Hi All,
Just want to say a big thank you for all of your incredibly encouraging comments. My organisation is Diabetics with Eating Disorders www.dwed.org uk 
For what it’s worth I’m glad I went through it. I was anorexic/ bulimic as a teenager before T1 and I was amazed at the discrepancy in care between my anorexia and my deliberate ommission. I think that until it is in some way formally diagnosable then we are allowing all of these young t1’s to slip through the net. They are being seen by ED specialists who know nothing about diabetes and diabetes specialist that know nothing about ED’s. Just last week I had a girl finally admit to her DSN (after much support from our facebook group) that she wasn’t taking her insulin to lose weight, unfortunately for her she used the dreaded term ‘Diabulimia’ and as a result was told that what she had only existed on the internet and she should just take her insulin. This makes me sad and very angry. The health service had a chance to help and they didn’t due to semantics. The girls deserve better and that is why I’m glad it happened to me and I am old enough to be taken seriously. Sometimes the girls are just dismissed as stupid teenagers… I just thank god that this girl had our support group. I have already phoned the diabetes nurse in question and sent her a brief info sheet and some links to academic papers on eating disorders in T1, but what if this girl had no one? What if that was the first time she had told anyone? The amount of ignorance surround this in the UK is staggering.