The Angiogenesis Foundation seeks a diabetes patient advocate for DC summit, 6/29/2015

The National Multi-stakeholder Expert Summit on Diabetes and Vision Loss will be convened on Monday, June 29, 2015 in Washington, DC. This is a closed-door high-level expert collaboration is part of the Foundation’s work with the Clinton Global Initiative to address patient, clinician, and system challenges with non-communicable diseases. The summit’s goal is to assess the impact of vision loss from diabetes on patient centered outcomes, identify preventative measures, and define a critical research agenda and actions to improve care delivery, and healthcare utilization of emerging effective treatments.

The Angiogenesis Foundation is looking for someone who would be comfortable speaking in a private forum about their experiences and values as a patient. If the person has experienced vision loss due to diabetic retinopathy or diabetic macular edema, this would be the ideal representative, but vision loss experience is not a requirement. If you are interested please contact Diana at dsaville@angio.org

The Angiogenesis Foundation will convene approximately 20 key vision loss stakeholders representing perspectives in research, clinical care, guideline development, professional associations, health policy, and advocacy. The sessions will be highly interactive, professionally moderated, and graphically facilitated with short presentations and group workshops.

This summit follows the Foundation’s global work in Europe and Canada, and will examine strategic issues in the U.S. to generate recommendations for promoting awareness and education, examining eye interventions for patients with diabetes, and encouraging policies related to early diagnosis, access, and treatment to improve overall health outcomes.

The result will be a white paper published by the Angiogenesis Foundation informing clinical associations, payers, technology assessors, researchers, and other key decision makers of the Summit outcomes. The report will follow on the Foundation’s International White Paper on diabetic vision loss, which can be downloaded here: http://www.angio.org/wp-content/uploads/2014/02/DME-Intl-Summit-White-Paper-Report.pdf.

This post has been approved by the TuDiabetes Administrative team.

It would be best if this representative could have experience with dealing with issues such as macular edema and navigating the treatment regimes with things like VEGF

1 Like