Non diabetic hypoglycemia and dexcom

[Robr]

Just got home from a restaurant ate a big hamburger with fries and a queso cheese dip for starter and this is how my readings are of today. The burger was at 6:15pm

[mohe0001]

Oh, shoot. There was someone similar on the forum about 6 months ago. Interesting. Tricky.

[Robr]

Oke any link to his or her post?

[mohe0001]

Are you in the US? Do you have a spare $1,000 to drop on a transmitter?
Maybe we could supplement you with some sensors. I would borrow you my G6 receiver, at least until this gets figured out. This is pretty serious. You shouldn’t ddie waiting for insurance to cover it. This might be a pay out of pocket situation. Can work on getting reimbursement later.

[Robr]

Mohe0001 I am in the USA and wished I had a spare grant lol the transmitter is good for 3 months and don’t need a receiver right I can just use my phone pixel2 I’m now using the libre what is nice but I am always late lol so when I scan it tells me I’m low or had a low the dexcom at least should give me a alarm when I’m going under 70 and a nonstop alarm when under 50 right…

I don’t understand why my insurance company is not covering it because non diabetic hypoglycemia is just as dangerous if not worse I mean if you have diabetes it is not dropping out of the blue it is a men made error I mean then you have dosed tomuch insulin I guess. The only thing I have is my other half that might give me glucagon if I’m not waking up and he is traveling most of the time.
Thanks for your offer but I can’t accept it. You need it just as much

[mohe0001]

Lets get this worked out.

I have a transmitter that is not dead yet. I’m not sure how much life it has in it, yet.
But, it might get you through in the mean time. Or, at least, to try it out and see if it wakes you up at night. I’m operating off of my iPhone, so I’ll be fine. I could send you a couple of sensors.

If you instant message me your address, I’ll put supplies in the mail tomorrow.
All I ask is that you send back the receiver eventually. No rush. If you need to borrow it for a while, I’d much rather have you be safe and not super stressed out. Its not a big deal.

[Marie20]

This is getting trickier, especially with the new lawsuit Abbot just filed to stop stuff like it, but have you considered Miao Miao??? It turns your Libre into a CGM.

I believe it is now working on the new Libre’s/ Someone here will know more about it!

[Willow4]

Something to do while you get things resolved about a CGM is to start eating low carb or no carb. Eating hamburgers and fries is NOT the way to do it. Reactive hypoglycemia, which you have, can be controlled by cutting out as many carbohydrates as you can… avoid potatoes, anything made with grain such as bread, cake, cookies, rice, etc. A Keto diet will help. Look into it. A change in diet might do it for you and you may not even need a CGM. Or it might tide you over until you get that issue sorted out.

[Marie20]

This might be the thread @mohe0001 was thinking of

Help With Reactive Hypoglycemia in Non-Diabetic?

I have been eating banana chips which have a pretty good carb to fat ratio. It seems to work better than glucose tablets. I rarely have juice around though so I haven’t tried it yet. I’ve also been staying away from rice but it’s hard! I’m trying to introduce rice back in my diet and it seems to be okay with lots of veggies. Just with protein and my blood sugar spikes (I say spikes, but it only goes to 145 or so) and then plummets though. I talked to my endocrinologist about all this stuff and …

[Marie20]

I haven’t read through these but maybe they can help…

Hypoglycemia Without Diabetes

In the 1980s I was teaching an evening math class in a summer session at a community college. I had a student who told me she had hypoglycemic episodes, but she did not have diabetes. I gave a math test one evening, and she had low blood sugar. I agreed to give her a make-up test at a later date. She wanted to take the test on a weekend, and I found that she did not live very far from my house. I scheduled the test at my house on a Sunday afternoon. She knocked on our door, and she was sweating.…

Severe non diabetic hypoglycemia

I am by no means an expert or medical professional. But I do have several people in my family with a similar issue. Sometime back I came here to TU and asked about this because my stepson was having severe lows. The overwhelming response that I got was that hypoglycemia is very often a precursor to type I. In fact, now that I have an understanding of how I feel when my blood sugar is low (type I and using a meter) I realize that I had hypoglycemic episodes going back as far as 40 years. They bec…

