First of all, thanks so much for reading this & helping! I really appreicate your time. I’ve read through previous posts for a long time but just joined Tu.
My name is Danielle. At 23, I was denied life insurance for a fasting of 129. I followed up with my doctor who didn’t pursue this much as I was asymptomatic. I wasn’t shocked- my mother has maintained the diagnosis of “Borderline DIabetic” for 42 years. At 22, she was hospitalized after a routine urine test revealed ketones. She was later released 24 hours later, and was told that birth control was to blame. However, her A1c’s have always hovered in the high 6’s. Doctors have wanted to put her on Metformin, she not taken this option, preferring to control with diet & exercise. She has always been small & thin. She also has Graves disease, hyperthyroid. Her sister sadly passed from MS. So there’s an autoimmune theme.
In 2008, pregnant with my first child (I was 33), I failed the 1 hour GTT with a 212. Maintained with strict diet & exercise. I started at 125 pounds at 5’5", gave birth at 138 pounds (this is the most I’ve ever weighed). At 41 weeks, our daughter (who we jokingly call Big Mak as she’s always been small!) was 6 pounds, 3 ounces. Her glucose at birth: 54.
2009- Follow up A1c after birth: 5.1. Passed 2 hour GTT. Still getting fastings in the 110-120’s. Asked to be put on Metformin as I thought this would help. Started on 500mg, no effect to fastings but at least I had peace of mind I was doing something.
2010- A1c has jumped from 5.1 to 6.4. There’s a logical reason for this- We’ve moved back from Japan (my husband is US Navy Medical Doctor, Family Medicine, was stationed in Japan for three years at a small clinic, Marine Corps Air Station Iwakuni Japan for my Marine/Navy friends!) to the United States & I’m eating badly. Also, I’m not able to get pregnant again. I don’t “fit the typical profile for PCOS” but Metformin is increased to 1500 mg. A1c falls to 5.9 (yay!).
2011- June, early miscarriage. July, pregnant! I’m now currently 20 weeks, woohoo!!! Metformin is stopped at 12 weeks. At 14 weeks, I miserably fail 1 hour GTT again with 198. I finally get to go to my first class with a nutritionist! I’m very excited. She says, “Wait, you look like a type 1. You’re not Gestational, you’re type 1, did you know that?” I reply, “I don’t know what I am!” She runs tests (yes, I love her). Here’s what I got as of September 2011:
Antibodies GAD, ICA, IA-2: Negative
Fasting C-Peptide: 0.5 (never been on insulin)
Blood Glucose at time of test: 90
My Maternal Fetal Medicine Specialist & my savior of a Nutritionist labels this as Diabetes (outside normal parameters) and says I’m probably 1.5 diabetic. I’m started on Glyburide 5 mg at night for my very stubborn fastings. It’s helping!! I’m actually get fastings under 90 for the First TIme in My Life!!
So, I’m asking you kind soul to let me know your thoughts on my situation!!! What would you call me? Can you refer me to the right groups? Am I more MODY than LADA? I’ve never seen an endocrinologist, but my MFM doc promises that he’ll refer me after my pregnancy (baby’s doing great!!).
I’m eager to fit in somewhere. And I’m eager to know more for my beautiful daughter & new baby’s sake, as well as for my mother’s! We feel like such outliers. For my mother, if this is a honeymoon period, then she’s maintained it for 42 years! That’s my kind of honeymoon.
THANK YOU!!! Please let me know what additional info I can provide!!!