Momof_35…I completely understand where your coming from. I’ve debated on several occasions if I should continue monitoring my son while we wait for results because at this point it seems to be stressing me out and making me second guess myself more than anything. Thank God my 4 year old has become very good at dealing with his “neurotic mother” (as my husband calls me) because he now wants to try and do a lot of the finger sticks himself. After our Endo appointment yesterday they did recommend some more close monitoring mainly to identify what things seem to put an increased load on his pancreas so we can maybe eliminate or limit those items. I am in the same boat with you. The unknown is the most stressful part. Especially when 1 hour you see an 85 or 90 and the next time a 174. It really makes you question what’s going on and what direction you should be taking. You are doing the right thing. You’ll either have a game plan on next steps if he is on the road to diabetes or you’ll have peace of mind that he’s not and everything is fine. Either way in the long run all the tests, all the pokes will be only a fleating memory on your son’s mind. Stay strong. It’ll all work out the way it’s supposed to. On a side note and an extremely ironic one…im great at giving these words of encouragement but REALLY bad at implementing them into my own life and situation.
Sorry if I created the impression that it was a bad choice. Given the circumstances it was entirely reasonable. We all have to take occasional “diet vacations”, if only to stay sane. 
I was only trying to say that IF he is diabetic, then a 170 number isn’t at all surprising. [quote=“Momof_35, post:80, topic:62190”]
My husband truly believes that our son is in the early stages and has days where he produces insulin and days where he doesn’t.
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And given the data you have to go on at this point, he could well be right; it’s a realistic possibility. The operative word there, of course, is “possibility”.
P.S. In addition to @David49’s excellent advice about a calculator, another very useful tool is a “smart” scale (one that reads out not only weight but carb and protein content, etc.). There are a number available and they aren’t terribly expensive. I use the EatSmart. There are others out there too.
I think a food scale would be a wise investment since my hubby is a T1d and IF Avery gets the diagnosis we’ll be all the more prepared, but I think it would help the husband manage his better.
I’ll take possibility over probability because no one wishes their child ill… I just hate the waiting game. If he is, then let us know so we can make our adjustments and plan if he isn’t then we’ll skip on our merry little way ya know?! LOL… I am no good at the waiting game, especially where my children are concerned.
It is entirely possible your husband is 100% correct.
Ignore what the nurse said about the BG. Pretend you never heard it.
At this point if you test him and he is under 200 - don’t worry about it.
Forget about the GTT.
Wait for the results from the antibody tests. Ignore everything else. Distract yourself. Go watch a movie. Cut the grass. Make a campfire in the backyard. Clean the bathroom floor. Distract yourself.
Mumof_35, I am totally with you. I don’t wish ill on my daughter but I too want nswers to why her body isn’t coping with food. I admit, we do live in a Society where carbs are priority of protein and veggies and let’s face it, I love it as much as my daughter. But I still believe a normal functioning pancreas isn’t supposed to see some of the rises my daughter gets.
We don’t try and make the kids eat low carb but I do try and reduce the carbs so they get more nutrients. It doesn’t seem to make a difference. One day her body yields a 5.4(97) after a meal and another day it yields a 9.7(174) over the same bowl of pasta.
Our GP told me to stop testing her blood sugar and my husband said, um, no. She is our child, we know T1 is a risk, so we will watch her.
onky testing at 2 hours can be misleading. he may go high earlier than that and then come down.
if you are interested in low carb and kids / people with diabetes, the typeonegrit group （facebiok and pinterest recipes）may be a resource.
dealing simething similar with my daughters…no duagnosis yet. onky watching, and trying to manage with diet.
my mom went through ALL of this with my doctors when I was diagnosed. And then my mom demanded to go to the Childrens Hospital, and they helped a lot and taught my mom everything that she needed to know. and then when returned my mom took charge and the doctors listened…and we did change doctors and got a lot better results and proper help …
LOL… it really is easier said than done. I too give sound advice to my family/friends but am terrible at taking advice and worse about heeding good advice, but I appreciate ALL the words of advice and encouragement I’ve received here and I am doing my best to take it all in.
I am doing my best but some of those suggestions seem like punishments, LOL. We did spend 10 hours at SeaWorld yesterday, that was fun, although we did have a blood sugar issue there. The nurse had told me IF he is in the early stages of T1D then his pancreas can overproduce one minute and then underproduce another, especially if he does have a spike or something, it can overproduce to bring it down which would then result in a low and this sort of high-low battle continues with his pancreas fighting itself until it just gives up and quits altogether… I think that may have happened yesterday. We went in to a restaurant for lunch, Avery was playing around with my sister and his cousin, being completely normal, about 45 minutes later when we finally had our food, paid, found a table and sat down to eat, he was different, put his head down and said he didn’t feel right. Being the terrible mom I am I forgot our tester at home so I couldn’t test his bg, but the way he was acting was similar to the one time he had gotten a high spike out of nowhere and it made him not feel well. So he didn’t eat his lunch but he did drink plenty. A few hours later I finally got him to eat some of a big pretzel my sister had gotten, which was the first he had eaten the entire trip. We went to the kid zone and they had a first aid there so I took him in to test his bg and it was 89… so I am thinking maybe had had a spike then overproduction problem which lead from a high to a low and then he started to come back up when he ate. I could also be WAY off base and it wasn’t a bg issue because my sis and I did notice he was warm and yes it’s a Florida summer and we were at a theme park so everyone was warm, but he felt fever warm. I did give him some Tylenol and he cooled a bit and when we got home at 11 pm I took his temp and it was 102 so maybe he’s just getting sick…
I find menial tasks to be effective distractions. Obviously this would be individual.
lol
Don’t overthink the “spike / overproduction / low / whatever”. Interesting thoughts. Not sure if I really buy that and don’t recall anything like that being discussed at our classes or any doctors.
Really - if he is coming back down after eating than just wait for the test results and go from there.
So Avery had a fasting of 147 this morning and his hour after breakfast is 238, confirmed twice on 2 different fingers.
Check 2 hrs after breakfast. If he is back down then just drive on with your day. Hold fast and wait for the testing results.
Just did his 2 hour check… it’s 297
I posted a bit after I checked him because I did other things first.
That is concerning. Did he eat additional? Test again. If it is not coming down then you should call your Doc and/or head in to the ER.
Make sure to wash his hands before checking. Around the 300+ range, wash hands and test once the one hand then once the other hand. Just to eliminate possibility of error. I do this with “unexpected” results.
Agree. A number in the 300 range calls for a proactive response, before it gets an opportunity to really spin out of control. This is danger territory, or at least the outskirts of it.
@Tim35 no he didn’t eat or drink anything (aside from water) since and he’s complaining of headache and dizziness.
We are in the Pediatric ER now.
Oh wow I’m just seeing this!!! Prayers for your little one!
Thank you all for your concern, prayers and support. We are home now. By the time we got to the ER and they had checked him in, ordered everything and took a glucose reading he had fallen back to a normal, 124 reading. They said that because he didn’t warrant treatment or action from an “emergency” standpoint and that IF he was as high as we claimed he was and was normal now he’s clearly producing insulin so didn’t meet any diagnostic criterias there was nothing they could do and suggested we follow up with an endocrinologist.
Oh, also I finally saw 1 c-peptide test result… it was on the paper the hospital gave us from his labs Thursday, all it said was L1.0… That’s all… what on earth does that mean?! No explanation was given or even mentioned at discharge.
That sounds low. Low c Peptide is indicative of heading towards T1.
But I’m not sure of your reference range