I don’t think this is a widespread tendency, Sam. I long ago accepted that a lot of what I do with diabetes tech and treatment is non-standard. I’m comfortable with my residence in the skirts of the bell-curve.
A pump, new insulin formulations, a CGM – they’re merely tools in my book. Human beings are at our creative best when we don’t accept the apparent limits of any technology. That’s when breakthroughs happen. And after a while the breakthroughs are so thoroughly adopted by the mainstream that they’re not seen as novel or creative any longer.
The things that have made my life with diabetes so much better have, to a large extent, come from people with diabetes tinkering around the edges, experimenting, and finding a better way.
The extended bolusing available on a pump is a good example. That feature was available on pumps long before I finally read reports of people figuring out how to dose for protein and fat when using a carb-limited diet. When I tried their techniques and they worked, I was thrilled. It improved the quality of my life a lot. Some people write off techniques like extended bolusing for protein and fat as exotic and needlessly complicated. It can look that way when you first consider it but looking in the rear view mirror, it looks simple and makes great sense. Simplicity and complexity can be a matter of perspective.
I do worry about taking care of my diabetes when I can no longer do it. When I look at the state of our health care system, I have no illusions as to what I can reasonably expect. Most health care givers, even the credentialed ones, would probably fail diabetes 101. What can I do about that?
I can document what I currently do including my pump settings, basal profile, insulin to carb ratio, my insulin sensitivity, etc. But what guarantee do I have that a nursing home I may end up in will follow any of that? It’s a frightful thought and one that I can’t waste much energy on. It falls under the heading of the “things I cannot change.”
In the meantime I will continue to tinker with my diabetes tools because I can. I benefit from this tinkering and it’s not just a rhetorical question.