Thank you, I am still searching, watching, testing, reading and trying get to the bottom of it. None of us are the same and nobody here is a doctor. Yet, many have experience, still that doesnt mean they can tell you or not tell you what you have. Exploring possibilities from their experience is a great option because my experience here with our doctors is awful.
Also, funny enough my husband and I would test one another a couple of times to see our numbers 2 hours after a meal. His were always in what is considered normal and mine were always high. It was interesting to see
Not dying, but would like to look back 10 years from now and have my eye sight, a good heart and good kidneys. That was a little drastic, dont ya think? I dont want to just sit and wait until i reach bs at 500, i want to help it before. Lets stay clear, this is all to treat my problem, help my problem and since many many say they wished they knew years before the hospital, I respect that and intend on asking all that I can to help me. One day I can help others I certainly wont reply just to pound my chest. This is a huge forum, people that dont believe I have an issue can definitely not respond. To the others that have, and know this is trial and error for some, thank you for understanding and being patient.
@Brian_BSC excellent points.
@momof21 regardless of lab results & suspected diabetes &/or âtype,â something is going on. Considering the mounting evidence of risks to health from even slightly elevated BGs on a consistent basis, I think you should be vigilant. Just donât go overboard with worry & frustration. Stress affects your health as well.
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@tiaE i appreciate you saying that! Thanks
What makes you believe that I donât think you have an issue? Looks like you have quite a few. What I am saying is that none of the results you have posted on this Forum (and I have read every single one of your posts) point to a diagnosis of Type 1 or LADA (which is a form of Type 1). Actually I am a doctor. No, I do not have diabetes, but I have a child with Type 1, and I have correctly diagnosed quite a few cases of both Type 1 and Type 2 diabetes (including my own daughterâs) in spite of the fact that I do not specialize in endocrinology but in another medical specialty, and have helped all of my patients who have diabetes get on a much better track with their diabetes management via recommending a LCHF diet, or adjustment of their oral meds and/or basal/bolus insulin regimens, or switching to an insulin pump, or utilizing a CGM. I am in the process of becoming officially certified as a CDE (Comprehensive Diabetes Educator) which I would like to do âon the sideâ in addition to my regular medical practice because there is a clear shortage of diabetes education occurring in the city in which I practice medicine. So, I ask you again, outside of the not-unexpected moderate high of mid-200 that your meter registered only 30 minutes after a high carb load, what do you consider to be a high fasting blood sugar? I am not at all saying I donât think you have diabetes; I am saying that, based on everything you have posted on this Forum, there is no indication that you have Type 1. You need to educate yourself, not only by reading things on the internet which may or may not be from reputable sources, but by reading expert sources such as Think Like a Pancreas by Gary Scheiner, to learn about the differences (and similarities) of the different types of diabetes, their diagnoses, treatments, and progression. I suspect that if you did this, you would feel a lot less anxious.
I get that your original post was a bit of venting, but not everyone who reads a post here is going to be up to speed on all your previous posts and history. So I think some people are respondingâas I wasâjust to what was in that first message and trying to figure out how to be helpful with only those facts to go on. Now that I see more of your story I can see that the reason I was a bit confused by the situation is because, well, your situation is pretty confusing at the moment and youâre certainly entitled to feel some frustration about it.
What is clear to me is two things.
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With only Metformin at your disposal, you donât have a way of dealing with spikes like the ones you get whenâlike all of usâyou occasionally give in to high-carb temptation. So obviously your best option is avoidance, and I think itâs clear enough that you get that, since as you say you mostly maintain a low-carb diet. But itâs also crucial to keep things in perspective or you risk making yourself crazy and burning out. Which is whyâŚ
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âŚI think you need to feel some reassurance that, yup, 245 shows somethingâs wrong, but if itâs clearing as fast as you describe, the occasional Rice Chex lapse is not putting you in dire risk of DKA or blindness, amputation etc etcâas long as it IS only an occasional lapse. Feeling sick and yucky at 245 is a good reminder of that, though I wouldnât over-interpret it beyond âIt sucks that I canât eat stuff I like without feeling horrible!â Which it certainly does.
