What is the most challenging part of your diabetes management?


#62

Sir I am just rejoining this conference after a very long hiatus. Forgive me if I have made a wrong assumption about your gender.

It is important for all of us to make the correct decisions for ourselves - a wonderful woman I know who works in a scientific field reminded me once that each of us, when it comes to our own health care experiences = an experiment or a scientific study with an “N of 1.”

In other words - we each have unique experience. It is our own. We know our bodies best.

And I have learned o we a very tough 8 years since 2010 that i must advocate for myself and what is right for me.

If you are most comfortable with MDI’s and with maintaining a somewhat higher A1C to avoid Hypoglycemic episodes - and your Endocrinologist and health care team keep pushing you to lower your A1C . … perhaps it might be best to find another doc?

Or to stand your ground - although it takes great confidence to to this - and it often isn’t worth it due to the constant haranguing one receives to conform.

You appear to have other chronic health care issues you must deal with.

It took me 8 years to finally get the right team of Doctors (Internist/Endo) in Place - but I can finally say that I feel as though I have been given a “Get out of jail free card” because my current team a) understands me b) respects me and c) validates me and my approach as right for ME.

I wish you all the best.

Blessings,

A


#63

1)dealing with extreme exercise routines on zero basal for 4 hours at a time as well as the aftermath that follows while maintaining my BGs in my target range (70 to 110 )

  1. dealing with illness and high temp basal rates that change throughout the worst part of my illness to the getting well part of my illness.

  2. restaurants


#64

I would only go to an endocrinologist for a good laugh, since they are so arrogant about knowing nothing at all about the disease that their presumption that they can actually ‘advise’ someone who has lived with the disease 24/7 for more than half a century is ridiculous. Also, diabetes is so much a matter of making thousands of micro-decisions that seeking ‘general advice’ from people who only know about the disease from books or observing patients in the highly artificial and misleading circumstances of a hospital is worse than useless. Consulting an endocrinologist is like asking a driving expert how fast you should drive down Main Street next Thursday at 2 P.M. Whatever he knows about driving, he can’t possibly know what to tell you about your driving decisions at that time and place, which is the kind of decision we have to make all the time as diabetics.

My endocrinologist was a professor of medicine and after many years of policing me he married one of his patients, a type 1 diabetic (quite unethical, but that’s another story). When I next saw him, he apologized for being such an idiot all the years he had been my endocrinologist, since he said that only by living with a type 1 diabetic could he really understand anything about the disease. Good for him that he finally learned how big a gulf there is between what doctors know and what the reality is, but how few endocrinologists ever have his experience?


#65

Well, I seem to have lucked out. Right now I am going to a practice where both my relatively young (mid-forties? female Endo) and her CDE’s seem to be listening to me with concern and empathy.

Very refreshing. I am sorry that your experience continues to be so discouraging and I do hope that by some miracle it improves in the near future.

I never that it would for me. Whether it was Divine Intervention, good Research when looking for a new practice or just luck, I am grateful for the outcome.

What a difference it is making in my life. Compassion and understanding are healing.

Hope works wonders.

Blessings to you.

A

Anni Macht

(513) 800-8237

gracie1952@icloud.com


#66

This is my problem now that I am using injections. Although I control my high glucose levels mostly by only basal insulin before retiring to bed, occasionally , when I know I will be having a higher carb meal I will guess how much fast acting insulin to take. Doing this however has caused many instances of low blood sugar readings around 2.3 mmol/l leaving me with all the symptoms of hypoglycemia, trembling, confusion, feeling faint, sweating, etc; My wife and I are now frightened that one day this will cause me to lose conciousness or worse! I have recently seen that researchers are testing out a product that will eliminate hypos but have heard no more since. Hopefully, this will be available ASAP as it is a really urgent requirement due to so many deaths caused by guessing how many units we should inject. Thankyou for bringing this topic up.