Thrombocytopenia


#1

I started using tresiba (21 units) on May 3,2018. O may 31 I had bloodwork done and my platelets were 115 down from normal 210. I went to Mayo Clinic and did a battery of tests including bone marrow and a spleen scan and lots of blood scans. Good news, no cancer found. Just had my 6 month endo visit (ao1c 6.1) and platelets have dropped to 41. We researched drugs and supplements that I use and tresiba fits the time frame. Has anyone in this group had a similar experience. I am going back to the hemotologist in January. Just trying to figure out why my platelets continue to drop


#2

Maybe easiest thing is to replace Tresiba with Lantus, and see if things improve. 41 is very low.


#3

My sister has thrombocytopenia. She ended up having her spleen removed after all other efforts failed. She’s doing much better now with monthly infusions of rituximab.


#4

Skipster - Have you recently / ever had chemotherapy?

I’ve suffered from low platelets ever since I was on cyclophosphamide in the early 90’s. It’s chronic now as my body simply won’t produce them.

It’s a challenge every time I have IV infusions or even test my blood glucose. Unless you’re careful you’ll exsanguinate


#5

No I have not,sorry to hear what you are dealing with. I am hoping to figure out if diabetes meds could be causing my platelets to drop


#6

I used lantus for 4years. Seeing my hemotologist at mayo jan 10 and will offer this option. Thankyou


#7

Yes, after research on internet my endo and I decided to switch back to lantus.
Keeping my fingers crossed