were the goblins and dragons in the books, now its a monster called diabetes and his henchmen ketones and hypos that keep me awake to make sure they don’t pay you a visit in the night.
I remember the day you were diagnosed, the fear in your eyes etched into my memory.
I remember you screaming you were sorry for being scared while I helped to hold you down for blood tests and a drip.
I remember how very brave you were when you realized you had to inject for the rest of your life.
I remember the first time you went to school with it, I had to hand your life over to someone who only had my written instructions to help keep you alive.
I remember how scared I was to let you do things other kids do like go to parties and ride your bikes at the park.
I remember how proud I am to be your mom each time someone says you can’t do that, your a diabetic and you go ahead and do it and succeed.
I am so proud of all of you for learning to live with your diabetes and not letting it hold you back!
I look forward to all the years we will share and all the wonderful things you will achieve!
What I look forward to the most is a cure! There will be one and it will be for you!"

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love is what motivates us to move mountains. this will be sappy to some, but i love this rocky quote and have seen it put into action by family members:

“Rocky Balboa: Let me tell you something you already know. The world ain’t all sunshine and rainbows. It’s a very mean and nasty place, and I don’t care how tough you are, it will beat you to your knees and keep you there permanently if you let it. You, me, or nobody is gonna hit as hard as life. But it ain’t about how hard you hit. It’s about how hard you can get hit and keep moving forward; how much you can take and keep moving forward…”

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As the mother of 3 children with T1D, I can most definitely relate to your mom’s feelings of sadness and feelings of hope. Then just when I thought our family was adjusted to the new normal, my daughter developed an eating disorder. Apparently women with T1D are 2.4 times more likely to develop one than the general population. No-one ever told me this. Her disorder took a deadly form - omitting insulin in order to lose weight. Suddenly we found ourselves fighting two monsters working in tandem to bring down our baby. Watching her battle filled me with twice the fear I ever though a human capable of, and watching her win that battle filled me with the twice the pride.

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