Out of my mind with worry

I feel bad to check her really. she is asleep and it hasn’t woken her.
When awake she doesn’t seem to mind. I let her check me first…in fact after I’d checked her earlier she said ‘again!’ But still. It isn’t great really and I don’t know where I’d stand with the dr. Do they get annoyed if you check your child yourself?

I’d be concerned you are going to put her through the rigours of being a type 1 diabetic when she hasn’t been diagnosed with anything and may not be diabetic at all. Even if you test and see some numbers close to 10, there is nothing you can do about it and it may not even be abnormal. You can always get her a1c checked and see how it is. I would not want to put someone through all of the daily things I need to do to survive and have good health long-term if it wasn’t necessary.

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Breathe Mamma. This is not an emergency and your daughter will be fine.

Enjoy your holiday and stop testing for now. You are just making yourself more anxious.

You can see her Pedia when you get home. He doctor can do tests to determine if there is possible very early type 1 developing. But it is very early. And whatever happens you will manage.

Hugs.

Hi there…I feel bad you are so stressed but just wanted you to know that I have randomly checked my young daughter who is not type 1 and gotten her at 8 before. It scared me at the time but and she doesn’t have diabetes. :slight_smile:

I know they say non diabetics don’t spike but I’m not so sure thats true. As well when my other daughter was diagnosed at age 5 she was drinking so much it was annoying and she had zero energy and she was losing weight. And yet she wasn’t in DKA…she was given a shot of insulin at the hospital and sent home for the night.

Its scary when you think something might be wrong but the good news is is that even if she does have it she had a mom who will be able to take amazing care of her!

Hi, as a 46 year Diabetic that was diagnosed at 9 months old and a current Licensed Practical Nurse the numbers you are seeing are normal, an increase in blood glucose is not that big of a deal, it is what happens at the 2 hour post meal time is important. If the blood sugar is still elevated, then there is concern, if it is back in the 5.x range that is a normal response from her system.

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Even a 9.2?
I can’t help feeling that the sugar in her urine yesterday morning also suggests she had a spike post breakfast even if she is coming down quickly.

This morning she is 4.8.

I will check her again before lunch. I just want to make sure the sugars aren’t stacking up each time she eats. I am feeling worse because we are away from home. I would probably relax and keep an eye on the fast sugars if we were home but that would he it.

Just relax, she isn’t in any danger and you are going to drive yourself insane! I don’t think what you are doing to her is good for her either. Even if she actually was type 1, it’s likely you would be dealing with numbers in the 7s, 8s, 9s and sometimes higher on a daily basis.

No it probably isn’t good for either of us. When we get home I will take her to the GP for sure.
However rightly or wrongly I have done today’s readings before and after meals. The only thing I wondered is this: what constitutes as a meal? She’s had 8oz of milk before bed. Would this count? I do not know.

Anyway:

Fasting sugar 4.8 (86 in the other system that is used in Europe and America.
She had some milk and a little fruit (strawberries) - never eats much in the mornings - and after she was 5.5 (96ish I think)
She then had an ice cream as we are on holiday and blood sugar an hour after that was 6.3.
She had some milk and a nap and her sugars were 5.7
This evening she was 5.5 before dinner (carrots, broccoli, peas, roast chicken and tiny spoon of potato) and then 5.3 two hours after. However she then wanted a snack, as she hadn’t eaten much in the day probably and our routine is all over the place due to the holiday, so she had some peanut butter wholemeal toast, a small veggie spring roll and then 7oz of milk at bedtime. And hour and a quarter after the milk she was at 7.6.
Two hours after puts her at 5.5.

Are these still a little on the high side of normal? She NEVER comes down much below 5 (90) and it seems rare to even come down below that at all.

She is definitely overweight. If I’m honest she is obese. Her diet is not bad so I need to seek advice on this. I think it’s because until recently she has been breast fed and on top of that has had milk too. She would drink milk all day long. My son was much the same and he was a bit chubby but lost it all about 3 years old and now he is skinny - well 50th centile - so absolutely not overweight.
My type 1 dad thinks that if anything she may have slight insulin resistance due to her weight. Would that be possible in one so young? I don’t feel she’s been particularly carb heavy today but then what is carb heavy for a toddler? Also if she is non diabetic more carbs may not have given different results as presumably she’d have just made more insulin.

Her natural level seems to be about 5.5 - that is where it seems to return to.

Any thoughts on this?

I’m just going to do fasting sugars for the rest of the holiday until we can see a dr early next week although if this is early type 1 I cannot see them medicating her at the moment anyway so in all likelihood they won’t do anything yet?

From what I’ve read online over-weight children can definitely have insulin resistance.

So yes, for sure go see your doctor next week and maybe he or she can help you sort this out. You need some peace of mind and you definitely want to make sure she is OK.

4.6 this morning.

All her two hourly ones have been in range but she seems to have fairly high spikes not long after eating. I’ve no idea if this can be normal or not. Usually around 7.5 (130ish I think) so it seems like the insulin is perhaps not responding as quickly as you might expect, particularly in a child who in theory should have faster responses.

