Type 1, Vegan and my numbers

Fabulous control means fabulous numbers @Marie20

You’re a perfect example of a longterm diabetic who’s embraced technology and adapted your preferred diet for exceptional control. If I was your doctor I’d want you to speak to newer type 1’s to demonstrate what’s possible when you decide to control your disease rather than let it control you.

Congratulations - remarkable :star_struck:

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@Helmut I never seek to limit my carbs except I have a tendency to not go over 30-60 per meal. But if I want to eat pizza I do and I eat as much as I want.

Typical day would include fruit as snacks, bowl of veggies with tofu or seitan , then maybe lasagna, veggie burger, sandwich with a side etc as my bigger meal. Throw in a cookie and a piece of dark chocolate and some soy milk for the day. Most days are probably under 120-150 carbs and not that high in calories.

Most of my foods are not high fat so prebolusing and bolusing is easy, a half a hour before I eat and the rest when I eat. I do have to guess sometimes and I don’t always finish what I served myself, but that is the beauty of the second half of the bolus at my meal as I can adjust it. And a higher carb meal like pizza sometimes calls for an extra punch a half hour to hour after I eat, my pizza is not high fat, I think it is the absorption of a slower more food, higher carb, 100 carbs? at a meal for me.

The beauty of a CGM tells me how I am doing and if I need to make an adjustment. The beauty of retirement allows me to get on the exercise bike if I see my arrow going up more than I expected. I will not eat a meal I have to guess at and leave the house because higher numbers annoy me lol! I also will not eat a meal if my numbers are say more than 120? But I prefer to eat when I am at 95-110.

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@David48 I agree, while I personally would never consider a diet other than vegan or vegetarian. I have always said eat what is best for you to control your blood sugars and makes you happy.

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@Allison1
I have been a type 1 for 16 of those years. I am 62 now. :slightly_smiling_face:

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That is awesome! What I meant was, if you can be vegan that long, you must have it figured out :wink:

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Great numbers no matter how you get to them

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@Marie20, thanks for your very detailed response. I think I understand what makes you so successful. The common denominator is discipline. This is what I am lacking. I am definitely intrigued by the abundance of 100% days. Having seen one 100% day myself, I am definitely eager for more.

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I just would like to add, that your level of comfort, and control, may be a little different from others, but still be fine. Personally, my A1c is better when between a 6.5, and a 7.0. It may sound a little higher, than what is acceptable (medically,) but if I keep mine any tighter, I suffer from extreme lows, at times, and it works out better (for me) to keep mine in that range. I see the doctor(s) regularly, and keep my blood pressure, cholesterol levels, etc… low, and have no plaque (anywhere) in my body. So for me, an elevated, to normal-ish A1c, is acceptable. I think that my insulin sensitivity, plays a role in my choices, but so far, it has paid off.

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@Poloplayer 6.5-7.0 is fine, in fact I believe that’s the range doctors prefer to stop lows. I used to be 6.4% for a while and I was happy at that and I probably would still be happy with that. With a Dexcom and the alerts that allow me to adjust highs or lows easier it was easy to drop my percentage without doing anything different other than responding faster to changes.


Avg. 4.7
A1c: 4.6%
Std: 0.5
Type one 42 years. MDI.
Range: 4.0 to 6.1 100%
(see image)

Complications have been shown to start from > 6.1.mmol. You can have normal bloodsugars without having hypos, you wouldn’t know it because your not taught how or shown better. Doctors would have you suffering painful complications. I should know, im trying to undo all the ones ive collected, like autonomic neuropathy of the vagus nerve.

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@Edward2 There is some talk about 6.5% not having complications from that level of A1C. And while I have aimed lower I’m not sure there is enough proof that the lower A1C’s are better than the 6.5-7.0% range.

Here is an article from Sept/2019 from a study released last August.

And if someone is happy with that range and it helps keep them from to lows, then for them it’s better and I’m not sure there is enough research out there to say they are wrong.

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So good to see your excellent results over an extended period of time. I would love to be vegan but love fish too much. I also consume some dairy and occasionally eggs. But for the most part my diet is vegan since I limit it to a ton of vegetables, tofu, other soy products, soy milk, a limited amount of fruits and some amounts of carbs. I am still in the experimental phase of all of this. I have had diabetes for over 47 years with no complications. I attribute this to my activity level, choosing not to eat things just because they would taste good such as excessive carbs and the amazing advances in treatment, such as the availability of insulin pumps and
CGMs. Keep us all up to date on your continued progress. Way to go!!!

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I appreciate your input. I actually tried the cgm, but have not been successful in keeping it place. I exercise to the extreme, daily, therefore perspiring a lot. I can keep my pump site in, but not the cgm. I, personally, never wanted to wear anything extra, so I feel my success (this far,) is sufficient. I am a
competitive bodybuilder, as well, so I hide my pump sites, anyway. I know I’d be better off with cgm technology, but hope I wont need it until it is small enough to be easily implanted! Lol

I would take the “No Benefit Found for HbA1c Below 6.5% in Type 1 Diabetes” study with a grain of salt. Quote from the article: “The findings, from more than 10,000 children and adults with type 1 diabetes diagnosed between 1998 and 2017 …”. None of the subjects had diabetes for more than 20 years. I developed complications after 25 years. My A1C typically was 6.2%. I will be dead by the time a study comes out that covers a lifetime of diabetes. Trying hard to keep my BG as normal as possible does seem like a reasonable insurance policy. My complications provide motivation that I was lacking before.

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@Helmut I agree probably lower is probably better, we all know the doctors are paranoid about lows and you really can bend stats to whatever result you want out of it.

I just think that someone that is within the 6.5-7.0% range might be okay in the scheme of things and that if they are happy with that range and it keeps them out of hypo’s that they can be okay with that. And most doctors will tell their patients to aim for under 7%.

But for those that can and still keep good control, lower is probably better.

A1C for most diabetics is just a number. It does not reflect the highs and lows that got them there and unless they are having their A1C performed by a lab that has their equipment regularly tested and certified, the A1C these patients are getting is only accurate within .5%. If a person is on a Dexcom CGM, comparing Glucose Management Indicator, although not perfect either, will be a much more accurate comparison to another patient also on a Dexcom. Then there is the Standard Deviation which is just as important.

@Marie20, I have no idea whether 6.5-7.0% is ok for everybody else. It was definitely not ok for me. I don’t fault doctors for being paranoid about lows. I am trying to go as low as I can while minimizing severe lows. How did I come up with a number? I figured that I wanted to stay 2 standard deviations away from a severe low. My SD is 20. 55+2 *20=95. Thus I am shooting for an average BG of 95 and I am right there. When I was on MDI without CGM my SD was 50. It would have been irresponsible to attempt 95 at that time. 55+2*50=155. I ran my A1C much lower than that and had quite a lot of severe lows.

It’s good for people to hear what wasn’t okay for them and what standard deviation even is. I didn’t have a clue about what it was before my first CGM.

I’m glad your diet is working so well for you. Thanks for posting!

I am not vegan, but my diet is fairly close out of necessity, as I can’t eat dairy or eggs, can’t eat most processed meat, and choose not to eat much red meat. So I eat chicken and fish and otherwise vegan (I do eat things like gelatin on occasion).

I am still striving for control as good as yours! :slight_smile:

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