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I know you stated previously that you tested repeatedly negative to celiac disease. I urge you to review your test results. Did you get the complete celiac antibodies blood panel? Here is the list:
-Tissue Transglutaminase (tTG) IgA and (tTG) IgG
-Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG
-EMA IgA
-total serum IgA and IgG (control test)
The reason that I bring this up is that I have Hashiâs Thyroiditis, celiac disease and am a thin TD2. Most doctors only order the TTG test and IGA deficiency test to screen for celiac disease (cheap and usually effective). My current insurance only allow GIâs to order the complete panel and not PCPs! I am lucky my doctor ordered the complete panel when anemia was my main symptom (no GI issues). I tested negative to the TTG tests and only mildly positive on the DGP IGA yet biopsies revealedz moderate to severe damage (Marsh Stage IIIB). Follow-up testing to check for dietary compliance has proven that I continue to test negative to the TTG tests.
You might have only received the standard screening TTG tests and may have fallen through the cracks. Just something to research. If you did not have the complete panel, you must go back on gluten-containing diet daily for 8 to 12 weeks.
I am pursuing this because it sounds like you have CD because of your anxiety, GI issues, unstable thyroid, not consuming dairy, and frankly, maybe some brain fog. All signs of untreated celiac disease.
I do want to assure you that I rarely eat grains because they spike me every time. I confess to eating a GF brownie the other day (for a party) Sad to say that I still have insulin resistance! I do not eat GF processed foods except on RARE occassions. I NEVER eat gluten and would never consider cheating as one exposure causes a three month autoimmune flare-up for me (as measured by my GI via antibody increases.
Recent reports indicated that a gluten free diet is not good except for those who have celiac disease. Why? Because most purchase GF processed foods (like those rice Chex). My Gf diet is comparable to the LCHF diet. Whole natural foods.
I hope this helps you.
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I have many? Well then, please, a correct diagnosis would be great! Since youâre going to taking care of patients and holding their lives in your hands, I would hope you look at the big picture, look at all the symptoms. I would hope they get a empathetic, calm, think outside the box doctor. Because the doctors Ive had that look for an antibody, heavy weight, or thirst are really limiting their ability to help me.
I havenât poking around on uninstantiated sites. They all say the same
A fasting blood sugar level less than 100 mg/dL (5.6 mmol/L) is normal. A fasting blood sugar level from 100 to 125 mg/dL (5.6 to 6.9 mmol/L) is considered prediabetes. If itâs 126 mg/dL (7 mmol/L) or higher on two separate tests, you have diabetes. Oral glucose tolerance test.
IF YOU DONT BELIEVE IN THESE NUMBERS FOR A LONG TERM HEALTHY PERSON, MAYBE THIS PROFESSION ISNT A GREAT IDEA
My functional medicine doctor that doesnt just go by the books in what he was taught, is helping thousands of patients in what other doctors missed. Ive seen it for years. Why I dont trust doctors and do my own research.
I had one test one time that was under 100, thats what I posted. Though I have years of testing and its always is asked "why is your fasting so high"
I didnt share years and years of testing on this forum to be honest Iâm looking for others experiences not a forum diagnosis.
I plan on reading a lot of books and learnimg about my high sugar issues. Years ago when they first started testing me my A1C was at 5.8 then 5.7 and fasting was always above 106. These days on metformin and I wake at 115 even after a small spinach salad with no dairy just chicken light dressing. Iâm 110 weight wise
Im always dizzy, cant control my menstral issues, lost weight, have headache, forgetfulness, tired, exhausted rather, fatigued, night sweats, sore eyes, funny feelings on my legs sometimes like sore or spider webbsâŚgoes on and on
So since its not diabetes contributing, what is it? Maybe you know
I totally appreciate that answer @DrBB
I guess, yes I was venting and nervous. Your answer is very helpful. I definitely cant eat that stuff. Iâm actually glad I checked the âspikeâ had no idea it got that high. Maybe why Iâve felt sick before and didnt think I should check because my husband is constantly telling me Iâm fine and always brings home hugh carb foods. I gave in, guess I cant
This does! @Cyclinglady!
