Vindicated

I have been using my Pump for 9 days now. As it’s an OmniPod, it’s actually been 4 different ones (1 pod lasts 72 hours & I knocked one off during a hypo - thank God!). Do I like the pod? It’s good being able to attend a meeting, have a piece of cake (like everyone else) & only need to press a few buttons to bolus for it.

I did a basal test from 02:30 to 06:30, I think my 04:00 - 09:00 basal should increase slightly. Tonight, I have to remember not to have a bedtime snack & to have an early dinner. 12 years & enough nocturnal hypos for me to know the Paramedics & their hobbies, have made the bedtime snack a habit, even though it didn’t stop the hypos.

I saw a DSN yesterday, as she made me a ghost appointment. I have invented the term, as I saw the Nurse at the end of clinic, in an appointment slot that didn’t officially exist. I now have 6 basal rates. All my hypos were because of my basal rate, my carb counting & boluses were correct. I had no chance of avoiding the hypos on Multiple Daily Injections. I have now been vindicated!

I have called my parents & thanked them for believing me, not believing that I’m stupid, reckless, an alcoholic or lazy. My current medical team did believe me & we’ve tried everything. There is a real shortage of Pump clinic appointments. Diabetes & Endocrinology are woefully under-resourced.

After all the hypos, my symptoms aren’t brilliant. I still think I need a CGMS. When I see the Consultants on Monday, I’ll find out!

Goodluck! I’d love a cgm but my insurance won’t cover it!

Great job. I am a T2, but I really struggle with very different basal requirements overnight versus during the day. I'm glad it is working out well.

Great job. I love it when a plan comes together.

Hi Stemwinder, thanks for replying. I’m sorry to disappoint you, but I don’t & have never had a plan. I’m scared that a hypo might kill or maim me. Last year I had 12 hypos requiring the Paramedics & one where I also had to be given Oxygen. I’ve had at least 4 major hypos a year over the last 12 years. I’ve been very lucky, but my luck might run out. I’m beyond angry with my previous Consultants. Their theory has been that I’m stupid or negligent, because they’re perfect. I owe my life to a Politician, who got Social Services to provide me with the alarms that call the Paramedics, as I live alone. My medical needs should, I believe, be met by the health service, from their budget; not the Social Care budget.

Hello Renka, I’m British & we have a National Health Service. My healthcare should be free at the point of demand. It is very different from the American system, but it definitely has major flaws around Diabetes care, as I will explain in my next post. CGMS are not routinely funded by the NHS, but the risks posed by me not having one are too great & the Paramedic attendance is more expensive. We get what we can negotiate, so I’ll try.

Hello Brian, Levemir (Detemir) has a flat profile, so I couldn’t vary the rate. With the Pump & my 5 different basal rates can supply the insulin I need, rather than dictate to me. Are you on a Pump? Have you done basal tests?

I am on Levemir. I split my doses, with my evening dose being more than 3 times larger than my morning dose. But still I have trouble with highs in the mornings. A pump might be able to fix that, but in the US it can be much harder for someone with T2 to get a pump.

In the UK, getting a Pump if you have T1 is difficult.