Hi! New here.
I am a 2nd year college student, diagnosed about 4 months ago with severe insulin resistance and hyperinsulinemia. Every day I get highs (up to 200) and lows (down to 50). I am on Januvia for the hyperglycemia to help prevent T2, but the lows can prevent me from doing basic things everyday (driving, going to class, etc.)
All that to say, I'm feeling pretty helpless right now. Continuing on in school is difficult when my blood sugar is constantly dropping and I am doing everything I can't do anything else to prevent it. I've also had to leave classes occasionally. I'm afraid my friends, peers, and professors are getting sick of hearing that I can't do something because of my blood sugar. This past week I had a bad hypo episode while driving and since then have become more fearful and upset.
I don't really have anyone who understands what it feels like to get these highs/lows or to be so out of control when it comes to your own body. I am also feeling really frustrated with my situation as a college student, trying to move forward with my life, when I can hardly control basic things.
Any words of wisdom or advice would be much appreciated!
Many people find that a low carb diet can really reduce the highs and lows, particularly if you are insulin resistant. Has anyone talked to about diet?
Hi! I actually have been pretty careful with my diet. Higher protein and avoiding carbs unless it's with a balanced meal. I also try to stay away from simple sugars (but I am a college student...it happens!)
I don't want to be a bummer but if you are hitting 200 on your highs, you aren't "prediabetic" according to most standards. Are you seeing an endo? It sounds like your patterns are complicated enough to require a specialist.
I am seeing an endo, since last spring. I've hit 200 or above 3 times before. Twice as a post-meal and once during my GTT. My endo hasn't said otherwise on my diagnosis and is mostly focusing on lowering my sugars and reversing the highs.
The actual diagnostic criteria for a diagnosis of diabetes is a blood sugar > 200 mg/dl 2hrs after a meal or a random reading > 200 mg/dl AND symptoms of polyuria, polydipsia, polyphagia (peeing all the time, excessive thirst, great hunger).
If you just have a 200 mg/dl randomly without the other symptoms, you just get a diagnosis of pre-diabetes. I know, it is stupid, but that is the guideline.
If you hit 200 mg/dl at 2hrs in the GTT, then you should have properly been diagnosed with outright diabetes.
Hi I am a type 2 and for a period of time I had the same issue as you when I was on januvia. It was a wild high low swing ride. I am a software engineer and I am pretty high in the food chain so I had to make things work if not I would be jobless. and i figured out a way to make things work. I did stop taking januvia and stuck with diet and exercise and metformin. The biggest thing for me was constant testing and figuring out how food impacted my glucose levels. I tested before I ate something and tested 30 minutes later to see what the impact was. I never eat something without testing. I before meetings I test. I bring juice with me everywhere I go. I hate lows with a passion so i think I have become a testing nut. I test at least 12 times a day. The funny thing most endos only expect one or two times a day. I use about 1100 test strips every three months. Kinda expensive but it would be worse if I got a lot of lows and got fired. It will work you just have to figure your balance.
I would be living at the Endo's office if I were in your shoes. I don't mean the college health office, either. Depending on your college, if it is a university there might be a specialist there, but if you have a specialist, the specialist isn't treating you fully, no matter. Januvia isn't working for what's going on. Are you writing every event down for him/her? Time of hypo, hyper event, what you ate, time you took whatever drugs are being given. Day by day. This is a situation where the doctor has to make room for you, an ER has to refer you, a college health office has to refer you, and you have to make arrangements with the college administration and each one of your professors for how you are going to finish the term. I've been on the professor and administration end: it can be handled with them. Save yourself some room - if you can go to class, great. If you can't, each professor has wiggle room unless he's leaving for Fiji at the end of the term. In that case, get him to name a substitute/actor in his place.
Write it down for two days and insist on being seen by a specialist. Get a second opinion.
One area that you might look into is the level of stress in your life and how your deal with it. Elevated stress hormones can reek absolute havoc on diabetic control. You may not even be consciently aware or even that stress is a factor but trying simple stress lowering techniques daily can only help.
At this point I would take matters into your own hands and start a testing program to determine if it is one particular food or food group is causing the problem. You need to test before each meal and 1 and 2 hours after. This approach is often abbreviated as "Eat to Your Meter" The usual culprits are grains and potatoes and other starchy vegetables, but everyone is different. You may be able to do fine on modest portions of whole grains, or perhaps like me, one mouthful of any type of grain will send your blood sugar soaring. Many T2's need to pay attention to the source of the carbs and not just the number of carbs. The http://www.bloodsugar101.com/ website has a more detailed explanation of how to do this little science experiment.
You guys are awesome! Thank you so much for all of your thoughts.
I am seeing an endo who has really been wonderful with all of my phone calls and such. But I do wonder about the 200+ numbers and if I should wonder about the prediabetes/diabetes diagnosis. I'm just trying not to harass her too much. (I'm expecting a phone call from her today, I'll ask her.)
I think I will try monitoring food/blood sugar relationships more closely. It is very difficult since I'm in college and so busy. Between classes, homework, and work I'm always on the go. Plus I live with six girls who eat very different than I need to.
Thank you so much for your advice about the professor end of things. I often find myself stressing about letting my professors and peers down, but right now this is simply out of my control. I do communicate with them as much as possible and get my work in and on time.
I am also associated with the Disability Services at my school, but my endo is in my hometown about 30 minutes away. I'm just doing the best I can so I can stay at my university.