Greeting everyone! Nice to meet you. My names Jim, I’ve had Type 1 since 1999 I’m now 36. The reason I’m posting today is because I think my times finally up. I’m having tingling and burning sensations on my hands and feet. It’s a 100% neuropathy caused by years of high sugar. If I had to guess 
This news has knocked the wind out of me. I feel like I’m still pretty young. Should I be worried? Can anyone tell me how they’ve dealt with this type of news?
Thank you friends!
Best
Jim
Cut the carbs and watch the results.
Get yourself on a CGM, and then, based on your results and motivation, set up a diet, exercise, and insulin plan you can implement with baby steps, and live with that will reduce or eliminate long-term damage.
There are lots of nonjudgemental people on this forum who have gone through what you are going through to various degrees, ready and willing to help.
What has been your A1C historically? Before you can mitigate neuropathy-related issues, making sure it does not get worse is step 1.
This is completely reversible. It takes time. Up to 3 months of tight control to allow your nerves to heal, then it’s maintenance after that. The old rule was to keep under 7% a1c will prevent neuropathy, but I think getting lower will help.
Use of cgm can get you under 6 with some effort, not everyone can, but just getting it lower than what it is will likely help your nerve issues.
I ran in the high 6s most of my life, cgm and a pump allowed me to get under 6% and I maintain it around5.8% most of the time.
There are people who get it under 5% on this site, but it does take quite a bit of effort.
I hope you get some relief, I’ve never had neuropathy, but I know it can be horrible.
Thanks for comment 
. Very good advice! As for A1Cs, I started out in the 6s for a couple years but then college happened and for the most part has stayed in the 7s. I do own a cgm, but I see what your getting at. I need to get my A1C down and hopefully I can slow down this damage down?
Hey Timothy, thanks for the comment . That’s good to hear this is possibly versible. 7s has been my A1C for most of my time. I’m very healthy, eat well, workout all the time. But the diabetes makes it seem like I’m pushing a bolder up a hill. But thank you for the suggestion. I’m going to try like hell to get this down and make sure thie complication can’t catch up.
Yes, and being in the 7 range and having been in the 6s in the past, you know that you do not have to make any significant changes, just minor tweaks here and there, until you work your way down to low to mid 6s to start. Start with the low-hanging fruit, look at your CGM trends, take the worst repetitive trend, and beat it down. Once under control, plug away at the next worst trend. You very quickly know what is causing the worst repetitive trends and you can reduce or eliminate the cause.
Good advice from @CJ114 and @Timothy but to add on to that you also need to focus on glucose variability. You don’t want wide swings in BG which can cause damage in and of itself without raising your A1C. Look up Standard Deviation on your CGM report. The lower the SD, the better. Shoot for somewhere in the 20’s. You could be in the 40’s or 50’s so work your way down with small goals like 2% decrease in SD a week. Diabetic complications can show up early or never and it depends on a lot of factors like BG control, genetics, access to technology, and life style.
My neuropathy came on in a big way when BGs went out of control while waiting for pump and CGM. That after 20 years with A1C between 6 and 6.5%, the most recent two with 40/50s canceling 180/200s every 2-3 days.
TIR will be a better target than A1C if you have offsetting highs and lows. And you can tailor limits for what’s reasonable for you.
Good luck with the neuropathy.
Thanks William, great advice . I’ll look into this. Would you say your nerves are a little bit better or less painful currently?
Neuropathy is a lot less painful! During the worst, pain was so intense I wouldn’t want to live with it long term. Now, almost 7 years later, neuropathy is more a nuisance. From what I remember, it took 4-6 weeks after getting insulin doses correct with pump before noticing major improvement. Then, more gradual improvements with tighter control. Mostly I’m running high 90s% TIR between 65 and 140 mg/dl. Most and fastest improvement was at the start, so definitely don’t need that tight or low to help. Diabetic retinopathy on eye exams is on/off, so protecting sight also.
There are a few ways neuropathy occurs, one is that the blood supply to the nerves is reduced, but the other more common is that the nerve sheath is worn down, that is the protective layer a nerve has. Hi sugars means more acidic blood. Over time it wears down the nerves. This is why you doctor will tell you to not exercise while your sugar is high. That because you will add lactic acid to your blood making it even more acidic and harsh on your nerves. So try to not exercise while it’s high. it might be what you need.
I attached an article since most info on the web doesn’t really get into the details, but this one does. How does neuropathy happen? New New research reveals pathway, possible therapeutic option - UBNow: News and views for UB faculty and staff - University at Buffalo
One last thing, if you recently started using a statin, consider that it might be the culprit, your doctor could come up with an alternative
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Hi there. I’ve had tingling in my toes for about a year and a half now and apparently some neuropathy in my hands, but I also have mild carpal tunnel, so really didn’t notice it.
It’s definitely hard news to take. And sometimes it’s just bad luck. My A1cs are under 7. And then you’ll have other diabetics with higher numbers that don’t get neuropathy. Acceptance helps. It is what it is. That helped me to move on and just focus on my variability or time in range.
I don’t know if the neuropathy is getting better, but I certainly don’t notice it as much. I have chronic pain from fibromyalgia so I’m just happy that it’s not painful. I can put up with a little tingling. 
I have been a T1D for 43 years and have little sign of diabetes complications yet and get my eyes checked for retinopathy every year. My best advice is to get a pump, watch your diet and get regular exercise, if not already doing so, to get your blood glucose level under control and improve overall health.
Also as preventative and hopefully aid in reversing the damage take a 12 mg tablet of Astaxanthin you can get on Amazon (Nutricost is my favorite) one of the best anti-aging supplement there is as it is a powerful antioxidant (anti-cancer) and helps your skin, joints, and eye health. It is made from natural ocean algae and is very safe. It has thousands of 5 star reviews on Amazon and over 70 studies backing up its numerous benefits. This study is one specifically on the benefits for eye health and retinopathy. It will take time to see improvements and hopefully reverse the damage, so be dedicated and patient. Good luck!
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9142330/
Take B12 vitamins. I had a really good Pediatrist who recommended it and it worked.