KBJ86 - you’re not the only one!!! Very interesting that our stories are so similar, and we both have Graves.
I was told I had pre-diabetes about 2 years ago, and was on metformin for a year, but was able to get off of it after losing weight and incorporating a better diet and regular exercise. September 2014 my a1c was 5.7 without medication. Can’t tell you my bg #'s because I was never told to track it, and didn’t have a meter. I had no symptoms whatsoever when they told me I had pre-diabetes.
Last July (2015) I had a strange rash over my entire body for 3 days in a row, followed by other symptoms–it was awful!!! I took steroids for the rash (allergiest, doc, ER, med-stop–no one knew what caused it–“idiopathic” is all I was told), so when I followed up with my doc a couple weeks later he ran all my usual blood tests and he told me my A1C was an 8, I was VERY upset! I had lost about 60 lbs, (was trying to lose weight) had been going to the gym religiously for months at that time, was even taking an Insanity class 3 times per week. I got back on metformin for a couple weeks and gained 9 lbs—I was so frustrated that I called the doctor’s office and asked to be put on another medication, and the same thing happened. I’m guessing now that some of that weight loss was because of the diabetes? Anyway, it was strange and frustrating, and I was busy planning my wedding and didn’t want to deal with it, so I ignored it and wrote the bad #'s off to the steroids I was on. I stopped the meds altogether after about 3 weeks.
Things seemed ok for a few months, then here comes the new year, and all the classic diabetes symptoms–thirst, frequent urination, blurry vision, very tired all the time and cranky. Went to the doc on a Tuesday, was told I definitely had diabetes–type 2 according to him. BG was 425, a1c was 10. Was put on Metformin and Invokana. By that Sunday (Valentines Day) I was in ICU with DKA. It took until earlier this month before I was able to get in to see an endo, but my c-peptide came back as 0.7 and I was diagnosed with T1 about 2 weeks ago.
momof21 – do you have a larger city near you that maybe offers higher quality healthcare choices? It might not be a bad idea to seek out an endo that has a good rapport/reputation, even if it means driving a couple hours or so.