I’ve posted here before while trying to figure out what I’ve been experiencing this past 6 months. This community has been AMAZING in helping to give me clarity. Thank you so much. I’ve learned more from members & posts here than I have anywhere else on the topic of sugar intolerance. You guys have encouraged me to get another doctor and I found someone that really listens and takes me seriously so thanks a lot. It helps to see I’m not crazy and tons of people have had experiences like me too.
I took a test suggested by another member here, which is an OGTT but with insulin levels instead of glucose. Dr. Kraft was a big proponent of these as I’ve seen some people talk about. Unfortunately, I’m having a difficult time finding online discussions and information for this. I’m going to discuss it with my doctor on my appt next month, but wanted to ask about it here too.
Long story short – normal hba1c and no T1 antibodies. However, my blood sugar goes very high after I eat and then often times very low. Hitting over 200 sometimes and then down to 50.
Here’s the results from my 3 hour insulin test:
Fasting: 3.0 (ul/mL)
1 hour: 47.2
2 hour: 11.5
3 hour 2.5
I test my own blood sugar during that OGTT and got:
1 hour: 197
2 hour: 100
3 hour: 55
(I previously did a 2hr-OGTT of just blood sugar from a lab before, so the one I have that’s officially from a lab is this):
1 hour: 233
2 hour: 91
3 hour: 50 (I did this 3rd hour reading on my own as it was a 2 hour OGTT).
I feel a little surprised to get the insulin results I did, because I expected the numbers to be higher to match the lows I feel at the 3rd hour. Are the insulin results I got normal? Or perhaps they’re BELOW what they should be? I remember looking at a chart a while ago that showed high readings, but those might have been for insulin resistance / T2.
I also have a low c peptide of 0.66.
At this point, I’m accepting that what I’m likely experiencing is reactive hypoglycemia, not diabetes. But I’m going to keep testing my blood sugar, and periodically my c-peptide to see if it goes down more, as I know many people experienced reactive hypoglycemia for years before presenting LADA, so I’ll be conscious about that possibility. Just frustrating that I wish there was a way I could medicate for this RH because it is incredibly burdensome. But oh well. I’m disciplined and I can stick to a LCHF diet since that appears to be the only solution.