We can all be grouped as diabetics don’t get me wrong. There is power in numbers. There can still be events such as “the walk for diabetes”. But when it needs further explanation I think the name differences would be much more helpful.
well said Pavlos!
I also think that non-d’s aren’t trying to be ignorant with their lack of knowledge. It’s how we preceive what they are saying. More infomative names will educate non-d’s so that they know. We will then not feel as if their lack of knowledge is ignorant.
Now that you put it that way I can definitely see your point.
Hello Yvonne, it was me , that started the thread in April ( ? ) and I am confused about your statement " The original post is rude " .What are you referring to as " rude " ?? I thought we were getting somewhere .Please let me /us know , thanks .
I am somewhat surprised , that Jenn ( but maybe she is new to TU ; I did not check her profile ??) started this discussion because of the simelarity ; maybe we can ask out TU Team to combine ?
Insulin-deficiency syndrome (IDS)
For sure, many People would be adding an A onto that one and thinking it was AIDS. No thanks. Diabetes or Type 1 is Fine with me.
I dont think it matters if we change the name or not, uneducated people will still assume they know it all, So all we can do is educate, Educate, EDUCATE, and put up with the smart asses!
I myself am a Diabadass!!!
Type 1 and 2 and similar in the fact that we all must teach those who dont really know, I would like to apologize for the comments that are bothering you I could pick them out because they bother me to, even though I am a T1.
Some people have weight problems so blame them for being a type 2 but there are thin T2’s out there and you cant blame an elder for causing T2, age happens to us all.
I also dont feel whoever started this post meant to cause you pain, they just worded what they wrote…WRONG
again I am sorry
have a great night
I like that - and agree educating others is the best option. When it comes right down to it, it’s only because we have been forced into it that we know or care to know what type what means - my dad has been type 2 since his early 30’s, and I knew very little about the difference for much of my life until my lucky number came up as a bonafide type 1 (a year ago last feb.) - and then it’s like, whoa, this is a serious business… And for the most part, those who ask questions really do become interested as they begin to see how complex a system it is.
On a side note, an example of how things have changed, when my dad was diagnosed he was basically told to carry on. But stop putting sugar in his coffee…
I don’t have a creative thought for a name change. But since I love factoids, here are a few:
- When this topic comes up, someone always objects because they say that they are thin but were diagnosed as having Type 2 diabetes. So to Lahle I would say, do you truly know you have Type 2 diabetes or have you been misdiagnosed? If you were young and thin when diagnosed, it is far more likely that you were misdiagnosed and actually have Type 1 diabetes. Check out the LADA/Type 1.5 forum here, most of us with adult onset Type 1 were misdiagnosed as having Type 2, strictly based on our age not etiology. Antibody testing is the gold standard for Type 1 diagnosis, c-peptide is also useful. Thin and Type 2 is very rare, when you take the misdiagnosed (antibody positive) Type 1s out of the Type 2 category.
- The original Greek term and the discussions by the Greeks described Type 1 diabetes.
- Type 1 and Type 2 diabetes are completely different diseases, with different genetics, causes, treatments, and cures. Just a leftover from the days before the medical community knew about autoimmune diseases. Can’t be compared with cancer.
- The Juvenile Diabetes Research Foundation is a money making successful machine. They make quite an effort to differentiate Type 1 versus Type 2, to distance themselves from Type 2. Why? Because children (yes, JDRF doesn’t promote all those pesky adult onset Type 1s) with a disease acquired through no action of their own get a lot of sympathy. Type 2s don’t. I am not saying this is right, I am just saying that’s JDRF’s strategy. It has worked in terms of raising money for Type 1 research.
And, insulin DOES put on weight. Absolutely. My niece was diagnosed at 8. We used to have to chase her around with food to get her to eat it. Even icecream, which we requested, she would take two bites and not be able to finish it. Once on insulin, the very minute you give that insulin shot, she is hungry and will eat all her food. Still picky about what she eats but it was very noticeable that insulin improved her appetite. She has always been in the 20th percentile, weight, 80th height. Now she is 40th percentile weight. And she eats 200 grams a day, rarely more. I can foresee that as an adult, once she stops growing, she will not be able to eat the same amount of calories as the general population. Because even Type 1s are insulin resistant at times and periods of the day.
