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I see. I’ll give it some thought. The first thing that pops to mind is Katie DiSimone’s blog, but I don’t know if she maintains that or if it would be completely relevant with changes in Loop since she wrote it…I can’t find it!

I will return if I come up with something. :slight_smile:

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Here’s Katie’s blog, See My CGM. https://seemycgm.com/

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that’s a great blog! Sparse looking but content is excellent.

I’m trying to keep my post over at DD up as best I can.

My latest problem is that I’m roller coasting and running high at the same time. Looks like I just need to bite the bullet and do the basal testing like her post says at https://seemycgm.com/2019/05/14/juicebox-method-to-loop/ .

OMG, BradP, you didn’t test the basals? I wish I had a good “shame on you” meme - I am giving you a disappointing look, lol. You are “cowboy-ing” around with this thing. :cowboy_hat_face:

They talk about roller coaster-ing specifically as indicating an improper setting, in particular. I’m gonna find where thats cited while you test the basals.

I had mine set perfectly a month ago, but they have come out of alignment and I have to do them all over again. :frowning_face:

Formal basal testing is a bit of a pain to do but it is worthwhile. Changing basal rates, however, is not a set-it-and-forget-it one time exercise. Diabetes is a dynamic disease and until you learn to roll with the punches, you’ll struggle to keep up with the latest mayhem diabetes invokes.

What I’m trying to say is that you need to learn how to test your basal rates. Once you do that for a while, you’ll start to get a gut sense of what’s needed and then be able to make changes on the fly without having to go through the formal process.

I think of this like a jazz musician. An aspiring jazz musician studies the rules and diligently follows them. Once the rules become second nature, the creative musician can start to improvise and elevate the music to a higher level. You have to religiously stick to the rules before you can then deliberately and strategically break them.

For great diabetes management you need to be willing to do the tedious work while learning how your personal glucose metabolism works. Once you know the nitty-gritty of your situation, you can improvise to good effect.

Having said that, I know from long experience that diabetes is never a puzzle permanently solved. You have to observe, experiment, analyze, implement and iterate.

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Howdy

So good that you are on the journey!

I’ve got a blog:

I was on OpenAPS for the first year and have been using Loop for the past two months. Trying to flash an Edison today to set up another OpenAPS rig so that I can try the dev branch of OpenAPS and also hoping to set up AndroidAPS. Not sure how I’ll go as I’m far from technical. My partner helped me out with the first rig and now I’m pretty much trying to figure it out myself. It’s a headache. CGM is almost prohibitively expensive, but after 39 yrs+ of t1d, I’m feeling a strong urge to live the dream. Will try to update the blog as I go in case it’s useful to others.

I also wrote up my experiences for the Australian Diabetes Educator journal which was published last week . You can find it online here:

cheers, and Good Luck!!
Mary Anne

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Thanks a bunch, @MA11!

Great reports, Mary Anne! I listened to the ABC (Australian Broadcasting Corporation) 17-minute radio explanation of how these systems work. It targets a non-diabetic listening audience and explains the challenge of diabetes in an accessible way. I particularly like their use of the term, Goldilocks zone, to describe the ideal glucose zone that resides between the twin dangers of hyper- and hypo-glycemia.

Your three 3-month Dexcom Clarity AGP reports showing the three months before starting to loop (OpenAPS), the first three months of looping, and where it settled many months in are highly persuasive.

35%20AM

I also like the point made when addressing the almost immediate and reflexive criticism offered by people first exposed to the concept of do-it-yourself experimental glucose management, that it is not safe. The point is well made that the pre-looping treatment plan adopted and authorized by the traditional medical establishment is much less safe than a thoughtfully adopted DIY looping system. DIY looping improves personal safety.

By the way, I did have to look up the meaning of the British English, “bespoke,” when referring to the DIY system. I learned that it means customized or made for a particular customer or user. I love hearing/reading the wider vocabulary usage on non-American English!

Thanks Terry!

I really love your summary of what you found most pertinent. And yes aren’t ‘bespoke pancreas’ and the ‘goldilocks zone’ delightful terms. James Burren, the producer of the ABC Health Report and Science Show, was such an intelligent, compassionate and respectful interviewer. I loved the way he put that story together.

I think listening to that show was the first time my kids and my 83 mother actually finally understood what it’s like to live with type 1 diabetes!!! It’s good to have both references to point people to and I’m hoping can also add just one small voice to an argument for funding/subsidising CGM in Australia.

I’ve found that starting Loop two months ago has put me onto a new learning curve. I’m still ‘learning to drive’ it. So for me, there’s the initial improvement offered by the system itself, then for further benefits, there’s a behavioural component and tweaking of settings required which takes extra ‘head space’.

Thanks again for the feedback. So glad we finally have these tools!

Mary Anne

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Heres where they talk about roller-coastering in the documentation. How’s it going lately? I am inputting my settings for the 1st time. As much prep work as I did, I do still feel like I am “cowboying” it. Lots of unknowns. https://kdisimone.github.io/looptips/settings/settings/#3rd-insulin-sensitivity-factor

I find that this definitely has a learning curve but I like learning! Before when it was my ‘dumb’ pump Omnipod and Dexcom G6 that didn’t talk to each other, settings weren’t as crucial. Now they are!