However as I said she is overweight for her age so whether this could slow these responses down I don’t know. It just seems coincidental given that I am type 1 and her grandad is type 1. What are the chances that this isn’t very early onset type 1?
I don’t know how long it would be before I would see a rise in fasting sugars if it is. I rang and spoke with the dr this morning on a telephone consultation and he didn’t seem very worried but he is a general practitioner - not a specialist. He advised to keep an eye on the fasting sugars and if I’m still worried next week to book her in for a fasting blood glucose.
I’m not sure that would show anything given that the fasting glucose comes back to around 90 or just below.
It’s the post meal ones that are more of a worry at the moment.

If I wasn’t type 1 I wouldn’t be aware of any of this given that right now she is displaying no symptoms.

It is perfectly possible. In fact for years the “mantra” was that the BGs of non-D people were always in the range of 4-7. These assertions were based to a significant extent on “arm-waving”. There were a number of studies carried out where healthy volunteers had their blood glucose levels measured at time intervals after consuming carbs or even pure glucose. Many of the volunteers showed BG levels of >9 at 60 minutes.

Some of the more extreme advocates of control/ultra-low carb diets dismissed these studies on the grounds that the volunteer cohort must have contained undiagnosed pre-diabetics. However the advent of CGM has made these studies much easier to carry out and the results show that in a non-diabetic population BGs are often outside the 4-7 mmol/L range.

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That’s interesting as most things I’ve read says that non diabetics don’t go about 140 and mainly 130.

I’ve found that around an hour after eating my daughter sometimes - not always - goes up to 8.5ish which is too high but then half an hour later she’s back to around 5.
Is this how the start of type 1 can present or could it be insulin resistance? You couldn’t treat this because she would be low after if you did. So far all fasting sugars been in range (4.6-5.3) and all two hourly post eating also in range.
I am worried that this spike means that her body isn’t handling glucose so well though. She doesn’t even eat that much or anything particularly sweet. She had six grapes today and that pushed her to 8.6 an hour after but then two hours after she was 4.8.
There is a delay between the insulin and the food.

Hi Beth,

your doctor may want to do a hba1c and cpeptide on your daughter, as well as fasting sugar.

If it is very early type 1, there is nothing that can be done from the medical perspective, but observe.

In terms of your daughter being overweight, she is still very young. The best approach would likely be to give her a diet based mostly on real and unprocessed foods, removing all added sugars, and focused mainly on vegetables, meats, and lower carb foods. She will then grow into her weight. Reducing the milk, and having her drink just plain water for hydration, will probably be a sound approach.

Try not to worry too much. What will happen will happen. Your role is feed her a nutritious whole foods diet and monitor appropriately (but likely less closely than you’re currently doing, which is understandable though, given the newness of this and your anxiety)…

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Hi
I’ve kept a close eye on her.
Yesterday she ate normally - she did have another ice cream and she had a reasonably high carb dinner.
The highest she was all day was 7.1 an hour after eating but mainly she was between 4.5 and 5.5

Today has been the same apart from she’s just had a small bar of chocolate.
A few minutes after this she was 9.6
Half an hour after she was 5.6

Is this in any way normal? Or have I just caught this so early that the first phase insulin has been the first thing to go? It started to drop back down after about 10 minutes (8.2) and then I checked her again after thirty minutes and got the 5.6.

I have no idea if she ate loads and loads of sweets if this would cause a higher spike. I mean she isn’t going to but in theory if there’s no issue she should be able to without a problem?

How many times a day do you check this child’s blood sugar? That sounds like a big stressor for her right there. Also, and you probably know this, you should be checking blood from her fingers, not from alternate sites, like the arm. I would not want to check that often.

I’m no doctor, but I really think what you are doing to her is unfair and of no medical benefit. Get an a1c taken from her periodically and be vigilant for the classic symptoms.

Sick kids look sick. It’s hard (almost impossible) to miss. If you aren’t sure she’s sick, then she’s not. People will say things like, “That kid looks really sick!” She won’t feel well. If she were type 1, then she would be loosing weight. She would be thirsty all the time. She would be vomiting.

You seem super stressed about diabetes. There are therapists that specialize in people with chronic illness. You might consider checking in with one and see if you can lower your anxiety level surrounding diabetes. Anything that makes your life better, will make your family’s life better. Its important for their well being that you feel good because your kids will latch onto your emotions. If you are stressed, then they will feel stressed. That will make chronic illness more likely in the long run. Best of luck to you.

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I just replied on your other thread and missed this one, til now. Honestly, leave the kid alone and Stop testing the kids blood so much. The kid is fine, it really is your issue and you may need to talk to someone about it. Although I suggested a max once a month for you on the other thread, testing FBG once a month is even OCD about it. If you don’t get a handle on this, it will get totally out of control.

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Im with you Eric. You seem like a very loving mother who wants to help their child. However Im not quite sure why you think all of these physiological changes are diabetes type 1. I guess I just want to agree with Eric