History: I was born with something called congenital hyperinsulinism, a condition that causes the pancreas to over-secrete insulin. For most of my life, I took a medication called diazoxide to keep my blood sugars above 70 and in the normal range. I was always told growing up that I would be at a much increased risk for developing diabetes. All throughout my childhood and early adulthood, my BSL rarely was above 100 (even after a HUGE) meal.
I am now 32 and recently went to an endo for the first time in, well, a long time. He basically said I am probably “pre-diabetes” because my beta cells are “burning out” from years of over-production. I am very fit (run, play lots of sports, etc), not overweight, and eat a fairly healthy diet. He said at this point, there’s probably not a whole lot I can do to slow down the progression of things.
So my question is - what do you blood sugar levels have to be to be considered a diabetic. Right now, my blood sugar levels are swinging from around 45-55 (at my lowest poitns) to a bit over 200 following some meals. There’s no rhyme or reason to my BSLs - the lows I’m used to, because I’ve had that all my life and know how to deal with them. The highs, however, scare me. I’ve never seen numbers over 100 before and to see 200, 216, and 220 on a meter following a meal is, for me, frightening. Ironically, my A1C came back normal, probably because I still have some really wicked lows.
Has anyone been through this or something like it? Do I just get to sit back and watch my pancreas slowly die? I’m not sure what I should be doing, everything just feels a bit out of control…