It has been a while since I have been on here.. Lot of problems in life specially recently.
I was dx'd 5 years as a Type 2 even though I don't fit the typical profile.
I was told I made plenty of insulin and went on Metformin. I am skinny and always have been..
After the initial shock and being afraid to eat anything for months, I was able to keep bgs down ok by eating like a gerbil...
About a year ago, it wasn't working anymore..Even if I starved myself and ate nothing it didn't go down. I got a new job a year before added more stress to my life etc.. But I don't think that is the reason things started getting worse.. They up the Met 1750 Er _ i have a hard time swallowing these and have choked on them periodically and gagged on them..
So a new GP put me on Januvia 50mg in addition to the Met. It seems to work after week and than stopped working after a month...This was this past August... My waking numbers ranging from 140 to 180 almost all the time no matter what..
Anyhow at the suggestion of a friend who was starting on insulin and was finally seeing a specialist.. I found one that is a specialized diabetes clinic near me.. I am happy there is one.. All they do is diabetes...
Anyhow, after many years, of other diabetic folks telling me I am probably Type 1.5 (LADA) _ and I thought this too!! I finally got to see a specialist..I had to wait two months but she is great! (Kolver Diabetes Center at UIC in Chicago)
We went over everything about me and my numbers and she was convinced I would test as an LADA or Type 1... Well, all of the test were run and ...I am not.. I still remain the medical mystery of Type Weird...
Test that were run for diabetes:
GAD65 AB Assay
Islet Antigen 2 (IA2)Antibody, Serum
My C-peptide was finally run again.. No one would do it again until I saw this new dr (she is a endo specializing in pedatric diabetes)
C-Peptide Range: 0.30 - 2.35 pmol/mL Result: 0.77
So that is towards the low side.. I am trying to get a copy of my first one... where they said I made tons of insulin.
I don't have a support network really just some FB friends..I do not talk to my parents, I am dating someone new and he is isn't giving me the support I really need about this..I am sad because there still aren't any answers for me...
Right now, she is upping my Januvia to 100mg and the Met will be 2000 a day but I am getting smaller pills.. maybe not the ER ones.. I did find out that my insurance covers strips and I am getting a better meter (Contour Next!)
If the new Janvunia/Met Combo doesn't work, than we will move to some of the new non-insulin injectables out there.. I heard Victoza was working for several people...
She isn't against giving me insulin at all and we will that direction if needed... I want it because I am very exhausted - I can tell that nothing I eat gets converted into energy...Metformin doesn't help with that and neither did the Januvia..
I try all sorts of foods and vitamins combo hoping it will help.. nope. She actually tested my Vitamin D and B 12 and they were DOUBLE over the range.. so at least less pills for me to swallow.
Wishes for the zillionth time in my life that I didn't have diabetes... Very few people understand how it feels to feel like you are dragging chains around your ankles because of the tiredness...