I am desperate to get my HbA1C down - it is still 7.8 and after 4 years of testing 10+ times a day, trying the pump, carb counting, etc for the last four years I am now convinced that the only thing that will work for me is low/no carbing. Thanks to the pump my basals are perfect but the post prandrials are awful. Small apples, for example, send me from 101 (5.0) to 222 (11.0). My ratio is correct -the insulin just doesn’t work fast enough for me. (On Humalog and tried Apidra but that was worse.)
My worries are that dietitians here in the UK strongly discourage this. Although I find it really hard, with low carbing my bloods are currently perfect throughout the day and I not only avoid the highs but also the lows The dietitian’s main concern is ketones but this doesn’t make any sense to me - if my blood sugars are perfect and I have enough basal insulin to keep them this way, why then would I have ketones? They seem particularly worried about this if I become pregnant. Although I certainly recognize that avoiding an entire food group is bad for a growing baby, I worry even more that my super high postprandrial levels would be more damaging. (Low GI / less than 30g still rises me way too high.)
This week I have had 10-20g carbs a day and no ketones (I tested because of their advice.) When I was a child I had Professor Sonksen as the doctor at the hospital who looked after me - a leading specialist over here- who told me that I was the expert and with my experience I would know more than any doctor. As a kid I really didn’t know what he meant until now and with an accumulation of incorrect diabetes advice over the years, I think I might just be right in thinking the way I do about my individual diabetes carbs.
I would love to hear about your experiences low carbing /ketones and your opinions to see if anyone agrees with me or if there is something I am completely missing!