Another disappointing report regarding donations to JDRF


#21

Tim, I think knowledgeable people (like the commenters) might be thinking that research for quality of life can be funded by other non-profits or for profits (like the tech companies) and they would prefer that JDRF re-focus. Everybody has perspective and that influences their donations and their satisfaction with the recipient organization.

Research for or towards a cure is the #1 concern for me for various reasons…the biggest reason is I am 61 years old and want either a cure or a true artificial pancreas to be ready when my old age symptoms kick in. I am guessing maybe in the next 15-20 years I will need something other than self management based on the progression of health issues I’ve observed in my elderly parents (one died at 98, one is still walking but has memory loss issues at 98). Back when they were in their 80’s, they already had enough old age issues that probably would have kicked a self-managing Type 1 diabetic into the grave. I would like my diabetes to be either cured or managed by technology before I’m 80.


#22

This is nothing new. I stopped supporting JDRF awhile ago. Instead I have chosen to donate to Diabetes Research Connection, as well as summer camps for T1 kids. #typeonelookslikeme


#23

Have you contacted JDRF to voice your concerns? Derek Rapp can’t talk enough about JDRF and their contributions, etc at the various Ride To Cures I’ve attended. I’d sure love to corner him at one of these events and ask him some of these very questions.


#24

Without writing a whole treatise on the subject, I would make a few comments:

  1. JDCA was founded (and is financed by a mystery donor) after the Juvenile Diabetes Research Foundation changed their name to JDRF. IOW, they dropped the outdated term “Juvenile Diabetes”. They also publicly stated that they were going to focus on three areas. Cure, Prevention and Treatment.

  2. The JDCA wants only cure research for what they term as a “practical cure”. At their initial founding this was extremely ill-defined, but according to JDCA, any JDRF effort that wasn’t focused on a time-bound “practical cure” was mis-spent.

  3. Sadly, the old saw, “in order to make money, you have to spend money” also applies to fundraising for the JDRF. All the marketing for their events requires money. From the T-shirts, to the banners, to the salaries for marketing and planning the events, etc, they all require money to be spent. The money comes mainly from donations, but the events raise well above their cost.

  4. Here’s a link that touches on the JDRF’s research areas JDRF Research

  5. I’m not defending the JDRF as much as I am questioning the motives of JDCA. When I first heard of JDCA and read all of their materials, it became obvious that they had an agenda and almost every publication I have seen since then promotes this agenda, which to me is a negative, “My way or the highway!” approach.