Speaking as someone who has gained weight (deservedly), but is NOT Type 2, the discrimination seems based on the scorn the general population feels towards those of us who are heavy. Fat discrimination. As we age, many of us will gain weight. So a lot of people will be walking in my shoes someday, LOL. Type 2s are overwhelmingly blamed by the media for their disease. The myth being that you can cure Type 2 with diet and exercise alone. That Type 2 does not progress. That if you use insulin, you must have really mismanaged your disease. Type 1s do not want that stigma applied toward their children and I have seen this topic time and again on the CWD board. I think Type 1s should educate themselves about Type 2, just as they are always complaining people misunderstand their disease. That said, I would rather DN had Type 2, you bet! But that is because I believe it is easier to manage. I may be wrong, just what I had surmised.
I definitely didn’t mean to be disrespectful to anyone when I started this discussion for Type 1’s. And I don’t think I worded anything wrong, they are just my feelings. These are things I think about. And I have learned so much from reading everyone’s postings on this site, I thought I would pose my thought to people who would understand enough to give me thought-provoking replies. And of course, I was not disappointed with the variety of opinions. I just didn’t mean for anyone to feel attacked. Let me explain a little more…
When hospitalized last year and diagnosed with Type 1, I somewhat jokingly asked the doctor: “can I have Type 2?” He said no, and explained all the reasons why I don’t have Type 2 and said he knows that even before all the tests come back (I wasn’t overweight before losing weight, I was very active working out, I just don’t fit the profile he said…)
My 85 year old paternal grandmother got Type 2 somewhat recently. She has a little more weight than when younger (like 10 pounds maybe?) and she is older. But she has always been active and walks or bikes 30 minutes a day. She eats mostly veggies and real home cooked Italian food. Do I blame her for having this? No. She tries to do everything right. Sometimes our bodies don’t cooperate. But…she cannot even comprehend what my daily life looks like. I’ve tried to explain, but it becomes too overwhelming for her to really comprehend. She checks her sugar once in the morning and gets upset if it’s 120. Just not the same as my day. Ever.
My maternal grandmother died from lung cancer. She was a lifelong smoker. Does the family miss her any less because we think it was stupid to smoke? It’s not about blame so much as it is about responsibility for what can be prevented. I know I am very judgemental about people who eat junk/fast food, don’t exercise, etc…our Type 2 epidemic is not idiopathic. We know why.
Saying all that…I still don’t wanna be compared to what my OWN grandmother has and deals with. And I love her. 
As I mentioned earlier, the fact that most people – I am thinking particularly of employers – do not know how much effort Type 1s take to stay and remain healthy, all the micro-management, constant juggling, may be a good thing. Because if they REALLY knew what it takes, I believe there would be a lot of discrimination. It may work to my niece’s advantage – in fact, I know it does – for diabetes to be thought of as an easily managed disease. Just as long as they know to give her a juice when low. We have an R.N. at school and the school DOES get it. So every dance, outing, she is forced to embarrass herself by having the nurse or one caretaker present at these functions. She would be able to go to a non school dance with her cell phone, glucose tabs and juice. Type 2s often have it a lot harder than your grandmother. If diagnosed earlier in life, they usually do progress, often to insulin. And, I think they often have damage which may lead to complications by the time they are diagnosed.
I third that! lol
thank you, i seriously feel that word explains it all
Hi Nel,
Of course I’m not referring to you; I’m sorry to be confusing. I was referring to the original post of this thread.
i like the names you gave,i have no skill here, i cant imagine a name,but maybe pancereas malfunction,hope
you like it,it dosent describe what diabetes is precicely,but that is what all i can get
…and to actually answer tthe question, when I say type 1, and they reply which one is that, my response is “The Good One, with Insulin!” if they want me to explain further, I will…
Weight bias is one of the remaining visual biases in our society. It is also – within limits – something most of us “can do something about”. There are definite links between abdominal adiposity and insulin resistance – in both directions – and there are cases in which the presentation of “diabetes” appears to be directly related to lipokine interference (i.e., one appears “diabetic” because one is fat), and not necessarily because one’s beta cells or insulin receptors are malfunctioning. Whether or not this is the majority of “Type 2” presentations… our doctors don’t tests correctly to find out. (It’s possible the correct tests don’t exist yet).
For those whose “diabetes” presentation is caused by obesity, the continuation of a diet and lifestyle that maintains that obesity will cause progression to clinical diabetes (i.e., beta-cell malfunction). Maintenance of correct diet and exercise may delay, if not completely prevent, that progression in those cases.
In most cases of T2, insulin is a “medication of last resort”. It does not necessarily mean that the person has mismanaged his/her diabetes (much like an A1c of 8.0 doesn’t necessarily mean that a T1 has mismanaged his/her diabetes), but it does not rule out the possibility.