The pain reduced and the range of motion increased immediately, within 24 hours. Full range of motion took a few months of physical therapy to fully restore.
@cardamom The risk of one disease does not necessarily mean the opposite risk? As in Dupuytren’s Disease… Type 1’s are more likely to have Dupuytren’s Disease, but having Dupuytren’s Disease does not make you more likely to get T1.
I believe the prevailing theory you are likely to have some Scandinavian genes in your background. The same Scandinavian gene that you inherit that causes the type 1 is probably linked in ancestry/genes to those that inherit Dupuytren’s Disease. But Japan and Taiwan have a high incidence of Dupuytren’s disease, but one of the lowest incidences of type 1.
But people with Dupuytren’s Disease are at increased risk of developing other disorders with similar connective tissue abnormalities like frozen shoulder.
Interesting note to me, I have type 1, one sister has had 2 frozen shoulders and the other sister has Dupuytren’s Contracture.
My whole family has dupuytrens. I am the only type 1.
My dupuytrens is also the least severe out of us all.
But I also have it in my feet.
I’ve heard it is a Viking disease, I am Irish so that makes sense.
I also hear it is connected to eye color, where people like me who have it in hands and feet are almost all blue eyed.
Although my eyes are kind of green, I think I’m kind of in there.
Most Japanese have brown eyes, so there you go.
Following these things via genetics is a rabbit hole because there are always exceptions.
And it does me no good to know really except to not marry another Viking.
@Marie20 Sure, it all depends on the mechanisms underlying the disorders, which we often don’t know. So if disorder A increases risk for disorder B, but not notably the reverse, possibilities include 1) that disorder A can directly somehow contribute to the occurrence of disorder B (e.g., disorder B can essentially occur as a complication or product of disorder A), and 2) disorder A has many mechanisms, only one of which is shared with disorder B, and that shared mechanism is a much more specific and/or potent predictor of disorder B.
Anyway, my guesses were just hypotheses—hard to say. But I wouldn’t be surprised if T1D + FS each were potential indicators of broader autoimmune dysfunction. One alone, maybe not so bad/a fluke, but other evidence suggests once you start racking up autoimmune disorders, more autoimmune dysfunction can follow, so I don’t see why that wouldn’t likely apply to FS if it is in fact autoimmune. Also in my hypotheses, increased risk might still be not that high, just increased.
Anyway, I have 0% Scandinavian genes and no family hx of T1D besides myself, but I do have a parent with frozen shoulder. No one has Dupuytren’s. I have multiple other autoimmune disorders, and likely am a data point demonstrating there is more than one way to be multiply at risk for autoimmunity and for what forms that autoimmunity takes. (Dupuytren’s if I’m not mistaken, is yet another likely autoimmune connective tissue disorder.)
Your shoulder may have been frozen as a result of your surgery but you didn’t have frozen shoulder – or, at least, you didn’t have adhesive capsulitis. It’s not something that goes away in a week or two and the people who have it and suffer from it for a long time aren’t simply too weak-willed to take their hand and force their shoulder to move…would that it were that easy.
About 20 years ago I developed frozen shoulder on my left side. I was up a ladder and on climbing down missed rung. I controlled my fall, and landed on that shoulder. I had a sharp drastic pain, and when I got up the frozen shoulder had a greater range of motion. Several months later I needed surgical release for trigger finger, and the sugeon offered to manipulate my shoulder. Woke up sore, but with much better range of motion. No problems since! Except, in 2010 I ruptured the long tendon in my right bicep from being on Lipitor and an antibiotic…
I had a frozen shoulder years ago. I went to see a sports medicine specialist who referred me to physical therapy. PT solved it, thankfully.
Beyond that, I’ve got a mix of supplements to bridge the nutrient gap and have started mixing one scoop of collagen powder into my morning tea.
I didn’t even know type 1s had issues with collagen deficiencies, but it makes sense. I’m taking collagen to battle back aging as I’m almost 55 and am aging well visually and want to keep that going.
I also know with other aging issues like menopause, brittle bones, and all the other things, I want to make sure I’m getting the nutrients that I need.
In fact, it’s Sunday morning and time for my morning cup of tea.
I had frozen shoulder. It should go away on its own. It can come back. In terms of getting better, yeah pt is probably best. I merely just altered the way or position i slept in. Took a while for it to go away, and yes it was annoying. In terms of collagen, chicken feet best source. Make broths at home. I do. Chicken feet are a great ingredient for broths, they’re very cheap, and one of the best sources for collagen out there in terms of food. Which is why people that eat or cook with chicken feet their whole lives have amazing skin as they get older like it almost glistens and no wrinkles. May be an old wives tale, but at least it’s not a ‘witches curse’, come on now really, and something that may help you.
I had one at the time not long before my type 1 diagnosis. It was so bad I couldn’t lift my arm, that part happened overnight. I had a steroid injection into the joint and the result was dramatic, enabling me to lift my arm immediately after. It was still very painful and I needed 4 months of pt after which helped a lot.
I was taking hydrolyzed collagen powder in water for a while for hair loss but I stopped because it made no difference and it tastes really terrible. I have started that again recently to see if it will help severe osteoporosis. I guess it can’t hurt, but that taste Someone needs to do something about that, it is horrific.
I put my powdered collagen in tea.
I tried that too, but then it just made the tea taste horrible, lol.
I had 2 frozen shoulders and I also have dupuytrens. I don’t think it’s about not having enough collagen. I think the elevated sugars on average does something to deteriorate collagen and connective tissues. Or make them more prone to injury.
I don’t know which it is. Mine is not debilitating, only a nuisance as of yet. I completely healed from my frozen shoulders with PT for a year.
My dupuytrens has not gotten any worse over the past say 5 years. My hands are still fully functional but my feet do hurt enough to keep me from running long distances.
At some point they will come up with some better treatment.
I hope that my tighter control will prevent it from progressing
What is was your A1c when you had the frozen shoulders ?
I had frozen shoulder twice since I was diagnosed. Both resolved over time with manipulation, stretching and exercises.
I have been supplementing collagen for several years, using a capsule form from Neocell. In the morning I take type 1 & 3 and in the evening type 2. I did not start taking collagen because of diabetes, but because of sun damaged skin (arms) and for joint health.
The frozen shoulder episodes were before I started taking collagen, so maybe it is preventing a reoccurrence. There is no way to know.
Prob was around 7% as that was what I was getting around that time, but I think it was prob higher the years before, but I don’t think I ever had and a1c over 7.5 aside from at diagnosis when I was over 10%,
I know I have a problem all over though. I haven’t been able to sit on the floor with legs crossed for many years. Of course I’m also getting older. I used to get shin splints when I was a runner and my doctor blamed it on not stretching enough.
But I would stretch all I could.
Thank you Luis for your input.
@Luis3 Has the collagen helped your sun damaged skin?
I think so.