Hypoglycemia help please

I have a family member who is hypo. He is early 20's and otherwise physically in good shape.He has not been DX'd and is reluctant to go for testing. He is however, researching and learning all he can, but says he doesn't want to know all the bad news. He has not had his A1c checked, but he does test some. His FSB is typically about 40, even though he eats before going to bed. He is being careful with his diet and is tracking what he eats. The reason for my post is to hear any personal insights a…

[Robr]

Well it’s also nocturnal so at night even if I don’t eat sugars it stays below 70 I know it’s weird but I might ask my doc for some scans maybe MRI because I have tried low sugar keto like diet but it’s hard I have Celiac’s as well so I’m allready on that diet very strict my doctor is thinking that my intestines don’t absorb enough glucose to feed me and if it does my pancreas is overproducing insulin to drop it but it does not stopping on time lol

[Marie20]

@Robr On one of those hypoglycemia threads someone was talking about celiacs and not absorbing carbs well. I know my dog who is a diabetic too has a stomach disorder and takes a long time to absorb food, it hits hours later. The thing luckily that is the fastest is a glucose syrup when she’s low.

[Robr]

@Marie20 yeah I have heard that too.
I thought because of the symptoms that I might have Addison’s but that’s ruled out by the blood work that I had done

[mohe0001]

Have you resorted to the ol’ 2 or 3AM alarm clock wake up and blood sugar check?
Its the worst, but in a pinch, it is sometimes effective at keeping critical failures from popping up.

[jack16]

@Robr

Just got home from a restaurant ate a big hamburger with fries and a queso cheese dip for starter and this is how my readings are of today. The burger was at 6:15pm

That my friend is a mild RH sugar crash during the night. A true reading of under 50 is a hypo. meters only give a guide. I would use finger pricks over the libra. They can be inaccurate. I personally would ignore over 50, unless I had symptoms. How RH can be controlled is by a change of diet, like keto or LCHF, to see if that works better

Here are some other people with it

Reactive Hypoglycemia

Acute Hypoglycemia: Practice Essentials, Background, Treatment

Overview

Treatment and disposition of hypoglycemia are guided by the history and the clinical picture. Serum glucose should be measured frequently and used to guide treatment, because clinical appearance alone may not reflect the seriousness of the situation.

Hypoglycemia is defined according to the following serum glucose levels:

• < 50 mg/dL in men

• < 45 mg/dL in women

• < 40 mg/dL in infants and children

If the cause of hypoglycemia is other than oral hypoglycemic agents or insulin in a diabetic patient, other lab tests may be necessary.

[Robr]

Oke small update I’ve changed insurance and the new one gave me the dexcom g6 with no questions asked. I do have my glucose levels under control and they are a stable 100 all week I am constantly looking on my phone and if I see it’s going lower then 90 I’m eating or drinking and I’m feeling better. Just had my Christmas holiday spend in New York and walked about 10-12 miles everyday ouch lol. So I’m super happy that it all worked out. Unfortunately I will not be going back to Cigna insurance

[YogaO]

Wow! That is such great news for you. Thanks for the update!

[Sam19]

You’re waking up in the middle of the night and checking your blood sugar with a finger prick meter? True non diabetic (read— non insulin induced) hypoglycemia is extraordinarily rare while false severe hypoglycemia cgm alarms at night are extraordinarily common…

[Robr]

@Sam19 yep done that I got a slide elevated igf2 but I get retested in January but yeah now at night I’m about 75 what is okay I had 1 alarm in the last week other than that during daytime stable around the 90 to 110 it’s easier to control when you’re awake

[Robr]

Hey everyone small update on life with the g6.
After being diagnosed with hypoglycemia and all the problems I have and had. With the insurance company.
I am now almost a year on dexcom 3/4 year lol, I’m doing great! I am able to keep my sugar levels stable and I feel better then I felt before.

I have my bad days so now and then but other than that I can control it. I know when im getting low thanks to dexcom and I can act accordingly. My average is now 104mmol over sd of 24 what are great numbers my a1c is 5.9
So after all the hassle I’m thankful that my new insurance gave me the ability to live life again!
No hospital visits at all just my check-ups at the Endo.
I’m also thankful for all you guys that helped me with tips and ideas to get me through this situation.

I did had 1 hospital visit btw lol I had a wire broken off under my skin and had it surgical removed. Ugh haha all good and healed great.

Again thanks to all and thank you aetna insurance! For giving my life back!!!
Special shout out to mohe001 for her help and support!