I know only one type of test for celiac was taken but it did say on side note 3 others it suggested to take. I know my endo wont submit it, have to find someone who will agree to let me take the others.
So glad you sent this, gonna read it again!!
All I see is Immunoglobulin A blood work at 98
81-463 range given
And under says no antibody detected
And I havenât eatin gluten in 3 weeks as I decided to try again.
How people react to high/low BGâand at what levelâis highly individual, no question about it. I should add that I slightly overstated the case about not having a way to deal with spikes. I was thinking strictly in terms of insulin, but a brisk 15-20 minute walk can actually do a lot to knock one of these down. Drinking water also helpsâand getting dehydrated (a tendency for any type of diabetes) can also contribute to making you feel tired, headachy, nauseous etc.
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I have to do better at drinking water!
So you could have insulin resistance with CD?
Hey @momof21 - seems from reading your replies that you are feeling defensive. Sorry if you are reading these replies as antagonistic - I think folks here are trying to help you. As @DrBB mentioned, not everybody had your entire backstory on hand when you originally posted.
Also - I want to personally apologize. I will be removing myself from this thread. I must admit that I find your posts here to be hyperbolic and confusing and I believe I was reacting to your panicked tone, though that is totally on me. I do understand that this comes from a place of deeply seated concern.
I certainly do not want to be a reason you feel driven away from this community. I have received a lot of support here, and I hope you can find that, too! Hoping that you can find a satisfying diagnosis and treatment plan quickly.
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Thank you, I do receive a lot of support and a lot of stories like mine are sent personal Email. Its not one size fits all and others stories have been very useful. Iâm only defensive with one person but people have to make you feel that way, it doesnt just happen. Everybody else has truly helped, some contribute to my blood sugar highs 
All and all, I learn more and more each day, though I feel some will always âknow it allâ
I do not profess to know what âitâ is, nor am I attempting to offer you a diagnosis. Without you actually being a patient of mine and being able to examine you, review the progression of your lab values, and obtain a complete medical history, it would be sheer folly, not to mention nowhere near approaching the Standard of Medical Practice, to attempt to diagnose you. Iâm not sure what more to say to convince you that based on everything you have posted on this Forum in addition to what you have listed as your many, many symptoms your presentation and lab results do not point in the direction of a diagnosis of Type 1 diabetes. That is not me making a diagnosis, it is a response to your anxious posts, a response meant to reassure you that you should, as DrBB and many others have pointed out âfeel some reassurance that, yup, 245 shows somethingâs wrong, but if itâs clearing as fast as you describe, the occasional Rice Chex lapse is not putting you in dire risk of DKA or blindness, amputation etc etcâas long as it IS only an occasional lapse.â I am well aware of what both normal and abnormal lab values and ranges are, and these (among many other things) are exactly what I use in determining the next best step I should take in providing my patients with the best medical care I possibly can in the present climate (in the U.S.) of health insurers limiting or outright denying doctors the diagnostic tools, medications, and devices we need in order to treat our patients and assist them in maintaining the best health possible. If you feel like you were best treated by a âfunctional medicineâ doctor, then that would seem like a possible next step to take. Perhaps, and especially because you have found Brianâs advice to be comforting and reassuring, I am hoping that he (and other members) would be willing to offer their opinions about âfunctionalâ medicine, which I found quite enlightening.
And yes, so very concerned because I have 2 beautiful kids that watch mommy sick all of the time. It breaks my heart and Its been this way for years. Anyway, thank you