Yea, my settings for meals might be a little messed up. I will definitely have to do some fine tuning. I think it is helping eliminate the extremes of BG a bit so far. I’m not gonna post any data until I have a week of it, though. I just started. My basals were perfect, but the other settings are kinda a crap shoot.

I started using the jojo branch a few days ago and am finding that it gives me tools that were missing from the 1st generation Omnipod Loop. You can also use jojo with Medtronic. It essentially allows me to use override temp insulin increases or decreases. It is similar to temporary basals although I think the override applies to all insulin delivery. Because I seem to have significant differences in insulin absorption with Omnipod from site to site, this allows me to increase insulin rates for pods that aren’t working as well. And then if I have sticky highs for other reason, I have a tool to help bring it down. https://github.com/Kdisimone/Loop/wiki?fbclid=IwAR3iaClOO3ET9Fk2-dbTfU1EBxbzRd7ehd79GIRvUzcqYtXDnf8bNpjed_s

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Brad, I enjoyed reading your post on Diabetes Daily. One of my favorite parts of Looping is that my phone is the controller. IMO having a second phone is just like using the Omnipod PDM that I totally despised. In fact I bought a new phone before setting up the link because my old iPhone was dated. My 11-year old grandson is thrilled to have my old phone as his first phone. But what is wonderful about DIY tech is you can do it however you want.

I have been amazed that most of my setup and then the transition to JoJo have been relatively trouble-free. I must follow instructions really well because although I understand diabetes, I am brand new to having an Apple Developer account and creating an app.

Good luck and I look forward to hearing how things are going with your diabetes science experiment.

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I totally agree and would love to cary 1 phone not 2. Unfortunately my son and I are in a 2 year contract with AT&T and got the Samsung Galaxy S10+ before I decided to loop and I love android, so am not wiling to switch. It was a cheap phone and I have a cheap plan so it works. That’s also why I chose the SE. Small phone and cheap used.

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Me, too!! I love Loop, and like you, I’m using the Jojo-beeps branch. Initially, I had huge problems with pod absorption and also G6 sensor failures. This took a few weeks to resolve with great help from the looped fb group and zulipchat forum. The last couple of weeks have been devoid of these issues and Loop has been keeping me in the 90+% time in range and standard deviation under 20%.

I don’t have the link, but Mark Yeager’s comments on pod absorption issues on zulupchat really helped, especially the point about shaking the syringe a few times to accumulate all bubbles at the far end of the syringe and then NOT insert those bubbles!! I hope that will help you as it has me. I also moved the pod from my arm to my abdomen. Arm just doesn’t seem to work for me.

I’ll have to investigate Zulipchat again. I signed up for it during my prelim work to get set up with Loop and can’t remember what my roadblock was for getting into the forum. Meanwhile I have been hanging out in the Looped Facebook group.

I have been whacking the syringe with a toothbrush and repeatedly pushing out bubbles, but I have never tried shaking the syringe. I haven’t tried my arms with the pods because I use my arms for Dexcom. Plus I’ve gotten some ugly bruises on my abdomen and legs and I am not willing to have those battle scars on my arms.

I’m still working on basals. What I have is working but I still have too many insulin shut-offs. I had my basals somewhat lower and then Autotune said they should be higher. So I’ve been giving that a try. Quite an adventure.

Glad you’re having good success with jojo-beeps.

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I haven’t used Android in years and am roped into the Apple universe with an iPhone, iPad, and MacBook. I know that many people more techy than I am prefer Android. Apple has been a very good decision for most diabetes tech although ultimately it looks as though Insulet is going with Android.

It’s great to see the looping discussion take root here at TuD! I guess it just takes a critical mass of enough people to make it useful.

I’ve enjoyed reading all the comments from @Laddie, @Trying, @mohe0001, @BradP, @MA11, @Lorraine and others.

While I have not used the jojo branch, I have employed that idea in a more manual fashion. I set a temporary low target (Pre-Meal), like 65 mg/dL (3.6) when I’m trending higher than I’d like and then a temporary higher (Workout) target when I’m trying to treat lows without glucose tabs.

I think of this like pressing on the accelerator or brakes for the car to control its speed. I also use Afrezza to smack down glucose trends that are higher than I’d like. I realize that that is not a looping technique but it works so well for me that it takes away my motivation to learn something more sophisticated.

In any case, welcome to all the new looping activity at TuD. I also regularly visit the Looped Facebook group to learn from a much larger group over there.

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Here is the link to the zulipchat on pod absorption resolution which really helped me:

https://loop.zulipchat.com/#narrow/stream/144615-omnipod_users/topic/Slower.20insulin.20absorption.3F/near/166178297

If you can’t access zulipchat, let me know, and I’ll copy in the important parts of the post by Mark Yeager.

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