Last visit to the endo on Tuesday didn’t go too great–Eric’s a1c was back up to 9.0. I knew it probably hadn’t gone down given the fact he’s been all over the map (and there were two days of the past 40 where we had miscommunication resulting in no Lantus dose, yikes) but I hadn’t expected it would be quite that high. Also he’d lost weight–not much, just a few tenths of a kg–but given he’d grown a quarter inch one would expect him to have gained, not lost. Some of that’s due to increased activity levels now that it’s supposedly spring (it’s hard to tell in Maine; we go by the greater amount of mud) but that also should have brought his BG down, and it hasn’t. So we made adjustments to his insulin regimen… which always means less rest as we usually get a few lows… and try again.
The good news is, though, we’ve started the process of getting him on a pump. The endocrinologist we saw, Dr Morris (not Eric’s usual, who was out sick) made it very clear that both he and Dr Olshan really want Eric on a pump and that my change in insurance–official as of June 1!! Card and everything!!–was a great relief to all concerned. So we have a meeting scheduled wherein we get trained on how to use it and so on. They recommended a Medtronic pump that I haven’t yet had time to investigate. Disappointing was to read all the literature about the version that comes with continuous glucose monitoring only to find out at the end that it’s only used in kids over 7 
But, I’m not going to cry too much. A pump will make a lot of things better and smooth out those afternoon highs we’ve been struggling with.
Also, I’ve gotten the go-ahead on my book project and the publisher has tentatively paired me with a well-known endocrinologist from UT Southwestern. She’s not a pediatric endocrinologist, which would have been my first choice (the PedEndo I contacted from Joslin never responded, which I take to mean “not interested/no time”) but she does a lot in diabetes education and has connections to pharmaceutical companies who could potentially buy the book for distribution to patients. I’m no fan of Big Pharma, but I’m also no fan of being thousands of dollars in debt, and this book project represents a viable option for reversing that problem. So wish us luck on both fronts!
befoore i was on the pump i had a terrible time with lows at night, i have had 4 siezures in my sleep. but it’s better now. good luck again!!