I can completely understand an increase in depression with diabetes, whether it be type 1 or type 2.
As a mother of a type 1, 16 year old, I can tell you that diabetes affects the entire family. I have spent the last 6 years concerned about my son’s future. I am fortunate in that my son is very athletic and takes great pains to live as healthy a lifestyle as possible.
Last summer David had a test that is done after 5 years of a type 1 diagnosis to measure the amount of protein that spills into one’s urine. The test result was very bad and added to that, my son’s blood pressure results for the past twelve months have all been elevated. We had just lost my 68 year old Dad to a stroke months before, so with our family history of stroke (my Dad), heart attack (my Grandfather at a very young age) and now this issue with protein, our endocrinologist discussed introducing an ACE inhibitor within the next few weeks if a couple of overnight urine collections produced similar results. It turns out that the next two urine collections produced results that could not have been better, so we have not had to add an ACE inhibitor to the daily regime, but when we left the initial appointment my son was plain and simply MAD. He felt cheated. He felt that his efforts at control had been wasted.
As a ten year old he took his diabetes diagnosis in stride. I think he was grateful to find a resolution to why his life was suddenly turning upside down without explanation and as long as he was not going to die… right now… he was able to cope. The training for a 10 year old is pretty intense. After our week of diabetes education, my son would not go to sleep alone for close to a year. Someone had to lie down with him. He was afraid after hearing the horror stories of seizures and so on, to go to sleep, at night. He was worried that if he went to sleep, he might never wake up. It literally broke my heart and yet his worries were not trivial. The Mom of a friend of his lost her Dad to a diabetic coma from an overnight low.
Since then I have heard about a mother of a type 1 diabetic taking insulin herself when she could no longer cope, she died following a prolonged, self induced coma. I have a friend who lost a type 1 diabetic nephew in his early 20’s. He was abusing alcohol. She told me her nephew had been very depressed and alcohol and diabetes just don’t mix. At JDRF, a couple sat at a volunteer table beside me. They were volunteering to honor the memory of a young doctor/family friend/diabetic who had died in a diabetic coma. They believe that diabetes related depresssion was the fault of his death.
The stories of sadness, complications, battles lost, are endless. The cost of diabetes is overwhelming. We will of course help our son financially if his workplace when he gets to that stage of his life, does not have group insurance, but I worry about that now… each and every time that I send in a health claim for $1,0000 or more of supplies. I can’t imagine starting my working life with that kind of fixed expenditure before you can eat, before you are housed, before you can afford to budget earnings for anything else in your life.
We are at the stage in our lives where a 16 year old heads to bed an hour or two, later than, Mom. If David is not comfortable with his bedtime reading and whether or not he’ll be OK overnight, he wakes me to set an alarm. Usually 3 or 4 nights a week he will wake me between 10 and 11 and ask that I set an alarm to check on him around 1:00. Some nights he is fine. Some nights he is very high. Some nights his BG is low and I wake him to drink a juice while I turn the basal on his pump off for an hour. It is the inconsistency that kills you. You never know what to expect from one day to the next and I find myself, dead tired, at times. If it gets to me… it is no wonder that it gets to those who deal with diabetes first hand, versus second hand. I live with diabetes as a concerned parent but I don’t LIVE IT… day in… day out… test after test.
I try to get up every morning with a smile on my face and belief that my son will have the strength to fight this disease… to beat it down and not let it beat him down… to control it… conquer it… and live his life to its fullest.
Cheryl