how is your son doing now and are thare aney updates on hem
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He has more bloodwork this thursday! Thank you for thinking of him!!!
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your very welcome and I will keep prying for you and hem
is thare aney updates on hem and i hope hes doing ok
His numbers are still elevated and endo thinks itās the beginning stages of Type 1 but no official diagnosis. Heās still never reading below 100 but we donāt have a ton over 200 either. Itās just a waiting game and we are doing TrialNet.
He was negative for antibodies and his a1c was 5.3 back when we had bloodwork done.
Thank you so much for asking 
ļø
aww wow you are so welcome and i will pray for hem and you i feel sorry for you both 
Not saying this has much to do with your sonās case (obviously), but that describes me in the very early stages of LADA. I am antibody positive, but am almost always between 90 mg/dL and 130 mg/dL. I can spike up to just under 200 mg/dL after meals if eat a moderate amount of carbs, but Iāve only ever tested above 200 once. While my initial diagnosis was after an A1c of 7.5 and fasting of 187, since starting treatment with orals and eating low-carb, Iām mostly well-controlled.
There is variance in how T1 presents: in my case, itās very slow onset with a slow move towards insulin-dependence. While that is not the ānormalā presentation for childhood T1, itās likely possible. And the slow onset seems to be not uncommon in adults. Regardless of outcome, it sounds like youāre well equipped (if more than a bit overwhelmed for good reason) to take care of your son. I know it has to be tough! I have a 7 mo, and am constantly worried about him developing diabetes!
Iām so sorry you are going through this, the waiting game is horrible and yet it allows you to cling to hope. It seems so bloody unfair that one family would get so much to deal with. I hope you have great supports around you to help you carry the load. Iām waiting on trialnet results for my 2 kids also. My daughter who is 4 has had some strange readings. Lows followed by highs. She occasionally has significant hypoglycaemia symptoms in the morning and they subside within 10 mins of having juice. I tested her on one such occassion to confirm my suspicion that she was low and her bg was 2.9 mmol. I tested her again a couple of hours later and it was 11 mmol. Scrubbed her hands and tested again, still 11. So decided to get them tested with trialnet.
If youāre interested, look up the typeonegrit group on facebook. Very supportive group. They do use lowcarb, high protein approach AKA Dr. Richard Berstein.
There are quite a lot of parents there who are type 1 who have tested their kids and their kids come back with abnormal results. Some kids go on to a type 1 diagnosis, and some kids are still being observed.
I am the diabetic in my family (probably LADA). My 8 yo daughter seems to be developing diabetes. Last A1c was 5.7. Iāve seen numbers for her in the low 200s after eating. Weāre doing better on low carb (fasting has come down from the low 100s to 80s and 90s!) and are continuing to observe closely.
Her younger sister tested with an a1c of 5.2 [Not high, but again not what one would expect from a 5 yo]. Iāve seen results on her of up to about 180 after eating high carb. She is also now following the same diet. Actually, this is a family way of eatingā¦ and though the initial transition was hard (probably more hard mentally than physically), we are doing pretty good.
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Iām in a similar position with my daughter.
How did this pan out?
Sheās nearly always between 80 and 95 but I have found the occasional spike after eating (one hour or less not two hours) of up to 160. This worries me quite a bit.
We have strong type 1 history (me and my dad) so this would be third generational type 1. I just wonder whether it is the very very start of it. Also she doesnāt actually eat much (only a toddler) so I do wonder if she ate more or more sugary stuff if weād be seeing higher numbers.
Our Endo (non diabetic) recently told us that she was wearing a Dexcom CGM for a time. Not that she felt anything was wrong with her BG. Rather, she wanted to have a better understanding of her patients. She told us she wanted to use a pump also but that seemed impractical. Seemed very reasonable to want to gain a better first hand understanding as much as is possible without actually having the condition.
Anyway, she did try to push her BG up at different points and was able to get it up to 170 although this required fairly specific food (ie - carbs, no fat, no protein, eat quick). Most meals she said were more around 130 of a high.
Just as an FYI if it helps at all.
Also as further FYI, two studies I have read about the inheritance (genetics) of T1 indicate a slightly higher rate of children of T1 fathers being diagnosed at T1 themselves as opposed to children of T1 mothers.
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Thanks. Yes I believe it is 1:25 if it is your father and 1:100 if your mother. However I have also read that multi generational type 1 is incredibly risky and it makes future generations much more likely to also have it.
I caught my daughter at 150 after her milk once but Iāve checked her after the same amount of milk since and her sugars have been around 90. Thatās why I wondered if if was the start - because they are a bit erratic. The other couple of higher readings I can kind of understand because she had eaten more than usual and it included some high carb / fast acting food.
Her sugars do currently drop back down very fast on the occasion they do rise. They may have been high other times but obviously I cannot check her thst frequently. All fastings have been around 85 or lower. Two hourly also that.
But I donāt understand those random higher sugars.
I tend towards the anxious perhaps? Even so if this was my child and with no other symptoms - I would not find this to be of concern.
It never hurts to bring up questions with your childās Pediatrician however.
Did you ever get a diagnosis on your third child?
Hello!
We have not received a diagnosis thankfully. His a1c is 5.0 but he is being monitored by our pediatric endo. He has had a couple episodes of ketotic hypoglycemia as well. His numbers are still always in the 100s nowā¦but no 200s so we just test him from time to time and pray for the best. I hope youāre able to find answers with your child!
That is so good to hear. Hoping and praying both of our little ones can bypass this. Iāve read a few places that even non d toddlers have highs during a growth spurt, illness, etc. Hoping that is the case!
Our endo said the same as you! It is a relief for now!! Lots of prayers 
ļø:heart:ļø
Thank you! Same to you!
Any update I feel like this is our current situation &&& itās a struggle not knowing 
Hey yāall! Iām a mom of a 7 year old struggling to find answers. In June of this year my 7 year old starting peeing the bed, had lost 8 lbs, drinking a lot, eating a lot, and we started checking blood sugars her A1C came back 5.6. We started cutting sugar out and her A1C 2 weeks later was 5.1. Her randoms are anywhere from 140-216 her morning fasting averages at 130 (weāve seen as low as 99) We have been diet controlling. We have since seen an endocrinologist for labs and she said possibly very on set early type 1. So far her labs have came back pretty normal Her c peptide was 1.38 fasting (0.90-7.10 normal) immunoglobulin A 44.9 (41-345 normal) her glutamic acid decarboxylase antibody <5.0 (0-5.0 normal) insulin antibody <.4 (0-.4 normal) IA-2 <5.4 (0-7.4 normal) zinc transporter 8 ab <10. (0-15.0 normal). Her urine WBC was high but it was cultured last month and it didnāt grow anything. Her urine osmolality was slightly low and her total bilirubin was low. Her endocrinologist should be calling us back with what she recommends next which might be 2 hour glucose tolerance test. Iām just curious if anyone else has experienced any of this. Most stories I read there kids are in DKA and blood sugars 200+. Iām just concerned and need help.
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Sounds like not a crisis yet but bears monitoring. Real danger signs of DKA are nausea, chemical-smelling breath (ketones) and trouble breathing. Especially that last one. Thatās a trip to the ER, stat.
Because the symptoms arenāt always obvious and people often tend to minimize the situation until something drastic happens. Glad you already have this on your radar, and hopefully it turns out not to be a matter for concern.
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