Retyped

Hang in there Jim, you'll start to feel better once you learn how to take the right amount of insulin with the right foods.

Are you taking insulin and checking your blook sugar levels regularly?

It's funny, I was originally diagnosed as a Type II, and fell into such a depression when I found it was Type I from my endo. Now, 14 months later, I am proud to be a Type I.

Checked the wrong box....silly mistake.

1.5 is a type (sub-set) of type 1. It just develops in adulthood, and the pancrease is still making a very small amount of insulin.

Did any of you notice a big change in BG spikes after meals after type 1.5 diagnosis?

If you were on metformin and glyburide and insulin and now only insulin, did you notice how difficult it is to keep BG lower?

For me, the oral meds stopped working a few months before I started on insulin and my numbers were very high. So as soon as I started using insulin the numbers started coming down. But I think for people who get on insulin earlier they might see a spike in numbers because it takes awhile to get the I:C ratios, basal dose and ISF right and be using the right amount of insulin. (Not to mention learning to count carbs, and which things you just can't eat!). I think there is a steep learning curve to learning to use insulin, so it takes awhile before you get stable.

I am very confused... according to the doctors I am type 2. but from what I am reading is that I might be type 1 or type 1.5.So I am wondering if I should have it checked again? a little back ground. I have fought with my sugars my whole life was hypoglycemic as a child. About I have been on insulin for almost 3 years. my current doctor changed me back to the oral meds last summer because I was doing well my ac1 was down to 6.7. (last ac1 was 6.5) I asked to go back to the insulin because I felt better had more energy. I have done 2 half marathons and several 5ks and race between there. I love running mostly because it keeps my sugar under 200. most of the time. I am looking at doing a full marathon this fall and was looking to see what I need to do to stay healthy enough to finish without crashing on the course. So I found this site. now I have more questions about the big D in my life I want to control it not it control me. thank you for any help on this issue.

Hi Wayna: Misdiagnosis is really common. Sadly, I think that most adult-onset Type 1s to this day are usually misdiagnosed as having Type 2 diabetes. I have written several blogs on misdiagnosis, including A Field Guide to Identifying the Misdiagnosed Type 1 Diabetic and Bill of Rights for people with adult-onset Type 1 diabetes. See if those are helpful to you or you can relate. The way to find out if you have Type 1 autoimmune diabetes is via autoantibody testing (GAD, ICA, IA-2) and c-peptide is also useful. The important thing is that you are being treated with insulin. But a correct diagnosis can help you get better gear, including a CGM or pump.

Sadly, this is true. I went through THREE primary care providers before I could even get a GAD Antibody test, a referral to an endocrinologist, AND finally--four days ago--a prescription for insulin.
When I told them that I was constantly losing weight and needed help with food I was told to, "Go to GNC and lift weights." I never wanted to punch someone in the face that badly before.